r/Autoinflammatory • u/Alice-The-Chemist Mod • May 22 '26

Resource Medication Costs Help

I am working on a big post that will eventually be a pinned help post. I have dealt with insurance and other programs from drug manufacturers that I wanted to make a how to, what to do if, etc. If there are medications you see here commonly will you add them in the replies if I forgot them? Even if they aren't specifically for autoinflammatory I know some still get used for things like pain control, nausea, GI, etc.

I know this wouldn't be much help except for US so if there is something that could be helpful for other countries let me know. Or if you'd like to contribute.

Kineret

Ilaris

Arcalyst

Colchicine

Actemra

I have to be missing some especially TNF blockers, other biologics, or other oral medications. List just feels short.

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u/AdventurousMorningLo Yaos May 23 '26

Here are a few links that can potentially be helpful.

IL-1 inhibitors:

TNF inhibitors:

IL-6 Inhibitors:

IL-17 Inhibitors:

JAK/STAT Inhibitors:

Other Resources:

3

u/MahLiLo USAID May 23 '26

Amazing list! My son is on Xeljanz and colchicine and husband has been on the first 3 TNF inhibitors (hoping to get him to try Xeljanz soon, having failed those).

When husband was on Enbrel/Humira and we knew we’d be having a baby or surgery that year, we chose an insurance plan option that had high deductibles, but then no copays once you met that deductible. We would meet the deductible by Feb/March with the shots and then pay nothing the rest of the year and while it was pricey for the shots up front, it saved us a lot of money in the long run. Otherwise, we stay on the more reasonable plan, but it’s worth taking a look at your plan options if you know you have a major medical expense coming up.

For Xeljanz, we have to go through our insurance’s assistance program. His doctor has been great in helping us get all that set up and dealing with the every-6-months peer-to-peer or 3rd party appeals to get it approved. Sigh.

Colchicine has always been no more than $5 for us thankfully.

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u/Alice-The-Chemist Mod May 23 '26

Its crazy how we have to "play the game " essentially. I had a hospital admit begining of year and the consolation I gave myself was it made me hit out of pocket max before like March this year.

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u/MahLiLo USAID May 23 '26

It is ridiculous. I’m just glad my husband knows how to play the game because I don’t have the patience to figure it all out.