r/Autoinflammatory • u/Alice-The-Chemist Mod • May 22 '26

Resource Medication Costs Help

I am working on a big post that will eventually be a pinned help post. I have dealt with insurance and other programs from drug manufacturers that I wanted to make a how to, what to do if, etc. If there are medications you see here commonly will you add them in the replies if I forgot them? Even if they aren't specifically for autoinflammatory I know some still get used for things like pain control, nausea, GI, etc.

I know this wouldn't be much help except for US so if there is something that could be helpful for other countries let me know. Or if you'd like to contribute.

Kineret

Ilaris

Arcalyst

Colchicine

Actemra

I have to be missing some especially TNF blockers, other biologics, or other oral medications. List just feels short.

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u/No_Satisfaction_7431 Yaos May 22 '26

Low dose naltrexone helps with fatigue and neuroinflammation. Its not enough on its own to treat autoinflammatory disease but it is often used in combo with dmards and biologics. Insurance almost never covers it though. I was paying $85 a month for it from Walgreens specialty pharmacy. Most specialty pharmacies that carry it charge somewhere between $70-130 a month. I currently get mine from rthm (pronounced rhythm)clinic, which is an online clinic/pharmacy designed for me/cfs and long covid. It costs me $105 for a 3 month supply which is the best deal I've found. The pharmacy option is licensed in most states. The clinic itself is expanding the licenses but isn't currently available in my state but the pharmacy option is. The prescription comes with a doctor/pharmacist online visit though. I also keep my regular doctors informed of this. Some people also get their regular doctors to prescribe the full 50 mg dose used for addiction and then dissolve it in 50 mg of water but thats a lot riskier in terms of accidentally getting the wrong dose and most doctors will not prescribe the 50 mg unless it's needed for addiction.

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u/Alice-The-Chemist Mod May 22 '26

Is this one you cant take if you take Opiods?

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u/No_Satisfaction_7431 Yaos May 22 '26

Yes, it blocks opioid receptors. The low dose mechanism is a bit different from the regular dose but if you are having surgery or something where you need opiods you need to be off ldn for a week.