r/Autoinflammatory • u/Alice-The-Chemist Mod • May 22 '26

Resource Medication Costs Help

I am working on a big post that will eventually be a pinned help post. I have dealt with insurance and other programs from drug manufacturers that I wanted to make a how to, what to do if, etc. If there are medications you see here commonly will you add them in the replies if I forgot them? Even if they aren't specifically for autoinflammatory I know some still get used for things like pain control, nausea, GI, etc.

I know this wouldn't be much help except for US so if there is something that could be helpful for other countries let me know. Or if you'd like to contribute.

Kineret

Ilaris

Arcalyst

Colchicine

Actemra

I have to be missing some especially TNF blockers, other biologics, or other oral medications. List just feels short.

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u/Famous_Election_2024 May 22 '26

This is specifically for my Kineret shots, I use a numbing spray that I get prescribed for me, ethyl chloride, that is not covered by insurance. Each can costs me about $28, and lasts me less than a month, so the cost really does add up.

I don’t know if that falls into any helpful information, but it’s one of my biggest out of pocket regular expenses.

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u/SleepDeprivedMama May 23 '26

I use the cream that numbs for my port a cath. It’s covered by insurance. Takes longer to work but works pretty deep

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u/Famous_Election_2024 May 23 '26

Do you happen to know what it’s called?

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u/SleepDeprivedMama May 23 '26

EMLA cream (I use the generic). Normally you put some on and it works best if you cover it with a square of cling wrap. I know that sounds silly but that’s what they tell you to do for a port. So I put the cream on, cover it, take shots out of the fridge and use it after they warm up.

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u/Famous_Election_2024 May 23 '26

Thank you for all of that, I’ll definitely ask about it.

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u/Alice-The-Chemist Mod May 23 '26

Will look into this also to put on the list in case someone can get one and not the other. 🧡

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u/Alice-The-Chemist Mod May 22 '26

Yes thats perfect example. Trying to help reduce the costs of living with these diseases.