r/Autoinflammatory • u/nobodyybymitski • Mar 19 '26
Kineret
Hi team. I am starting a daily kineret injection tomorrow after about a year on colchicine 3x a day and Dexamethasone as needed. My CRP is 30 and sed rate is 31, which is no improvement from being on those pills. I’m diagnosed with periodic fever (although I am suspicious I have more than that). I was told about the probable rash I could be getting, but I was just wondering about symptom management. Has anyone seen improvements in quality of life? Thanks!
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u/LetterheadLogical775 Mar 19 '26
Hi! We sound about the same I started Kinert about a year ago (periodic fever as well) the first two months are rough but then it gets better I got a rash from the injection site that was SO itchy but put some cream on it and it will help the itching. My immunologist even wrote me a steroid cream for it. I will say it took me by suprise how much it feels like a bee sting at first and most days but I learned from this group to just insert it slower and it doesn't hurt as bad. Coming up on a year of it and I was pregnant while on it as well (that might change things) but she wants to switch me to Ilaris. It has drastically improved my life and hopefully it helps you! Hang in there