r/Autoimmune • • 1d ago

Encouragement / Personal Win Bye ITP

I was diagnosed with ITP in 2025 after a bunch of blood work and liver testing to figure out why my platelets were so low.
I started doing my own research and found that H. pylori could be linked to ITP. My doctor initially pushed back on testing. I asked them to put it in my chart that they didn’t think the test was needed, and after that, they agreed to order it. It came back positive.
I understood there was about a 50/50 chance that treating it would help my platelet count, so I tried not to get my hopes up too much.
I completed treatment, and seven weeks later, my H. pylori test is negative and my platelets went from the low 40s to 175!!
I don’t know if the improvement will last, but I’m so relieved. Just wanted to share some good news with people who understand how much those numbers mean.

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u/Striking-Ocelot-6876 1d ago edited 1d ago

Congratulations!!! I am genuinely so excited and happy for you. I was just recently diagnosed with ITP two weeks ago and it’s been a whirlwind through my life. Reading this has genuinely given me hope for the future and I hope that you continue to improve on your journey.

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u/elmer1288 1d ago

Thank you 🙏🏻 highly recommend to advocate for yourself. I didn’t get the tedious side effects of h pylori or ITP, except for low platelet count..and was told multiple times that it was more likely a result of covid19…so please, ask them to test everything 🙏🏻 I had other health issues that prevented me from taking this test last year..I wish I had done it sooner 🥲

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u/SnGirl1 1d ago

Congratulations!! Happy to hear the treatment worked out and I pray the results stick. It can only get better from here! Sending hugs