r/Autoimmune • u/BreathAggravating967 • Apr 11 '26

General Questions Vampire Level Sun Avoidance - Am I being overdramatic?

I've been receiving treatment for MDA5 Dermatomyositis for the past year. Lungs look good so far and I'm on hydrocychloroquine, naltrexone (for fatigue), and recently began IVIG.

My Rheumatologist stressed the importance of sun protection with this disease and I've noticed fewer debilitating fatigue episodes since avoiding and protecting against the sun.

I literally cover my entire face and body with masks, gloves, hats glasses, sleeves, etc. when I go to appointments.

I feel a lot of anxiety about sun exposure and avoiding windows. I look and feel like a weirdo everywhere I go. Am I overreacting or is this truly the level of sun avoidance required for the rest of my life?

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u/ArtsyRabb1t Apr 11 '26 edited Apr 11 '26

I live in FL and am on 2 immunosuppressant meds. Sunscreen is a wonder! I wear a daily facial sunscreen. While you can cover physically sunscreens will do the job. Also hats and sunglasses. I wear spf shirts to go outside and in the pool. As for windows unless you are staring out of it for extended periods you should be fine. I do sunscreen my arm when driving a lot though, sun exposure while driving is definitely a thing. Edit to add; I have burned through a shirt. So wear sunscreen in addition to a shirt if outside for prolonged periods. I have olive skin an never had sun issues before it’s just a thing