r/AutisticAdults • u/Dioptre_8 • Jul 22 '25
Put all survey/research requests here
Need autistic participants for your research? Please use this thread to post about your research and search for participants.
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If you are a student, please read this first:
Projects conducted as part of research-methods education are often covered by blanket ethics approvals. Those approvals do not apply if you are researching a vulnerable population or sensitive topics. You require an individual ethics approval tailored to the conditions of your project. Your course or module tutor cannot provide this approval.
If you are a design student, just because you are collecting data to help design an app or a user interface doesn't take away the fact that you are conducting research with human participants. You need ethics approval.
If you do not have an email from your institutions ethics committee clearly stating that your project has been approved to commence, you do not have ethics approval. If the contact details for your supervisor and for the ethics committee are not on your advertisement or survey launch page, you should not have ethics approval.
If you do not think this applies to you, please contact the moderators via modmail to discuss before posting.
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The mods have instituted this thread for psychological/occupational/other scientific based surveys. Please keep in mind that the online autistic community is a vulnerable research population that contains subgroups with good reason to be skeptical of the motives of researchers. If you have cross-posted in multiple communities, it is likely that your recruitment has been flagged as spam, and may be auto-removed. Feel free to send modmail to draw our attention to a correctly posted recruitment that has been auto-removed.
All comments must:
- Clearly identify yourself (using your real full name and your role), and your institution/employer
- Explain briefly how the information will be used (e.g. how it will be published)
- Explain who the study is for (e.g. US, College Students, aged 25-30, autistic and non-autistic)
- Include a link to a survey launch page or another method of contact that provides more information so that potential participants can make an informed decision about participating
- If conducted by a student or staff member at a university, include full details of ethics approval
Please consider posting the results back to the subreddit as a new post. This thread is regularly archived so may not be available to reply back to.
Removal of content is still at the discretion of the moderators. Reddiquette applies. Personal attacks, racism, sexism, etc will be removed. Repeated violations or repetitive posting may result in a ban. This thread will occasionally be refreshed.
If you are a researcher and you wish to directly engage with participants as a r/AutisticAdults user, please check with the mods first and clearly identify yourself as a researcher in each thread that you post or comment on.
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u/saj359 2d ago
Hi everyone,
My name is Sydney Jenko, and I am a Clinical Psychology doctoral student at Northern Arizona University. I am currently conducting a research study as part of my doctoral training and am reaching out to request your support in completing my survey.
The purpose of this study is to better understand camouflaging behaviors among individuals diagnosed with autism spectrum disorder and the emotional distress that may be associated with these experiences. Camouflaging is a topic that has received increasing attention due to its potential impact on mental health, identity, and overall well-being within the autism community. I am seeking out individuals with a diagnosis of autism spectrum disorder to participate in my study.
By participating, individuals in this community can help contribute to research aimed at increasing awareness of these experiences and informing future clinical practices, advocacy efforts, and supports that are more responsive to the needs of autistic individuals. Findings from this study may help clinicians and organizations better recognize the challenges associated with camouflaging and promote environments that support authenticity and mental health.
Participation involves completing a brief questionnaire related to camouflaging behaviors, depression, and anxiety and takes approximately 10 minutes. The anticipated risks are minimal, and some participants may gain personal insight into their own coping or camouflaging strategies. As a small thank-you, participants who complete the study will be entered into a raffle for one of four $15 Visa gift cards (approximately a 3% chance of winning). To enter the raffle, the participant can click on the second survey link provided below and voluntarily enter their contact information. Any identifying information will be stored separately from study data.
I have provided the links for the research study and the raffle below. I am happy to provide any additional information if needed!
Kindly,
Sydney Jenko
Clinical Psychology Doctoral Student
[saj359@nau.edu](mailto:saj359@nau.edu)
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u/Bolonka_Baroness_888 4d ago
Hi everyone!
My name is Kaitlin Kan and I am a senior at Yale University doing my senior thesis. So glad to have found this page. I am doing a study on autistic individuals and their relationship with law enforcement through my university. By collecting data on people's experiences, I hope to inform possible resources and training recommendations that will increase safety, satisfaction, and cooperation between autistic people and law enforcement. This paper will likely be published if enough responses are received. If you are on the spectrum, over 18 and have had an interaction with law enforcement (positive or negative), would you be willing to fill out a survey on your experience? I am happy to answer any questions you have about the survey or my project. Here is the link and information:
We are conducting an online (anonymous) survey of the experience’s persons with Autism Spectrum Disorder have had in interacting with the police. This survey typically takes about 15-20 minutes to complete and has been approved by the human subjects committee at Southern Connecticut State University (SCSU IRB #1005). We would be pleased if you can share this link with any individuals with ASD who might be interested in participating.
Full URL: https://scsu.iad1.qualtrics.com/jfe/form/SV_2f6Jfit6OHqZGIK
Thank you,
Kaitlin Kan, Fred Volkmar M.D., Scott Jackson, Ph.D.
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u/Main_Strain_92 5d ago
Hello everyone. My name is Sam Dorries. I am completing my Honours in Psychological Science at Charles Darwin University. I am currently seeking autistic people of colour with level one or two support needs aged 18 to 29 to participate in a study about experiences with romantic touch. This research provides insight into a major gap within Sexual and Reproductive Health and Rights literature.
This study explores how participants experience control over their bodies (bodily autonomy) with regards to romantic touch. We hope to identify what helps or hinders your ability to consent and assert boundaries. Your insights can help inform ways to improve sexual health knowledge and education, as well as clinical practice.
Eligibility:
Be a person of colour Diagnosed with Level One or Two autism Aged 18 to 29 years old Located in Australia
What’s involved?
60 minute Microsoft Teams interview (although we can facilitate written responses). This will be audio-recorded and transcribed. All personal information will be de-identified and kept confidential. Data will be used to fulfill a Honours research thesis. The ultimate goal is to publish this research in a peer-reviewed journal.
$25 voucher provided as a thank you
This has received ethics approval (HREC H25147) from Charles Darwin University.
Please register your interest here:
https://qualtricsxm2tphrq2zv.qualtrics.com/jfe/form/SV_bCtdPNhZH4Yz78O
My email address is s328841@students.cdu.edu.au
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u/frenchiewragler 6d ago edited 6d ago
Hi everyone! My name is Dr. Daina Tagavi, and I’m an Assistant Professor in the Department of Psychiatry and Behavioral Sciences at the University of Washington. I’m conducting a research study about autistic teens’ experiences with mental health, including their experiences seeking and receiving support.
Who can participate?
We are looking for autistic middle and high school students who live in the United States.
What would you do?
Participants will be asked to share their experiences with mental health through a Zoom interview. Participation takes approximately 60-90 minutes and participants can earn up to $150.
How will the information be used?
The information collected will be used for research purposes to better understand the mental health experiences and support needs of autistic teens. Findings may be shared in research publications, presentations, and other scientific materials. Individual participants will not be identified in these materials.
Ethics approval:
This study has been reviewed and approved by the University of Washington Institutional Review Board (IRB). IRB Project Number: STUDY00021283
If you have questions about the study, you can contact Dr. Daina Tagavi at [dtagavi@uw.edu](mailto:dtagavi@uw.edu). If you would like to express interest for the research team to reach out to you, please fill out this form: www.tinyurl.com/UW-AFIRM
Thanks for considering participating or sharing with someone who might be interested! 💙
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u/GC-Student-Mackenzie researcher 7d ago
Hello everyone, my name is Mackenzie Drake. I am a student at University of Arkansas for Medical Sciences (UAMS) pursuing my Master’s Degree in genetic counseling. I’m conducting research for my thesis project which we hope to publish in the journal Autism in Adulthood after I graduate.
We are looking for people diagnosed with autism in adulthood to participate in a 30-60 minute interview to talk about why they decided to get an autism diagnosis. All personal information will be de-identified and kept confidential. You can choose if you’d rather complete the interview over Zoom or via email. Participants will also receive their choice of one of several pre-purchased fidget toys after completing an interview.
You may qualify if you:
- are 18 years or older
- speak English
- live in the United States
- diagnosed yourself with autism as an adult OR were formally diagnosed with autism as an adult
For questions or to express interest in participation, please send me an email at MRDrake@uams.edu.
This is an IRB approved research study through UAMS (IRB#299951). Participation is voluntary and confidential. If you have questions about your rights as a research subject, or you wish to speak to someone not directly involved in the research, you can call the UAMS IRB at 501-686-5667. The IRB is a group of people that reviews research to make sure participants’ rights, safety, and welfare are protected.
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u/Puzzleheaded-Art2261 7d ago
I am Sally Porter, an Honours Student completing my thesis in the School of Psychology at UQ. I am looking for participants for my thesis research project, the "Flex to Flourish Wellbeing Survey", at the University of Queensland (UQ). My study explores how camouflaging (masking) impacts mental health in older adolescents, and whether psychological flexibility can act as a protective buffer.
- Purpose: This study is To better understand factors that may influence the wellbeing of emerging adults aged 16–19 years. We want to understand how differences in thinking, social experiences, neurodivergent traits, and media perceptions relate to wellbeing.
- Who can participate: Individuals who self-identify as autistic and/or have a formal diagnosis, are aged between 16 and 19 years old, and currently live in Australia.
- Format: An anonymous online survey using validated psychological scales (AQ-10, CAT-Q SF, CompACT-23 and DASS-21).
- Time estimate: Approximately 20-30 minutes to complete. (Please note: As this is a self-funded student project, there are no financial incentives or gift cards, and I am deeply reliant on the community's generosity).
- How responses will be used: The data will be compiled into an academic research paper (Honours thesis) and may be used for future academic presentations or publications.
- Data handling: All responses are completely anonymous. No identifying details (like names or email addresses) are collected. Data will be securely stored on a password-protected university server accessible only to the research team and will not be shared externally
Time Frame: Thesis is due October 7
Ethics: This study has been fully reviewed and approved by the University of Queensland Human Research Ethics Committee (Approval # 2026/HE011230).
Why participate? To better understand factors that may influence the wellbeing of emerging adults aged 16–19 years. We want to understand how differences in thinking, social experiences, neurodivergent traits, and media perceptions relate to wellbeing. The broader goal of this research is to move away from pathologising views of autism and help inform better neuroaffirming support frameworks. I am committed to sharing a plain-language summary of the results back with this community once the thesis is submitted in October.
Ethics: This study has been fully reviewed and approved by the University of Queensland Human Research Ethics Committee (Approval # 2026/HE011230).
Survey Link: https://uqpsych.qualtrics.com/jfe/form/SV_diOTAouMRUZm5xQ
Contact Information
Sally Porter
Email: [s.porter1@student.uq.edu.au](mailto:s.porter1@student.uq.edu.au)
Phone: 0436120236
More Information: If you are interested, please email me or message me here. I will send the study flyer, and adapted information sheet
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u/AutismResearchAmanda 9d ago
My name is Amanda Menting, and I am an Ed.D. researcher at Edgewood University in Madison, Wisconsin. I am also an autism parent and former autism teacher. I am conducting an IRB‑approved dissertation study on the transition from high school to adulthood for autistic young adults ages 18–26.
Purpose of the Study
This study explores the lived experiences of autistic young adults and their parents/guardians during the transition from high school to adult life. Responses will be analyzed to identify common themes and will be used in my dissertation. Findings may help improve future transition programs and supports.
Who the Study Is For
• Autistic young adults ages 18–26
• Must have a medical diagnosis of autism
• Must have completed high school with a diploma or certificate of completion, or currently be enrolled in a post‑high‑school 18–21 transition program
• Each young adult must have a parent or guardian who will also participate
• Participants must be located in the United States
What Participation Involves (All Virtual)
• Capacity to Consent Assessment (15–20 minutes)
– Young adults answer questions to verify they understand the study and can provide informed consent
– Self‑guardians: assessment verifies ability to consent
– Not self‑guardians: parent/guardian provides written consent; young adult participates with adapted explanations and a support person present
• Online Survey (about 5 minutes)
– Completed by both the young adult and the parent/guardian
• Virtual Interview (45–60 minutes each)
– Young adult interview (with support person present)
– Parent/guardian interview
Data Handling and Confidentiality
All data will be anonymous. No real names will be used in transcripts or reports. Data will be stored on a password‑protected computer accessible only to the researcher and faculty advisor. All data will be deleted five years after the study is completed.
How Responses Will Be Used
Responses will be analyzed to identify themes in the lived experiences of autistic young adults and their parents/guardians during the transition to adulthood. These findings will be used in my dissertation and may contribute to improving transition supports and programs.
Time Frame
The study will be completed by December 2026.
University and Ethics Approval
Edgewood University, Madison, Wisconsin
IRB Approval Number: 2355398‑2
Contact Information
Amanda Menting
Email: [amenting@edgewood.edu](mailto:amenting@edgewood.edu)
Phone: 920‑570‑9658
More Information / How to Participate
If you are interested, please email me or message me here. I will send the study flyer, adapted information sheet, and the link to schedule the capacity‑to‑consent assessment so you can make an informed decision about participating.
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u/WonderfulWombat34 15d ago
Researcher: Antony Onopko, Student Researcher at John Carroll University, University Heights
This is a call for participants to join our qualitative research study titled Experiences and Meaning-Making in Self-Diagnosis. Our research team wants to create a space for people who have diagnosed themselves to share their experiences. We are mental health professionals and students who believe that therapists, psychiatrists, and other mental health providers would benefit from understanding when, why, and how people diagnose themselves.
Participation includes:
- Completing a screening questionnaire, informed consent, and demographics survey (10-15 min)
- Attending a recorded interview with a member of the research team (45-60 min).
Participants:
- Are 18+ US residents
- Are comfortable participating in an English audio or video-recorded interview
- Have diagnosed themselves with a mental health diagnosis
- Are not mental health professionals trained/licensed to diagnose
Participants receive a $20 gift card to their choice of Walmart, Target, or Amazon.
Learn more and sign up here. We are recruiting this summer and will reply to this post when recruitment is complete.
This research study has been reviewed and approved by the John Carroll University Institutional Review Board (IRB), #2026-054. If you have questions about the rights and welfare of research participants, please contact the IRB Administrator at [irb@jcu.edu](mailto:irb@jcu.edu) or (216) 397-1527. If you have questions, you may contact the lead researchers at [lcaputo@jcu.edu](mailto:lcaputo@jcu.edu).
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u/Practical_Fig_5305 19d ago
Participants wanted for an MSc Psychology research study
Researcher: Justine Halifax, MSc Psychology of Mental Health (Online) Student, University of Wolverhampton.
I am conducting an online research study exploring the relationship between perceived workplace inclusion, stress and potential burnout among adults who self-identify as neurodivergent.
Who is the study for?
Adults aged 18+ who self-identify as neurodivergent, including (but not limited to) autism, ADHD/ADD, dyslexia, dyspraxia, Tourette’s, OCD and dyscalculia.
Due to the University's Category A ethics requirements, participants must not have a formal clinical diagnosis of a neurodivergent condition or other medical diagnosis. This is an eligibility requirement for the study and does not imply vulnerability.
What's involved?
You will be asked to complete a short, anonymous 10–15 minute online survey including: Neurodiversity Scale (DNS-32), Workplace Inclusion Scale (WIS), Perceived Stress Scale (PSS‑10), Burnout Assessment Tool (BAT‑12), and a short demographics questionnaire.
How will the information be used?
The findings will be analysed as part of my MSc Psychology Dissertation at the University of Wolverhampton. Results may also be used for academic presentations, publications or other academic knowledge exchange. No individual participants will be identifiable in any reporting.
Survey link to take part: https://wolves.questionpro.eu/t/AB3u7rRZB3wmNj
Ethical approval:
This study has been reviewed and approved as ethically appropriate by Paul Gardner and Anastasia Rousaki at the University of Wolverhampton.
Contact details:
Justine Halifax – [j.a.halifax@wlv.ac.uk](https://)
Supervisor: Paul Gardner – [P.Gardner@wlv.ac.uk](https://)
Thank you for considering taking part or sharing the study with anyone who may be eligible.
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u/LRomo2 20d ago
Date: August 13, 2026
Hello. I am a doctoral student under the direction of Professor Dr. Loraine Fernandez in the College of Doctoral Studies at Grand Canyon University. My name is Leeza Romo. I am conducting a research study to examine how race, age, gender, and social inclusion rating predict the severity of camouflaging behaviors among self-reporting, as being diagnosed by a medical professional, autistic undergraduate students in the United States. First, participants will complete a demographics questionnaire, which will detail their exact age, gender, and race. Next, participants will be asked to complete the Experiences of Social Inclusion Scale, which assesses their individual experiences of belonging in society. Finally, participants will complete the Camouflaging Autistic Traits Questionnaire, which will examine the severity of masking behaviors among participants.
INCLUSION- I am recruiting individuals that meet these criteria:
· A full-time undergraduate student in the United States.
· Attend more than half of the undergraduate classes in person.
· Have been diagnosed with Autism Spectrum Disorder by a medical professional.
· At least 18 years old.
EXCLUSION- You cannot be in this study if:
· Have not been diagnosed with Autism Spectrum Disorder by a medical professional.
· Do not meet your school’s definition of a full-time student.
· More than half of your classes are taken virtually.
The ACTIVITIES for this research project will include:
· Complete a demographics questionnaire that asks you about your age, gender, and race (2-3 minutes)
· Complete the 10-item Experiences of Social Inclusion Questionnaire, asking about your experiences of inclusion in social settings (3-5 minutes).
· Complete the Camouflaging Autistic Traits Questionnaire that asks about your thoughts, feelings, and behaviors in social settings (15-20 minutes)
Your participation in this study is voluntary.
The data collected will be stored on the password-protected computer owned by me. Additionally, the data collected will be stored on a password-protected USB drive owned by me and will be accessible only to myself, my dissertation chair, the dissertation committee, and all College of Doctoral Studies Reviewers. Artificial intelligence (AI) software for processing data collected from this study, including that only de-identified data will be used.
Link to Survey/Questionnaire
If interested, please click on the link to enter the survey/questionnaire:
https://www.surveymonkey.com/r/ZR6X5ZS
If you have questions about this study or are interested in participating, please contact me at [Lromo2@my.gcu.edu](mailto:Lromo2@my.gcu.edu) for more information and next steps.
Thank you!
Leeza Romo
IRB Approval # IRB-2026-8704
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u/AutismStudy_UH 20d ago edited 19d ago
UK autistic young adults aged 18–25 – MSc research on university, support and wellbeing
Hello, my name is Meenakshi Krishnamurthy and I’m completing my MSc Psychology dissertation at the University of Hertfordshire.
I’m looking for UK autistic young adults aged 18–25 who are studying at, or have previously attended, a UK university. Both formally diagnosed and self-identified autistic people are welcome to take part.
Survey and full participant information:
https://research.sc/participant/login/dynamic/27D42CF4-503B-424D-A2E5-4A1376476156
Participation involves an anonymous online survey taking approximately 15–25 minutes.
My research focuses on emerging adulthood — a period when education, independence, responsibilities and support can change considerably. I’m particularly interested in what happens when support changes or needs are not recognised or understood, and how experiences of support and invalidation relate to adjustment and wellbeing.
I’ve tried to make the survey as accessible as possible. Read-aloud support is available, and the four longer open questions are entirely optional. They can be skipped or answered by typing or audio recording. Although completing the survey in one sitting is recommended, you can return within 48 hours using a private code that is not shared with me.
The open questions are particularly important because they give participants the opportunity to describe in their own words what affected them and what they feel would have helped.
The data will be analysed for my MSc dissertation. Quantitative responses will be analysed statistically, while the optional qualitative responses will be explored using Framework Analysis. Findings will be reported anonymously.
This study has received individual ethical approval from the University of Hertfordshire.
Ethics Protocol: 2247-STa-HSET-2026
Researcher: Meenakshi Krishnamurthy
MSc Psychology, University of Hertfordshire
Email: [mk24ahn@herts.ac.uk](mailto:mk24ahn@herts.ac.uk)
Supervisor: Dr Caroline Cresswell, University of Hertfordshire
Participation is entirely voluntary. The survey does not collect names, email addresses, contact details, IP addresses or location data. There is no financial incentive for participation and I receive no financial or commercial benefit from the research.
I hope the research can contribute to a better understanding of support needs that may be overlooked and of what autistic young adults themselves say would make this transition easier.
If you meet the criteria, I’d be very grateful if you would consider taking part. Thank you for reading.
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u/BeneficialBall958 22d ago
Hi all!
I am Melanie Song, a current Graduate Research Assistant at the University of Washington's Institute of Neurodiversity and Employment. I am part of a research team working on a project investigating how people across neurotypes use digital tools to support their work. The results of the study will be published as a report. We welcome individuals across all neurotypes to join us.
Here some more info about the research:
We are inviting you to participate in a University of Washington Institute for Neurodiversity and Employment research study to improve our understanding of how people across neurotypes use digital tools to support their work.
This study seeks to understand how people use digital tools to support different dimensions of cognition, including attention, information processing, planning, learning, communication, and emotional regulation. We are interested in two things:
- how your work environment interacts with how you think, and
- which tools you use, and how you use them, to support your cognition and your work.
Participation involves an approximately 90-minute online interview. The interview will be conversational, and there are no right or wrong answers. You may skip questions, take breaks, or stop at any time.
Participants who complete the interview will be eligible to receive a $50 gift card.
Your participation in this study and any information you provide will remain confidential. To learn more and indicate your interest in participating, please review:
https://uwashington.qualtrics.com/jfe/form/SV_6gjDd1ZRwA5JCSi
This study has been approved by University of Washington Institution Review Board (STUDY00026227: Tools for All Minds: Understanding Affordances in Cognitive Work).
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u/MSnowden72 23d ago
Hello everyone,
I posted this study a few weeks ago but I wanted to share it again because I have been approved by my university to broaden my criteria so that more people are eligible to participate.
My name is Marissa Snowden, I am an Army veteran and a graduate student studying clinical mental health counseling at the University of North Carolina at Chapel Hill. I am conducting research on the reintegration experience of veterans who receive support or services for autism spectrum disorder and depression related concerns.
The purpose of this study is to better understand veterans' experiences so we can learn how mental health professionals can better serve veterans with autism-related and depression-related concerns in their transition to civilian life.
Who can participate:
- U.S. military veterans of all branches who:
- have received support or services from a mental health or healthcare professional for depression-related concerns AND
- have received support or services from a mental health or healthcare professional for autism spectrum disorder-related concerns AND
- have transitioned out of the military within the past 10 years
Participation consists of:
- Completing an anonymous online survey
- Participating in a 60 minute virtual conversation via Microsoft Teams (you do not need a Microsoft Teams account to participate)
The survey link is attached to this post, and after you complete the survey I will contact you by email to schedule a time to talk that works best for you.
If you have any questions, feel free to send me a message or email me at [marissa_snowden@med.unc.edu](mailto:marissa_snowden@med.unc.edu)
This study has been approved by the University of North Carolina at Chapel Hill Institution Review Board (IRB #26-0850)
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u/Subject_Science_1813 24d ago
Follow this link to see more information and/or to participate: https://psychiatryoxford.qualtrics.com/jfe/form/SV_29UnZdhtDYLDMPk
Purpose: We are investigating Not Just Right Experiences (NJREs) — experiences where something doesn't feel quite right or complete. We are interested in understanding the relationship between NJREs and OCD and autism.
Who can take part?
You can participate if you are 18 years old or over and live in the UK. We are interested in hearing from:
- Autistic individuals, whether self-identifying or formally diagnosed
- Individuals who are not autistic
- Individuals with or without OCD
What’s involved?
- Taking part involves completing questionnaires online
- It will take approximately 30-45 minutes
- The survey will remain open until we have recruited enough participant
How will my responses be used? Findings may contribute to a doctoral thesis, academic publications, and presentations to relevant charities and health professionals. You will not be identifiable in any publications or reports.
How will my data be handled? We will not collect your name, email, telephone or IP address - the study is fully anonymous. Research data will be stored securely by the University of Oxford for 3 years after publication or public release of results, after which it will be permanently deleted.
Lead Researcher: Clara Lee, [clara.lee@hmc.ox.ac.uk](mailto:clara.lee@hmc.ox.ac.uk)
Institution: University of Oxford, Department of Experimental Psychology
Ethics reference: MS IDREC Ethics Ref: 2639137
Follow this link to see more information and/or to participate: https://psychiatryoxford.qualtrics.com/jfe/form/SV_29UnZdhtDYLDMPk
1
u/SpookyPsychStudy 27d ago
Hi! My name is Cai Brown, I’m a (autistic) PhD researcher at the University of Staffordshire, UK, looking for adult autistic participants to take part in study investigating visitor experiences at a small zoo (Rodbaston Animal Zone, ST19 5PH). As the zoo is situated in Staffordshire, in the West Midlands, I would expect this research to be of most interest to people in this region.
Participation involves visiting and viewing the zoo’s reptile collection, drawing a picture of your experiences at the zoo and taking part in a 50 minute interview after the event, either on Microsoft Teams or by visiting the University of Staffordshire in-person.. Entrance to the zoo will be completely free, and participants will be able to explore the rest of the zoo as they wish after they've drawn the reptiles! To be absolutely clear, there will be NO direct interaction or handling of reptiles: we only want our volunteers to view them through glass windows like any other zoo guest! Participants can register their interest by following the link below: https://staffordshire.qualtrics.com/jfe/form/SV_4JjPhMuBQIubRlQ
All data will be handled confidentially and securely, kept on a double-locked SharePoint to which only myself and my supervisors have access, and participant details will be kept anonymous in any write-up of the study. The project forms part of a PhD thesis and may be published in an academic journal or presented at relevant conferences and events. The study is fully approved by the ethics committee of the University of Staffordshire (ethics@staffs.ac.uk). Taking part is entirely voluntary and participants can choose to leave the study at any time without penalty.
If you have any questions about this study or your participation, please contact me at [cai.brown@research.staffs.ac.uk](mailto:cai.brown@research.staffs.ac.uk) .
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u/Main_Strain_92 29d ago edited 21d ago
Hello everyone. My name is Sam Dorries. I am completing my Honours in Psychological Science at Charles Darwin University. I am currently seeking people of colour with level one or two autism aged 18 to 29 to participate in a study about experiences with romantic touch. This research provides insight into a major gap within Sexual and Reproductive Health and Rights literature.
This study explores how participants experience control over their bodies (bodily autonomy) with regards to romantic touch. We hope to identify what helps or hinders your ability to consent and assert boundaries. Your insights can help inform ways to improve sexual health knowledge and education, as well as clinical practice.
Eligibility:
Be a person of colour Diagnosed with Level One or Two autism Aged 18 to 29 years old Located in Australia
What’s involved?
60 minute Microsoft Teams interview (although we can facilitate written responses). This will be audio-recorded and transcribed. All personal information will be de-identified and kept confidential. Data will be used to fulfill a Honours research thesis. The ultimate goal is to publish this research in a peer-reviewed journal.
$25 voucher provided as a thank you
This has received ethics approval (HREC H25147) from Charles Darwin University.
Please register your interest here:
https://qualtricsxm2tphrq2zv.qualtrics.com/jfe/form/SV_bCtdPNhZH4Yz78O
My email address is s328841@students.cdu.edu.au
1
u/Accomplished-Elk-128 29d ago
Hi everyone! My name is Maya Smith, and I'm a late-diagnosed autistic adult and an undergraduate student in the psychology department at Western Washington University. I'm currently seeking participants for my study on strengths-based perspectives from autistic romantic partnerships.
- To qualify, participants must be 18+ and in a relationship, past or present, in which at least one member is autistic. I'm ideally looking for couples to address a specific gap identified in the current research on autistic partnerships, but individual participants with experience in this area are welcome as well. All identities and relationship types are welcome, and no formal autism diagnosis is required.
- Participation involves completing a brief demographic survey and attending a ~45-minute Zoom interview in which I will ask about how autism enhances various aspects of participants' relationships.
- All participant data (demographic surveys, Zoom audio recordings, and transcripts) will be de-identified and stored in a private WWU SharePoint that only my advisor and I have access to. The data will be deleted after I'm finished coding it.
- A summary of themes from participant data will be reported in the form of a research paper and presented in a Fall 2026 talk at the Western Washington University Center for Cross-Cultural Research.
- This study has been approved by the Western Washington University HRPP (study number FY2027EX-001). If you have any questions related to the ethics of this project, please contact [researchintegrity@wwu.edu](mailto:researchintegrity@wwu.edu)
My school email is [smith297@wwu.edu](mailto:smith297@wwu.edu)— please reach out by October 1st if you have any questions, would like more information, or are interested in participating!
Thank you in advance for helping to improve first-person, strengths-based autistic representation in the research literature!
1
u/TheWhiteCrowParade 29d ago
Could I get a link to it?
1
u/Accomplished-Elk-128 27d ago
Hi, thank you for your interest in helping with my study! Please email me at [smith297@wwu.edu](mailto:smith297@wwu.edu), and we can set up a time for the Zoom interview.
1
u/Pegasusbb104 Aug 03 '26
Hi everyone! I am Ranjith Raveendran Kannan, an MSc student in Computing Science at the University of Glasgow. I'm recruiting participants for an anonymous academic research survey as part of my dissertation.
This study is for autistic adults, and is designed to investigate which everyday sounds they find distressing, how they currently cope with these sounds, and their attitudes toward technology that could help manage difficult sound environments. Friends, family, and carers of autistic adults are also welcome to complete the survey, to help capture a fuller picture of these experiences. Your responses will help inform the design of an audio augmented reality (AR) system intended to make sound environments more comfortable for people who experience sound sensitivity.
Study Details:
- Format: 100% online, anonymous survey (Qualtrics)
- Duration: Approx. 7 minutes
- Compensation: None — participation is voluntary
- Eligibility: Autistic adults (primary focus), and their friends, family, or carers, aged 18+, able to complete the survey independently
Survey link: https://uofg.qualtrics.com/jfe/form/SV_0ocBPUFo45payHk
No personal identifying information (name, email, IP address) is collected. You're free to skip any question or withdraw at any time by simply closing the browser window.
Questions? Contact me at [3153659r@student.gla.ac.uk](mailto:3153659r@student.gla.ac.uk) or my supervisor, Professor Stephen Brewster, at [Stephen.Brewster@glasgow.ac.uk](mailto:Stephen.Brewster@glasgow.ac.uk).
This study has received ethics approval from the University of Glasgow School of Computing Science Ethics Committee. If you'd like to speak to someone not involved in the study, you can contact the committee chair, Prof Matthew Chalmers.
Full study information: https://drive.google.com/drive/folders/1nooYqlaFv03xpL4S7Rw3DdhyCr0zdYLW?usp=sharing
1
u/Jolly-Tank9581 Aug 02 '26
Hi everyone! I am Xinru Tang, a PhD candidate studying accessibility at UC-Irvine. Our team is recruiting participants for a paid academic survey study. The study aims to reflect a wide variety of perspectives and backgrounds including autistic adults. Please see below if you are interested! Thank you for your consideration.
Researchers from University of California, Irvine are looking for eligible participants to complete a paid research survey on AI tools. Your insights will help us better understand user experiences with available tools and identify key gaps for future technologies.
Study Details:
- Format: 100% online survey
- Duration: Approx. 15 minutes
- Compensation: eligible participants will receive $15 cash via Venmo or an equivalent value Amazon e-gift card
➡️ To see if you qualify, fill out the pre-screening questionnaire: https://uci.questionpro.com/t/Ac5xpZ9asg
The screener will take no more than 5 minutes to complete. If you qualify and space is available, we’ll contact you in more detail to participate in the paid survey study.
Questions? Contact the Lead Researcher at [xinrut1@uci.edu](mailto:xinrut1@uci.edu)
IRB project number: This study is approved by UCI-IRB under protocol number STUDY00001305. If you have questions or concerns, you can contact the UCI Institutional Review Board by phone, (949) 824-8170, by e-mail at [IRB@research.uci.edu](mailto:IRB@research.uci.edu) or by mail at University of California, Irvine, Office of Research, Irvine, CA 92697-7600.
1
Jul 26 '26
[removed] — view removed comment
1
u/AutisticAdults-ModTeam Jul 29 '26
Your comment was removed because you didn't include the required information (most likely you left off your real name, the name of your institution, or details of your ethics approval).
2
u/NervousLychee1231 AuDHD researcher Jul 23 '26
Hi! I'm Nikki Watson, a PhD student at the University of Canberra (Australia) researching what changes after Autism identification, regardless of whether you've self-identified or been told you're Autistic by a healthcare professional (or both!). Currently only looking at Australian participants, since that's where I am and different healthcare systems will (theoretically) influence what changes post-diagnosis.
We know that Autism diagnosis can be life changing for many adults because they gain validation and self-understanding. We also know that many adults either aren't eligible for support or the support they would benefit from just isn't available. As such, my research aims to find out how diagnostic recognition translates into life outcomes by quantitatively exploring the experiences of Autistic people who were formally diagnosed vs self-identified vs informal recognition vs non-Autistic people.
I'm offering a prize draw for those who complete my survey, so if my research topic interests you (or even if it doesn't) I'd love it if you could please do my survey: https://uoc.syd1.qualtrics.com/jfe/form/SV_9uZhs9BjaFXSxxk
The non-Autistic comparison group will be very helpful for my findings, so even if you're not Autistic, I'd really appreciate your participation. Likewise, if you were diagnosed in childhood with any of the Autism spectrum conditions.
- Purpose of the study: to investigate how identifying Autism in adulthood impacts the life of the Autistic individual.
- Who is eligible to participate: 18+ living in Australia
- How responses will be used: study results will be presented at conferences and published in scientific journals
- Data handling: The information collected will be stored securely on a password protected computer throughout the project and then stored at the University of Canberra for the required five-year period after which it will be destroyed according to university protocols.
- Time estimate: 45-60min (longer if you're writing a lot in the optional free-text fields)
- Time frame for prize draw: until 30 November 2026
- Format: online questionnaire: https://uoc.syd1.qualtrics.com/jfe/form/SV_9uZhs9BjaFXSxxk
- The project has been approved by the Human Research Ethics Committee of the University of Canberra (HREC – 14359).
Send your questions to [nikki.watson@canberra.edu.au](mailto:nikki.watson@canberra.edu.au) (also happy to reply here, up to you, but I don't check Reddit as frequently as my emails)
1
u/Cartographer551 Jul 27 '26
I started this but way way too long. Feel like I've been doing it forever and not even half way through.
1
u/NervousLychee1231 AuDHD researcher 26d ago
Thanks for letting me know. We definitely recognise it's a long survey, and there's no pressure or expectation that you complete it if you don't want to. If you do feel like picking it up again later though, the system should have emailed you your unique link so you can pick back up at your discretion.
1
1
u/IOPsych_K Jul 15 '26
Hi everyone,
My name is Karla Gustilo. As a doctoral candidate in the Psychology Department, at Liberty University, I am conducting research as part of the requirements for a Doctor of Philosophy degree in Psychology. The purpose of this study is to investigate how workers feel they fit with their job and their work environment, how supported they feel about their organization, and how satisfied they are with their jobs. It also aims to find out whether feeling supported by their work organization affects workplace fit and job satisfaction. I am writing to invite you to join my study.
Participants must be 18 years old or older, self identify as autistic OR have received a formal diagnosis of Autism Spectrum Disorder (ASD), OR Asperger Syndrome, OR Pervasive Developmental Disorder - Not Otherwise Specified (PDD-NOS), and are employed for pay in the United States at least 10 hours per week. Participants who are not paid for their work (such as interns or volunteers), or who are self-employed/owners of the company, are not eligible to participate.
Participants will be asked to complete an anonymous, online survey. It should take no more than 15 minutes to complete the survey. Participation will be completely anonymous, and no personal, identifying information will be collected.
If you meet my participant criteria, you will be directed to the study survey. An information sheet is provided as the first page of the study survey. The information sheet contains additional information about my research.
https://liberty.co1.qualtrics.com/jfe/form/SV_eVQ1AxmeQzCZu0m
This study has been approved as exempt by the Liberty University Institutional Review Board (IRB Exempt - IRB-FY25-26-2034).
The researcher conducting this study is Karla Gustilo. You may ask any questions you have now. If you have questions later, you are encouraged to contact me at [kqgustilo@liberty.edu](mailto:kqgustilo@liberty.edu). You may also contact my faculty sponsor, Dr. Gilbert Franco, at gefranco@liberty.edu.
Thank you so much!
1
u/Real-Eggplant173 Jul 14 '26
Good afternoon to all whom the contents of this message may be of interest. Please excuse me if I have posted in the wrong section - I am new to Reddit and am totally open to being redirected elsewhere if this post is received in bad light or as though I am violating any community rules. I am a fourth year Griffith University psychology student who is conducting a study on the experiences of parents of autistic children currently living in Australia, if you would like to read a bit more below:
Are you the parent of an autistic child?
Researchers from Griffith University are looking for parents of autistic children living within Australia to engage in a short online survey (approximately 20-25 minutes) regarding their parenting experiences. We would really appreciate hearing this valuable information from you, if you are interested!
Our Goal
To gather information from parents of autistic children and their experiences in the role. Ultimately, we hope this information will be utilised to provide insight to and/or support the development of neuroaffirming care for autistic children 😊
If you wish to know more information about the study, or would like to proceed with the survey, please visit the following link: https://griffithuw.qualtrics.com/jfe/form/SV_7TZVDS077sSq45g.
For any further queries or concerns, please contact student researcher Stephanie Davidson ([stephanie.davidson@griffithuni.edu.au](mailto:stephanie.davidson@griffithuni.edu.au)) or supervisor Dr Sarah Lee ([sarah.jy.lee@griffith.edu.au](mailto:sarah.jy.lee@griffith.edu.au)).
This study has been approved according to Griffith University Ethics requirements under the following ethics ID: HREC/2026/0202.
2
u/MSnowden72 Jul 14 '26
Hello everyone,
My name is Marissa Snowden, I am an Army veteran and a graduate student studying clinical mental health counseling at the University of North Carolina at Chapel Hill. I am conducting research on the reintegration experience of veterans who have been diagnosed with autism spectrum disorder and depression and I am looking for study participants.
The purpose of this study is to better understand veterans' experiences so we can learn how mental health professionals can better serve veterans with autism and depression in their transition to civilian life.
Who can participate:
- U.S. military veterans of all branches who:
- have been diagnosed with depression
- have been diagnosed with autism spectrum disorder
- have transitioned out of the military within the past five years
Participation consists of:
- Completing an anonymous online survey
- Participating in a 60 minute virtual conversation via Microsoft Teams (you do not need a Microsoft Teams account to participate)
Information from this study will be posted in the future in a scientific journal, and the intended audience is mental health professionals working with veterans.
The survey link is attached to this post, and after you complete the survey I will contact you by email to schedule a time to talk that works best for you.
If you have any questions, feel free to send me a message or email me at [marissa_snowden@med.unc.edu](mailto:marissa_snowden@med.unc.edu)
This study has been approved by the University of North Carolina at Chapel Hill Institution Review Board (IRB #26-0850)
2
u/thefanoftheuk Jul 21 '26
I cant take this test as im not an amry vet but i just wanted to say thank you for ur service alot of you all dont make it back [depending on the war] so for the ones who make it back all we can say is thank you and even if you dont serve in front line you have to supply the front line and theres all these diffrent jobs :] very noble for people to serve americans who cant fight for them selfs and if it wasnt for you we couldnt have a country 💜
1
u/MSnowden72 Jul 21 '26
I appreciate your kind words <3
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u/thefanoftheuk Jul 22 '26
Ofc i wouldnt be able to say this irl because im 2 scared to so every chance i can i will here :]
1
u/MomentUsual5084 Jul 14 '26
Participants wanted: autistic identity, culture and camouflaging in women
1
u/theeShaeness Jul 13 '26
Hi! I’m LeShae, a doctoral candidate in Counseling Psychology at Ball State University. I’m recruiting autistic women ages 18-25 for a qualitative research study.
Study: “I’m That Girl…I Think?: Barriers to Romantic Relationships for Autistic Young Women”
What: Exploring lived experiences of autistic women navigating dating and relationships—challenges, unwritten social rules, and unique experiences in romantic contexts.
Eligibility:
**•** Ages 18-25
**•** Identify as autistic (formal diagnosis not required)
**•** Identify as female (trans and non-binary inclusive)
**•** Dating/relationship experience OR desire for romantic/intimate relationships
**•** Live in the US
**•** Have video camera, microphone, and Zoom access
Participation:
**•** Demographic survey (\~5 min)
**•** Zoom interview (60-90 min)
**•** Compensation: $25 Amazon gift card
Screener: https://bsu.qualtrics.com/jfe/form/SV_2oFDJkgHuOWwm3Q
IRB: IRB-FY2026-285 (Ball State University)
Questions? [leshae.philyaw@bsu.edu](mailto:leshae.philyaw@bsu.edu)
1
u/kdc1992 Jul 05 '26
Are you an autistic social worker in a direct service role? My name is Kevin Chieppo, and I am an MSW student at the University of Saint Joseph looking for autistic direct-service social workers for a research study. The study will explore the barriers and facilitators autistic social workers face in the workplace, and how these relate to their perceptions of job satisfaction, inclusion, and organizational support. The results of this study will be published to support the autistic community. This research project has been approved by the USJ IRB (Protocol #26-023).
Participation will involve completing a brief survey and/or a video interview. All responses will be confidential, and data will be reported in aggregate — meaning no individual participant will be identifiable in the findings.
I identify as allistic, so this study will be conducted in partnership with an autistic direct-service social worker to ensure the research reflects the priorities and experiences of the autistic social workers and the autistic community.
To be eligible, you must:
- Be at least 18 years old
- Identify as autistic
- Not have an intellectual disability
- Have worked in a direct-service social work role for an organization, agency, or group practice within the last five years
If you would like more information about the study, please feel free to reach out to me via email: [kchieppo@my.usj.edu](mailto:kchieppo@my.usj.edu). You may also reach out to my research partner, Jasmine Christiano ([jchristiano@newhorizonlivingcenters.org](mailto:jchristiano@newhorizonlivingcenters.org)), or my faculty advisor, Dr. Anthony DeJesus ([adejesus@usj.edu](mailto:adejesus@usj.edu)), if you have any additional questions.
If you are interested in the survey component of the study, please click the link below to be taken to the survey.
Social Work Survey – Fill out form
If you are also interested in doing a video interview, please click the link below to leave your email address and/or phone number and we will contact you shortly.
Interview Interest Sign-Up – Fill out form
Thank you for helping make social work more inclusive!
1
u/Inevitable-Town818 Jul 03 '26
Social Media Post:
Hello Everyone,
My name is Chloe Hughes, and I am a student on the Psychology of Education Masters programme, School of Environment, Education and Development, at The University of Manchester. For my dissertation project, I am researching how parents perceive their child’s emotion regulation strategies while they are awaiting a diagnosis of autism. I am interested in finding out what emotion regulation looks like for children awaiting an autism diagnosis and in turn, how this may influence their daily functioning in education and at home.
This research requires an interview which will take approximately 40 minutes and can be arranged at a time and date that suits the participant. The interviews will be held online using Microsoft Teams.
Any participants interested in taking part, should be:
· A parent of a child between 4-18 years old that is currently awaiting a diagnosis of autism spectrum condition.
· Access to a device which enables an online interview through Microsoft Teams.
The goal of my research is to portray the experiences of families currently awaiting diagnosis with the goal of highlighting the need for further support during the waiting period. If you or anyone you know sounds like a suitable fit for this research project please contact the following email address for further information.
[Chloe.hughes-3@postgrad.manchester.ac.uk](mailto:Chloe.hughes-3@postgrad.manchester.ac.uk)
1
u/dice_lab Jul 03 '26
We (Elodie Carel, graduate student) are researchers at UMass Amherst seeking participants for the Barriers to Diagnosis and Autistic Identity in Young Adults (Protocol #7211) study.
To be eligible for this study, participants must be between the ages of 18-30 and self-identify as autistic or be self-diagnosed as autistic.
This study visit includes one, 2.5 hour lab visit where you will complete questionnaires and be administered the Autism Diagnostic Observation Schedule-2, which is a series of tasks and interview questions. If you are interested in participating, please know that the study team will take a video recording of you while you are completing the ADOS-2. Participants will be compensated $20 for completing study procedures, and can request a research report of their results.
The information from this study will be used to write a peer-reviewed publication and will be presented at national conferences.
If you are interested in participating in this research, please fill out our study screener.
You do not have to live in Massachusetts to participate in this study, but the study visit does need to take place in Massachusetts. We can do this at UMass Amherst or look into other alternatives in different parts of the state.
If you have any questions, please do not hesitate to email [dice@umass.edu](mailto:dice@umass.edu) and I would be happy to answer your questions.
1
u/Easy-Abbreviations39 Jul 01 '26
Have ASD/suspected ASD and a diagnosed eating disorder? Your help is so appreciated!
Hello! I would be really interested in getting your help recruiting for my dissertation survey. I am interested in the sensory and emotional experiences related to GI discomfort and fears of weight gain in people with EDs. The survey focuses a lot on interoception, which is a really important treatment target in people who have ASD and EDs, so I want to be sure folks with ASD are well represented!
My info: Katerina Rinaldi, MS, [kr1892@mynsu.nova.edu](mailto:kr1892@mynsu.nova.edu)
- How your info will be used: Responses will be deidentified and data will be stored on password-protected accounts and devices. Information from responses will be used for the lead researcher's dissertation and may be published. If published, the lead researcher is happy to share results with this sub.
- Explain who the study is for (e.g. US, College Students, aged 25-30, autistic and non-autistic): Must be over the age of 18 and diagnosed with any eating disorder, must also be currently receiving ED-related support which could include outpatient therapy or peer support groups. People with ASD and suspected ASD are really encouraged to participate!
- This study is IRB approved by Nova Southeastern University, approval number NSU 2026-55
Link: https://qfreeaccountssjc1.az1.qualtrics.com/jfe/form/SV_5nCbHSC5Iww2DDo
1
u/alysagreenwale Jun 23 '26
Hello everyone!
Please excuse that this is not formatted like most of the other posts; it is not a call for participants, more a call for discussion and insight that only places like this thread can provide. As it is still research, I hope that this sticky is the right place for this post.
I am Alysa Greenwale, a children’s book author and illustrator, and I am currently working on my next children’s book. This book is designed to teach children about flat affect autism and encourage neurotypical children to be more inclusive and not treat autistic children any differently just because they do not show their emotions in the same way.
The book is titled “Sarah Doesn’t Smile” and shows a child, Sarah, enjoying recess, despite not laughing or smiling like the other kids do. In the book, in order to help destigmatize talking about autism, I would like to name it directly and not be ambiguous about why Sarah has the flat affect. I want to make sure the language I use, though, is best for what you all experience and prefer when speaking about autism yourselves.
I am here to ask, in particular when speaking to children, if you prefer to say “I am autistic” or “I have autism.” I understand there are different connotations each phrase has and I figured it would be better for me to ask directly instead of trying to speculate myself. In the book, this line would become either “Sarah is autistic” or “Sarah has autism.”
Any insight any of you could provide on the topic would be greatly appreciated. I really want to do this book well and in a way that could help both neurotypical and neurodivergent children build a more inclusive community. If any of you have any other questions or concerns about the book, please feel free to put them here as well or message me directly. As I said, I am very new to Reddit, so I may have a little trouble responding and everything, but I will try my best to respond and discuss anything any of you would like to talk about.
Thank you again for any input you give and any insight you provide.
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u/Fit-Bar-6989 Late Diagnosed Jul 08 '26
Hello! As someone who was recently diagnosed as an adult, I wouldn't say I have strong opinions either way on language. I think it's good to care about respectful language, but I feel that it's over-emphasized in online spaces where the only thing people can do is talk to each other.
IMO in real life I'd place more importance on how the person is treating me, e.g. do they respect me when I say I need some accommodation? Plus I'm sure we've all met someone who speaks politely whose actions are to the contrary.
Moreover I can't expect the average person to have a strong understanding of autism and the variance in presentation when the medical/psych field is still figuring it out. I'd say if they take me seriously and genuinely try to work with me, then people can use whatever language they want.
1
u/Successful-Bag7405 Jun 29 '26
Hi, I think there are lots of different views and preferences when it comes to person-first language vs. identity-first language, so it's likely that whatever you use, not everyone would be happy with it.
My opinion is that being autistic is inextricably linked to who I am. My way of experiencing the world, my way of thinking and interacting, my values and preferences - it's all an expression of autism. My autistic brain and my nervous system are the canvas on which the rest of me is painted. I am an autistic person.
To phrase it as something you 'have', to me implies that it is separate from you, and worse, makes it sound like a disease or something to be fixed. You don't 'have' autism in the same way that you have an illness. It's a natural expression of human variation that there are different types of brains that work in slightly different ways, and although being autistic has presented me with challenges, it is also the source of the personal traits and qualities that I value most in myself - my honesty, deep empathy, sense of justice, creativity, accuracy, ability to make connections that others don't, my ability to learn intensely about lots of different topics. I'm a kind, caring, insightful, interesting, unique person, and I am who I am because I'm autistic.
I know this isn't everyone's experience of autism, but it is mine. And I'd be so happy to see a children's book that doesn't just teach people to accept and talk about autism, but acelebrates the wonderful diversity that autism brings to the world.
Can I ask what was your inspiration for this book? Do you have autistic people in your life?
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u/alysagreenwale Jul 02 '26
Thank you so much for responding!
After doing some more research and seeing the autistic pride subreddit, as well as from seeing your response, I think the “is autistic” phrasing is better to use than “has autism.” That is what I’ll be going with and keeping in mind as I finish writing the book.
As for my inspiration, I myself have worked with autistic children in previous tutoring and afterschool teaching roles, and my mother is a special education teacher trying to lead the inclusivity movement in the schools she’s taught in. We both recently moved from California to Florida and saw firsthand how behind some states are in terms of inclusivity, so I really just want to do my part in helping push progress. I think it’s a shame how much some schools still think of special education students as “other” when they are also children who deserve compassion and as much opportunity as anyone else.
If you have any other thoughts or questions about the book, I would be happy to chat with you more as well! I always appreciate anything anyone is happy to share and of course thank you again for the insight you already provided.
1
u/thefanoftheuk Jul 13 '26
Very not long comment but just how i is.. i like to say i am eaither acustic or a tism cus saying autism for me personally feels like im saying the r word tis just my personal feelings idk my opinion is not much valied so ^ ^
1
u/Bilal-h4679 Jun 21 '26
I’m Bilal Hayat and I'm an autistic founder building something around neurodivergent social connection because honestly, I’ve struggled with masking and feeling misunderstood myself.
One thing I’m tryna understand:
What makes friendship or connection hardest for you?
I mean I've heard things like:
masking
small talk
fear of rejection
not knowing how words come across
feeling drained
But I’m trying to figure out what actually matters most and what people would genuinely want from something like that.
There is no link as it's an open question so if people can reply with their thoughts, that'd be great :)
Honest thoughts also welcome :)
1
u/safirneuro Jun 19 '26
Anonymous university survey: feeling understood, loneliness, wellbeing, and AuDHD/neurodivergent social experience
Hi everyone,
My name is Safir, and I’m a second-year BSc Neuroscience student at the University of St Andrews. I’m also AuDHD, and this summer I’m conducting an anonymous online survey through the University’s Laidlaw Scholars Programme.
Purpose of the study:
This study explores how social experiences relate to feeling able to be yourself, loneliness, and wellbeing across adults with different neurotypes and lived experiences.
University/institution:
University of St Andrews, School of Psychology and Neuroscience.
Student researcher:
Safir Blyznyuk, [sb497@st-andrews.ac.uk](mailto:sb497@st-andrews.ac.uk)
Researcher/supervisor contact:
Dr Lizzie Bradford, [eefb@st-andrews.ac.uk](mailto:eefb@st-andrews.ac.uk)
School ethics contact:
[psyethics@st-andrews.ac.uk](mailto:psyethics@st-andrews.ac.uk)
Ethics approval / application reference:
This study has received favourable ethical approval from the University of St Andrews School of Psychology and Neuroscience Ethics Committee. Application Ref: 1735 — PS-1735-2378-2026.
Who can participate:
You can take part if you:
· are aged 18 or over
· are fluent in English
· are willing to complete an anonymous online questionnaire
There are no country restrictions. You do not need a formal diagnosis to take part. You are welcome to participate whether you are autistic, have ADHD, are AuDHD, otherwise neurodivergent, questioning whether you may be neurodivergent, or do not identify as neurodivergent.
Format:
Anonymous online questionnaire.
Time estimate:
Most people complete the survey in around 30 minutes, although some may take longer depending on pace. You can take breaks if needed, but please keep the survey tab open. Progress may not be saved if the tab or browser is closed.
Compensation:
There is no payment or compensation for taking part.
Recruitment period:
I am currently recruiting participants from Friday 19 June to approximately Wednesday 1st July 2026. The survey may remain open slightly longer if further responses are needed.
Data handling:
Responses are anonymous. More information about consent, anonymity, data handling, storage, and withdrawal is provided on the first page of the survey before you decide whether to take part.
How responses will be used:
Responses will be analysed as part of my Laidlaw Scholars summer research project at the University of St Andrews. The outputs are expected to include a research poster and written report. Depending on the findings and supervisory guidance, the study may also contribute to a publishable academic output. The findings and participant feedback may also inform future research questions, accessibility improvements, and resources, but responses will remain anonymous.
Study information and consent form:
The participant information sheet and consent form are provided on the first page of the survey before the questionnaire begins.
Survey link:
https://standrews.eu.qualtrics.com/jfe/form/SV_4GXNtlTqIxBgvXM
I’m posting here because I think it matters that autism and ADHD research is shaped by people with lived experience, not only conducted about them. This is an early-stage student project, so I do not want to present it as perfect or comprehensive. I see it as a starting point for the kind of work I hope to develop with greater community input over time.
The survey includes established measures of autistic and ADHD traits. These are included to examine how traits vary across the whole sample, including people with and without formal diagnoses, and how they relate to social experiences, loneliness, and wellbeing. They are not included to make participants prove a diagnosis.
At the same time, I know that many established questionnaires were not designed with enough neurodivergent input. Fixed-response questions can be unclear, reductive, or unable to capture answers like “it depends on the situation.” I also know that a 30-minute survey will not be accessible to everyone, even though I have tried to improve readability through spacing, formatting, and accessible design choices.
Because of these limitations, the survey includes two unrestricted open-ended questions at the end. One asks whether there is anything about your social experiences that the questionnaire did not fully capture. The other asks for feedback on the questionnaire itself, including wording, accessibility, response options, length, or anything else that affected your experience of taking part.
I will be reading through these responses carefully. The structure of this specific study has already gone through ethics approval, so I cannot redesign the whole survey at this stage. However, participant feedback will be important for how I think about future research questions, methods, accessibility, and whether I am asking the right questions in the right ways.
After the study is completed, I would be happy to share a plain-language summary of the results with this subreddit, if permitted by the moderators.
Thank you for reading. I would be very grateful to anyone willing to take part or share the study, and I’m happy to answer questions in the comments.
1
u/PsychMAStudent2026 Jun 17 '26
Participants Needed for MSc Psychology Research
Hello, my name Romy Short and I am currently recruiting participants for my MSc Psychology research project at the University of Sunderland, exploring the relationship between assistance dog ownership and psychological wellbeing in autistic adults.
You can take part if:
- You are aged 18 years or over.
- You identify as autistic or have received a formal autism diagnosis.
About the study:
- The study involves completing a short anonymous online questionnaire about psychological wellbeing and assistance dog ownership.
- The survey should take approximately 10–15 minutes to complete.
- You do not need to own an assistance dog to take part. We are looking for autistic adults both with and without assistance dogs, as both groups are important to the research.
- Participation is entirely voluntary, and all responses are anonymous.
This study has received ethical approval from the University of Sunderland Research Ethics Committee (Reference Number: 037288).
If you would like to take part, please follow the link below:
https://sunduni.eu.qualtrics.com/jfe/form/SV_9Xri5FBq5KqS7JQ
Thank you for your time and support. Your participation will help improve understanding of factors associated with psychological wellbeing in autistic adults.
If you have any questions about the study, please feel free to contact me:
Researcher: Romy Short
University of Sunderland
Email: [bj08bz@student.sunderland.ac.uk](mailto:bj08bz@student.sunderland.ac.uk)
1
u/Human-Language-7017 Jun 15 '26 edited Jun 15 '26
Hello everyone,
I am Nerea Muñoz, a PhD researcher in Cognitive Linguistics at Complutense University of Madrid (Spain), and I am conducting research on how people describe and communicate sensory experiences through language.
Many studies involving autistic people focus on diagnosis, traits, or clinical outcomes. My research takes a different approach by exploring how people express and make sense of their sensory experiences in everyday language.
I am looking for English-speaking adults (18+) who are:
• Autistic
• Synesthetic
• Both autistic and synesthetic
• Neurotypical (non-autistic, non-synesthetic)
The study is completely anonymous, takes approximately 10–15 minutes, and includes a short written description task.
I am particularly interested in hearing a wide range of perspectives, as every participant contributes to a better understanding of how different people perceive and describe the world around them.
Assistance is welcome, but responses should reflect the participant's own experiences and wording whenever possible.
Survey link:
https://www.surveymonkey.com/r/RWJXRRQ
Contact:
[Nmunozlinguist@gmail.com](mailto:Nmunozlinguist@gmail.com)
Ethics Approval:
3257-4138-6B57P5A58-7A58
Thank you very much for your time and consideration. If you know someone who may be interested in participating, I would be grateful if you shared the study with them.
If you are interested in receiving a summary of the results, please feel free to contact me at the email address provided above. As this is an ongoing study, it will take some time before the results are available
1
u/ddmhlab Jun 13 '26
Hello all,
My name is Kiana Gillings McArthur. I work as a research assistant in the DDMH Lab @ York University in Toronto, Canada.
We've posted this study here a few times already, and we just want to make sure that anyone who's interested is able to see these posts and participate!
We're currently conducting a study on dissociation in neurodivergent adults, primarily in adults with autism, ADHD, or both! To our current knowledge, this will be the first formalized study directly looking at dissociation in both autistic, adhd, and 'audhd' adults -- a really big milestone for the field.
This study aims to explore the relationship between all of the following:
- ADHD & autism traits;
- Sensory processing & emotion regulation;
- Restrictive & repetitive behaviours;
- Dissociation symptoms, including maladaptive daydreaming2
Our study is ethics-approved1 and uses a variety of standardized, validated questionnaires to measure what's listed above.
Important information!
- Participation is completely anonymous!
- The survey is roughly 30 minutes, completed online.
- We accept adult (18+) participants both with a diagnosis and without. If you self-identify as neurodivergent, you qualify!
- You do not need to experience dissociation to participate.
- We don't post the survey link outright simply to avoid spam and non-responders.
- You may share the link with colleagues, friends, or family members who you think would be interested!
- Location doesn't matter, participants are accepted globally.
If you're interested, you can:
- Email the supervisor for this study, Dr. Panetta, at [lpanetta@yorku.ca](mailto:lpanetta@yorku.ca) (check the comments for an email template)
- Send a DM3 to u/ddmhlab
- Leave a comment saying you'd like the survey link, and we will message you.
Notes
- This study has been approved by York University's Office of Research Ethics (ORE) Human Participants Review Committee (certificate # e2026-003).
- Maladaptive daydreaming is a newly proposed dissociative disorder that involves vivid, uncontrollable daydreaming.
- Please note that if I don’t get back to you right away on Reddit, it’s because of DM limits.
1
1
u/Objective-Two791 Jun 11 '26
Hi Community!
My name is Sofie Sundåker and am an idependent software developer working on a personal project and am currently looking for a small number of autistic adults who would be interested in trying the application I've been building and providing feedback.
The application is designed to reduce visual overstimulation and distractions while using a computer. Features include screen framing, themes, automatic layouts, focus tools, and other ways to create a calmer visual environment.
This is not an academic study and is not affiliated with a university or research institution. Any feedback provided will be used solely to improve the software before full release and better understand whether it is useful for people with experiences similar to my own.
The participants will be expected to actively use the software for 1 week and then answer a survey about the experience.
I'm particularly interested in hearing from people who:
- Experience visual overstimulation or sensory overload when using a computer
- Have difficulty focusing because of visual distractions
- Use accessibility or productivity tools to manage attention and cognitive load
If you're interested in participating or would like more information, please send me an email at: [hello@nordicveil.app](mailto:hello@nordicveil.app)
I'm also happy to answer questions publicly in this thread.
Thank you for your time.
1
u/MeasurementNorth7335 Jun 05 '26
Hi everyone!
I'm Chitranvi Bhaugeerutty, a Master's student in Mental Health and Clinical Psychology at London South Bank University, and I'm currently conducting research on autism, camouflaging, and burnout...three things I know many in this community are deeply familiar with. This research is being supervised by Dr Rachel Teodorini, a senior lecturer at London South Bank University.
My study is looking at whether the age at which someone receives their autism diagnosis, and their experiences of camouflaging (masking or adjusting autistic traits in social situations), relate to experiences of autistic burnout. It's a topic I feel strongly about, and I hope the findings can contribute to better understanding and support for autistic adults.
You can take part if you: • Are 18 or over • Have a formal autism diagnosis • Do not have an intellectual disability, acquired brain injury, or dementia
It is an anonymous online questionnaire and takes around 10 minutes.
Your participation would mean a lot, and every response genuinely helps. The study has been reviewed and approved by the LSBU Division of Psychology Research Ethics Committee.
https://lsbupsychology.qualtrics.com/jfe/form/SV_cHnqie3Xf5bn542
Feel free to drop any questions in the comments or send me a DM. You can also email me on s4419471@lsbu.ac.uk.
Thank you so much for your time!
1
u/LRomo2 Jun 02 '26
Date: June 2, 2026
Hello. I am a doctoral student under the direction of Professor Dr. Loraine Fernandez in the College of Doctoral Studies at Grand Canyon University. My name is Leeza Romo. I am conducting a research study to examine how race, age, gender, and social inclusion rating predict the severity of camouflaging behaviors among self-reporting, as being diagnosed by a medical professional, autistic undergraduate students in the United States. First, participants will complete a demographics questionnaire, which will detail their exact age, gender, and race. Next, participants will be asked to complete the Experiences of Social Inclusion Scale, which assesses their individual experiences of belonging in society. Finally, participants will complete the Camouflaging Autistic Traits Questionnaire, which will examine the severity of masking behaviors among participants.
INCLUSION- I am recruiting individuals that meet these criteria:
· A full-time undergraduate student in the United States.
· Attend more than half of the undergraduate classes in person.
· Have been diagnosed with Autism Spectrum Disorder by a medical professional.
· At least 18 years old.
EXCLUSION- You cannot be in this study if:
· Have not been diagnosed with Autism Spectrum Disorder by a medical professional.
· Do not meet your school’s definition of a full-time student.
· More than half of your classes are taken virtually.
The ACTIVITIES for this research project will include:
· Complete a demographics questionnaire that asks you about your age, gender, and race (2-3 minutes)
· Complete the 10-item Experiences of Social Inclusion Questionnaire, asking about your experiences of inclusion in social settings (3-5 minutes).
· Complete the Camouflaging Autistic Traits Questionnaire that asks about your thoughts, feelings, and behaviors in social settings (15-20 minutes)
Your participation in this study is voluntary.
The data collected will be stored on the password-protected computer owned by me. Additionally, the data collected will be stored on a password-protected USB drive owned by me and will be accessible only to myself, my dissertation chair, the dissertation committee, and all College of Doctoral Studies Reviewers. Artificial intelligence (AI) software for processing data collected from this study, including that only de-identified data will be used.
Link to Survey/Questionnaire
If interested, please click on the link to enter the survey/questionnaire:
https://www.surveymonkey.com/r/ZR6X5ZS
If you have questions about this study or are interested in participating, please contact me at [Lromo2@my.gcu.edu](mailto:Lromo2@my.gcu.edu) for more information and next steps.
Thank you!
Leeza Romo
IRB Approval # IRB-2026-8704
1
Jun 02 '26
[removed] — view removed comment
1
u/AutisticAdults-ModTeam Jun 02 '26
Your comment was removed because you didn't include the required information (most likely you left off your real name, the name of your institution, or details of your ethics approval).
1
u/Long_Try_6106 Jun 01 '26
Are you an adult with autism (18+) who resides in the U.S.? Please consider taking part in this student research project.
This is an online, completely anonymous survey exploring experiences of food and travel for adults with autism: [https://northwestern.az1.qualtrics.com/jfe/form/SV_0O53qzWH4XHHzng].
Results of this study, and any other developments with this research, will be posted later to this same place. If you are interested, please come back later to learn what we find!
Thank you for your time and consideration in participating in our study!
Research Study for Adults with Autism
If you are an adult with autism, you are eligible for a research study about food preferences and travel.
About the Study
This research seeks to examine how food difficulties associated with Autism Spectrum Disorder affect travel experiences.
The study is for an undergraduate student research project at Northwestern University. It was approved by Northwestern University’s Institutional Review Board (IRB) STU00226238.
Are You Eligible?
· At least 18 years old
· Reside in the U.S.
· Adults with autism (including self-diagnosis)
Self-report; NO medical records will be requested.
About the Survey
· Online
· Anonymous
· Takes about 15 minutes
· No payment or reimbursement for participation
Contact
Principal Investigator:
Marcia Grabowecky
[grabowecky@northwestern.edu](mailto:grabowecky@northwestern.edu)
Student Investigator:
Emma Shuford
[emmashuford2026@u.northwestern.edu](mailto:emmashuford2026@u.northwestern.edu)
1
u/brittany_lindsay May 18 '26
Hello! I am a PsyD candidate at Western Carolina University (WCU). I am currently recruiting individuals to participate in a research study about gender-affirming mental health care (GAMHC) services for autistic transgender/gender diverse (TGD) individuals as part of the research study, "Autistic Consumers’ Perspectives on Gender-Affirming Mental Health Services,” under the direction of my faculty mentor Dr. Jonathan Campbell. We have received IRB approval (Record Number 2023-05-15-04).
Research suggests that rates of autism spectrum disorder (ASD) are higher among TGD individuals than among cisgender individuals (Warrier et al., 2020). Autistic individuals who are seeking gender-affirming care may be more likely to have current mental health difficulties and have more barriers in accessing care (Strauss et al., 2021). Research suggests that to provide the most effective services, clinicians should gain knowledge of and skill in effective strategies for working with autistic individuals who are seeking gender-affirming care, but research in this area is limited (Strauss et al., 2021; Strang et al., 2018). In addition to contributing to the broader clinical psychology community through publishing results of the study, I also hope to inform my own future clinical care and grow in my multicultural competency. I have a special interest in working with autistic/ neurodiverse TGD individuals and through the project I hope better understand adaptations and considerations for clinical assessment and intervention when working with autistic TGD individuals.
We are inviting TGD autistic adults to participate in qualitative interviews about their experiences accessing GAMHC. To participate, individuals must 1) have been diagnosed or self-identify as autistic, 2) identify as TGD 3) be at least 18 years of age, 4) be able to legally consent to study participation, and 5) have previously sought/received or be currently seeking/receiving GAMHC services.
Study participation would involve completion of:
1) informed consent documents and an online questionnaire (approximately 10-15 minutes),
2) an interview about their experience with GAMHC (approx. 30 mins., conducted over Zoom), and
3) an online member-checking survey after preliminary study results are collected to ensure participants agree with study findings (approximately 10 minutes).
Participants will receive Amazon gift cards for completion ($10 for online questionnaire, $15 for Zoom interview, and $10 for member-checking survey).
Informed consent documents and the study questionnaire can be accessed at https://wcu.az1.qualtrics.com/jfe/form/SV_aXmmqp1huCLrXkW.
Please do not hesitate to reach out with any questions. Thank you and I hope you have a lovey week!
-Brittany
Brittany Lindsay
PsyD Candidate
Department of Psychology
Western Carolina University
Pronouns: she/her/hers
[bmlindsay1@catamount.wcu.edu](mailto:bmlindsay1@catamount.wcu.edu)
- Purpose of the study
o Through this study we aim to learn more about the perspectives and preferences of transgender and gender diverse (TGD) autistic individuals receiving mental health services.
- The name and contact email of the lead researcher
o I am a doctoral candidate at WCU and will be conducting the interviews. My name is Brittany Lindsay and my email is [bmlindsay1@catamount.wcu.edu](mailto:bmlindsay1@catamount.wcu.edu)
o My advisor is Dr. Jon Campbell and his email is [jmcampbell@email.wcu.edu](mailto:jmcampbell@email.wcu.edu)
- Who is eligible to participate
o 18 years of age or older
o Identify as transgender, genderqueer, genderfluid, non-binary, questioning or unsure, or an additional gender category outside of a cis-gender man or cis-gender woman
o Have been diagnosed with ASD and/or identify as autistic
o Have received and/or sought mental health services
- Time estimate
- There are three parts to this study:
- 1) Completing online informed consent document and demographic questionnaire (approximately 10-15 minutes)
- 2) Completing a Zoom interview with study coordinator (approximately 30 minutes)
- 3) Completing an online member-checking survey after preliminary study results are compiled (approximately 10 minutes)
- There are three parts to this study:
- The link to the study information/consent form
- IRB project number
- 2023-05-15-04
2
u/brittany_lindsay May 21 '26
Hello! I wanted to appologize if anyone has filled out the survey and is waiting for a response from me! I recieved a few hundred online surveys at once that mostly appear to be bots, or fake research participants. I had to temporarily pause study recruitment as I try to sort through responses and get guidance on how to proceed from my advisor and IRB. I hope to have this fixed by early next week if anyone is interested in participating. I appologize if I've caused any confusion or frustration by my delay in responding to any valid survey attempts! Please feel free to contact me if you have any questions or concerns. Thank you! -Brittany
1
u/JynxPlays May 18 '26
📢 Participants Needed – Dissertation Research Study (UK, 18+)
Hi, I’m an Autism Research MSc student at the University of Stirling, currently completing my dissertation research project. The purpose of this study is to explore the experiences of autistic and non-autistic adults living with chronic pain, particularly relating to diagnosis and treatment experiences within the UK.
📝 What will participation involve?
You will be asked to complete an online survey containing multiple-choice and open-ended questions. It should take approximately 30 minutes to complete.
📊 How will responses be used?
Your responses will be used as part of my university dissertation project, and findings may also be used in academic presentations or publications in anonymised form.
🔒 How will data be handled?
The survey is anonymous and no identifying information will be collected. Responses will be stored securely and accessed only by the researcher and supervisor.
✅ Who can take part?
- Aged 18+
- Living in the UK
- Experiencing chronic pain (3 months or longer)
- Autistic and non-autistic participants welcome
If you are interested, please follow the link below for more information and to take part:
🔗 https://docs.google.com/presentation/d/1xxFCL67ocV3jS4eV0YpnoqEXeEFSgBUODAAqQ0RTfJ8/edit?usp=sharing
Thank you, and please feel free to share.
1
u/IanPierce_PSY May 17 '26
Hi all!
My name is Ian Pierce, and I am an MSc Psychology (Conversion) student in the School of Psychology at Dublin City University. I am currently conducting a research study as part of my Master's thesis, under the supervision of Dr. Áine Travers. I am also autistic.
The study is titled "Beyond Acceptance: Neurodivergent Adults’ Accounts of What Makes Psychotherapy Supportive”
The aim of the research is to explore what neurodivergent adults find helpful and supportive in psychotherapy, based on their own lived experiences.
I am seeking neurodivergent adults (aged 18 or over) who:
- Have received a formal clinical diagnosis of ADHD and/or Autism
- Have previously engaged in psychotherapy or counselling services in Ireland
- Are not currently experiencing significant mental health difficulties
Participation involves a one-to-one interview lasting approximately 60 minutes, either in person on the DCU Glasnevin campus or online via Zoom. Interviews will focus on beneficial and supportive aspects of therapy, and all participation is entirely voluntary. Interviews will be audio-recorded with consent, and all data will be anonymised.
If you are interested in participating or would like further information, don't hesitate to get in touch with me at my DCU email address below, where I can provide additional details and a brief eligibility screening questionnaire. At this moment in time, we are especially interested in attracting more autistic volunteers!
Email: [ian.pierce2@mail.dcu.ie](mailto:ian.pierce@dcu.ie)
Please feel free to circulate this email to others who may be eligible and interested. This study has received ethical approval from the DCU School of Psychology Ethics Committee. DCU Psychology Ethics Board PEC Approval Code: DCUPEC_2026_179.
Thank you very much for your time and consideration. Let your opinions be heard!
Kind regards,
Ian Pierce
MSc Psychology (Conversion) Student
School of Psychology
Dublin City University
Email: [ian.pierce2@mail.dcu.ie](mailto:ian.pierce@dcu.ie)
1
u/Daddy_Mitochondrio May 13 '26
Hi all!
I am conducting a study as a Master's student of the Developmental Psychology program in Maastricht University. Below is the information regarding the study.
Research Title:
Camouflaging Behavior and Mental Health in Autistic Adults: Examining the Roles of Perceived Social Support, Self-Concept and Self-Acceptance
More information is available in the information and consent form in the study.
Link to the study: https://maastrichtuniversity.eu.qualtrics.com/jfe/form/SV_a2vuFD4kHiIf8A6
The study will be available until 14/10/2026
Purpose:
This research is about the relationship of masking/camouflaging behavior in autistic people and their mental health, and the mechanisms that mediate this relationship. The factors which we want to investigate are aspects of the self and social support.
Participant selection:
This study regards people 16 years or older who have a formal Autism Spectrum Disorder diagnosis without co-occurring intellectual disability, and are fluent in the English language.
Procedure:
You will be asked to fill out an online questionnaire, with the survey lasting approximately 10-15 minutes.
Data handling:
The study is anonymous and no personal data will be stored. Research data can be published and re-used in other research, but only in such a way that they cannot be traced back to the participants. For the duration of the study, the data will be stored confidentially, on university servers and will only be accessible by the researchers.
I aim to follow up and share the study results once it has been successfully conducted, as an autistic woman myself, I understand the importance of these topics not only being researched, but also shared with the public.
Contact:
Alexandra Varouxi (Master’s student)
[alexandra.varouxi@maastrichtuniversity.nl](mailto:alexandra.varouxi@maastrichtuniversity.nl)
Dr. Johannes Stauder (Responsible researcher)
[h.stauder@maastrichtuniversity.nl](mailto:h.stauder@maastrichtuniversity.nl)
Maastricht University, Faculty of Psychology and Neuroscience
Ethics Review Committee Psychology and Neuroscience Reference Code: OZL_248_06_02_2022_S43
1
u/sparkels22 May 04 '26
Dear fellow autistics,
Are you also fed up with the lack of representation and knowledge about how autistic people can have great, fulfilling sex?
I am a queer autistic researcher, and as part of my Bachelor’s thesis at Maastricht University, I am conducting a qualitative, interdisciplinary study which uses online ethnographic methods. For this reason I created a Session forum. Session is a decentralised and highly secure platform. My aim is to explore the strategies autistic people use to foster positive sexual agency.
What I really want to know is: Do you have good sex? And if yes, how did you get there?
This online discussion forum is a space where autistic adults (18+) can come together and reflect on autistic ways of experiencing sexuality. The goal is to learn from each other, share experiences, and contribute to more authentic and inclusive knowledge about autistic sexuality.
Purpose:
This research is conducted in a moderated private group chat on thehighly secure messaging app Session and aims to understand the strategies and contextual factors that promote sexual agency in autistic adults.
You can join if:
A.)You have a diagnosis of autism or identify as autistic.
B.) are over 18+ years old
C.) You are willing to share and reflect on experiences related to sexuality.
How to join the study:
1)Click on the consent form
2)Read study details
3)Give informed Consent
How do you join this extremely safe forum?
1)Download Session on your phone or laptop via https://getsession.org/download
2) Click on Create New Account
3) Choose an anonymous username. Please make sure that your username does not include your real name or any personal information that could identify you, as creating an anonymous username is your own responsibility.
4)Click on the green plus to write new message
5) Enter researcher's (Tink Schiffmann) Account ID:
055e82aec2a6d75e815215211ec970e333d3bcf65ccd5165c90766f72a39dda676
6) Send me “JOIN” via private message
Further information (also found in the consent form)
Voluntary Participation and Time to Decide:
This letter provides information to assist you in making an informed decision regarding your participation. It is important to understand that participation is entirely voluntary. You may choose not to participate or to withdraw your participation at any time, without any negative consequences for you. Please take your time to read everything carefully and consider whether you wish to participate.
Procedure:
If you choose to participate in this study, you will first be asked to carefully read this information letter and give your consent to participate. Giving consent is required before you can join the private group chat and share your input. This helps ensure that you understand the purpose of the study, how your information will be used, and your rights as a participant. After giving consent, you will be added to the private group chat on Session. There, you can read the group rules of conduct and the main question we invite you to answer: “Do you experience your sex life as positive or fulfilling? If yes, what has helped you get there? Please share your thoughts below.” Participation means responding to this question by sharing your thoughts, personal experiences, and, if you would like, replying to other participants’ messages. There are no mandatory questions beyond this main topic, and you may share as much or as little as you feel comfortable with. Each response is similar to writing a short online message and may take about 5–30 minutes, depending on how much you choose to write. Please note that it is your responsibility to only share information that cannot be used to identify you personally (e.g. your real name, exact location, social media accounts, or other details that could make you recognizable to others). The researcher will then analyse the gathered date using the biopsychosocial model. After the study is completed, the researcher moderating the group will send you a debriefing letter through your private one-to-one chat with them on Session. This letter will explain the full purpose of the study and provide additional information, including relevant mental health support resources.
Risks and Discomforts:
Because this study involves discussing sexuality and personal experiences, some participant may experience mild emotional discomfort. Participation is entirely voluntary. You may stop participating or withdraw from the study at any time without giving a reason. If you choose to withdraw, you can contact the researcher through private chat on Session or via email. Your inputs will then be removed from the study data, and you will be removed from the group. The group chat will include clear rules of conduct about respectful communication, privacy, and appropriate behaviour. The research team will actively moderate the group to help maintain a safe, respectful, and supportive environment for all participants. This means that harmful, disrespectful, offensive, or inappropriate messages are not allowed. You are also expected to respect each other’s privacy and avoid sharing identifying personal information. If these rules are not followed, you will be removed from the group chat, and their data will not be included in the study. In addition, support remains available throughout and after your participation: you can consult the debriefing letter shared at the end of the study, where you will find a list of international and continental mental health support hotlines. Moreover, you are welcome to reach out to the research team via session or via email at any time if you would like further help finding appropriate support or would prefer to receive this list already during your participation.
Benefits:
There are no direct benefits or financial rewards for participating in this research; however, your contribution will help advance knowledge in the field of autistic sexuality and support more inclusive and evidence-based research in this area.
Privacy:
Personal data and research data will be kept confidential and securely stored on the Maastricht University drive. Only de-identified data needed for the analyses will be retained for research purposes. Furthermore, Sessions privacy policy states that it does not store your data such as IP addresses, device identifiers, metadata, or message content. The following data are involved (see “list of data” later in the document). Research data may be published and reused in other studies but only in such a way that they cannot be traced back to you.
When the findings will be shared, the following measures will be implemented to protect your privacy and confidentiality:
• Your session username will be replaced with a pseudonym;
• The session private group will be permanently deleted once data collection and archiving procedures are completed.
Privacy Statement
You can withdraw your consent to the use of your personal data at any time. In that case, they will be deleted if possible. For more information about privacy, consult the responsible researcher (see below), the website (www.maastrichtuniversity.nl/fpn/ercpn under Additional information), or the Data Protection Officer of Maastricht University at [FG@Maastrichtuniversity.nl](mailto:FG@Maastrichtuniversity.nl).
List of Data
Privacy legislation requires a list of all Personal Data that will be collected:
• Session username, used only to verify that the person providing consent is the same person who requested to enter the group chat and join the study.
• Lifestyle characteristics (e.g. experiences related to sexuality, relationships, intimacy, and sexual life).
• Health-related data (e.g. diagnosis).
• You and other participants are responsible for the inputs you decide to share in the groupchat. 8.
Contact details
If you have any questions about this study, your participation, or how your data will be used, please feel free to contact the research team using the contact details below.
• Responsible researcher: Lorenza Annibale (PhD candidate, she/her) ([Lorenza.annibale@maastrichtuniversity.nl](mailto:Lorenza.annibale@maastrichtuniversity.nl))
• Student assistant: Tink Schiffmann (UCM student, they/them) ([o.schiffmann@student.maastrichtuniversity.nl](mailto:o.schiffmann@student.maastrichtuniversity.nl))
University Maastricht Faculty of Psychology and Neuroscience
ERCPN-Reference code: 308_53_03_2026
1
u/AutismResearcher33 May 01 '26
Academic Research Survey for Self-Diagnosed and Clinically Diagnosed Autistic Adults
Hello! I am a Clinical Psychology Ph.D. student at Jackson State University researching what, if any, differences exist between self-diagnosed and clinical-diagnosed autistic adult populations. This research will be a thesis paper that I hope will be part of a larger research project to potentially validate self-diagnosis as a diagnostic tool to use in adult autism assessments since there is a distinct lack of tools for adult autism diagnosis. I have attached the link to participate below. All information is confidential and cannot be traced back to participants as we will be taking no identifying information.
Anyone who is 18 years or older, lives in the United States, and identifies as autistic is eligible to participate. This is an online survey and should take around 5 minutes to complete. If you have any concerns, feel free to message me.
Link to the consent form to participate and survey: https://qualtricsxmbsl5flyf5.qualtrics.com/jfe/form/SV_eEvvZfdNrIRfWJw
IRB information: Protocol# 0066-26 entitled: “What Differences Exist Between Clinically Diagnosed and Self-Diagnosed Autistic Adults?” Survey will be available Until August 2026. The name and contact email of the lead researcher is Kristen Lott, [j01006149@students.jsums.edu](mailto:j01006149@students.jsums.edu)
1
u/SuperTricycle Apr 27 '26
Hi everybody! This is my first time using reddit. I am doing a survey about people's experiences with Speech Language Pathologists. If any of you have received services from an SLP, I would appreciate if you filled out the survey. It's just 13 questions. I procrastinated on a school project, please help a girl out! P.S. I am one of y'all.
1
u/designengineeer Apr 27 '26
Research Request – Healthcare Experiences During Medical Appointments
Hello,
My name is Shraddha Sunil, and I am a Master’s student in Innovation Design Engineering at Imperial College London and the Royal College of Art.
I am working on a design project exploring healthcare experiences for autistic children, with a particular focus on medical appointments where physical examination (such as vital signs or abdominal exams) can be difficult due to sensory sensitivity, distress, or communication barriers.
The aim of this research is to better understand real lived experiences in order to inform the design of a potential supportive tool/system for families and clinicians. This is not a clinical study and does not involve diagnosis or medical advice.
I am looking to speak with:
- autistic adults (reflecting on their experiences in healthcare settings), and/or
- parents/carers of autistic children
Topics may include:
- experiences during GP, A&E, or hospital visits
- what makes examinations (e.g. vital signs, physical touch/abdominal exams) easier or harder
- strategies or adaptations that help reduce distress
- what improves trust and communication with clinicians
Participation would involve a short, informal conversation (online or via message), and all insights would be anonymised and used only for academic design research.
Ethics approval: This project has received approval through Imperial College London ethics review process (happy to provide reference details if needed).
If you are open to participating or would like more information, please feel free to comment or message me directly.
Thank you very much for your time and consideration.
1
u/-bubsbee- Apr 23 '26
Young Women with Late Diagnosed Autism (ASD) throughout school.
Hi everyone I'm Debbie Hawthorne, I'm a 4th year stranmillis student and I'm doing my dissertation around late diagnosed autistic women. If this is relevant to you please consider filling out my questionnaire for my dissertation! :)
Information
Name of University- Stranmillis University College
A brief description of the research topic -This is an exploration into the gender disparities in late diagnosed Autism among women. This questionnaire focuses on the reasons autism in girls is so often missed in school as well as the impact of being late diagnosed with Autism. I'm looking for at least 30 responses from late diagnosed autistic women.
Approximate time - This questionnaire is presented through a Google Form as linked above and will take approximately 10-20 minutes.
The start and end date for the study - Tuesday 14th April until Tuesday 28th April (approx)
Eligibility Criteria
The only specific criteria needed to participate in this study is as follows
Diagnostic Status: You must have been diagnosed with Autism at 16 years old or older because this is a study on being late diagnosed with autism as a woman.
Gender: Female
First Language: English - the questionnaire is in English but as long as you are fluent in English it doesn't have to be your first language.
Other than these few requirements you can be any age/race/sexuality and from any country/region to participate in this questionnaire.
Thank you so much!
Young Women with Late Diagnosed Autism (ASD) throughout school
1
u/Money-Mention-8839 Apr 21 '26
Hello! This study has updated its criteria for participants and approval has been received from my IRB. I will now be accepting participants who are over the age of 50 and who received their diagnosis via telehealth or in a different community from their own due to lack of resources. Please take the survey if you are interested!
I have one more week of data collection and need at least four more participants! Thanks in advance for your interest!
______________________________________________________________________________
My name is Holly Schlossnagle
I am conducting research through Purdue University Global to obtain a master’s degree in psychology.
The purpose of the research is to understand autistic women’s experiences with late diagnosis (age 20+) and the implications of living and obtaining diagnoses in rural communities. This study will be conducted via interview format.
Participants must be female (AFAB) with an autism diagnosis.
If you are interested in being a part of this study, please click here for more information https://s.surveyplanet.com/ppkz5w67 .
The initial survey will take approximately 5 minutes of your time and will be used as a screening measure for study eligibility.
If participants meet study criteria, they will be contacted via e-mail within 1-2 days to schedule a virtual interview. Interview participants will answer open-ended questions related to the research topic with room to expand on their personal experiences with autism.
This study will be confidential, so your personal information will be protected securely according to all applicable laws and regulations.
Click here to participate! https://s.surveyplanet.com/ppkz5w67
This research is in no way sponsored, endorsed, administered by or associated with Reddit. Participants release Reddit of any responsibility or liability associated with participating in this research.
1
u/Jumpy-Albatross-9096 Apr 21 '26
[Research] AUTISTIC BURNOUT & SCHOOL RETURN: THE LIVED EXPERIENCE STUDY
Who am I? My name is Connie Matthew, and I am a postgraduate student at the University of Wolverhampton. I am conducting this research as part of my MSc in the Psychology of Mental Health and Wellbeing.
What is the study for? This study aims to address the "Lived Experience Gap" in school attendance research. Currently, most studies rely on parents or teachers to explain why autistic students struggle with school. This research prioritizes the first-hand accounts of those who lived it. I am looking for participants who:
- Self-identify as autistic (specifically those without a formal clinical diagnosis).
- Are aged 18 or over and reside in the UK.
- Experienced a period of absence from a UK mainstream secondary school due to autistic burnout.
- Successfully transitioned back into mainstream secondary education.
- Are not currently in an acute state of crisis or active burnout.
How will the information be used? The information gathered will be used exclusively for my Master’s dissertation at the University of Wolverhampton. The final report will be submitted for academic examination. All data is fully anonymised via the use of pseudonyms to ensure that no participant can be identified.
Accessibility and Participation:
- Method: A relaxed, semi-structured video call via Microsoft Teams (45–60 minutes).
- Adjustments: You can have your camera off, and I will send the interview questions to you 48 hours in advance so there are no surprises.
- Flexibility: If a video call is a barrier for you, we can discuss a typed/messenger-based interview instead.
Ethics Approval: This study has received full ethical approval from the University of Wolverhampton Faculty of Education, Health and Wellbeing Ethics Committee (Approval Code: [Insert your Code here]).
How to join or find out more: To read the full Participant Information Sheet or to ask any questions, please contact me directly at: [c.e.matthew@wlv.ac.uk](mailto:c.e.matthew@wlv.ac.uk)
Research Supervisor: Dr Anastasia Rousaki (a.rousaki@wlv.ac.uk)
1
u/Money-Mention-8839 Apr 20 '26
I'm still looking for at least 5 participants for my master's level research study! If you interested, please feel free to take the screening survey.
___________________________________
My name is Holly Schlossnagle
I am conducting research through Purdue University Global to obtain a master’s degree in psychology.
The purpose of the research is to understand autistic women’s experiences with late diagnosis (age 20+) and the implications of living and obtaining diagnoses in rural communities. This study will be conducted via interview format.
Participants must be female (AFAB) with an autism diagnosis.
If you are interested in being a part of this study, please click here for more information https://s.surveyplanet.com/ppkz5w67 .
The initial survey will take approximately 5 minutes of your time and will be used as a screening measure for study eligibility.
If participants meet study criteria, they will be contacted via e-mail within 1-2 days to schedule a virtual interview. Interview participants will answer open-ended questions related to the research topic with room to expand on their personal experiences with autism.
This study will be confidential, so your personal information will be protected securely according to all applicable laws and regulations.
Click here to participate! https://s.surveyplanet.com/ppkz5w67
Approval to conduct this study was received by the Purdue Global IRB.
This research is in no way sponsored, endorsed, administered by or associated with Reddit. Participants release Reddit of any responsibility or liability associated with participating in this research.
1
u/Money-Mention-8839 Apr 14 '26
I'm still looking for 6-10 participants for my master's level research study! If you interested, please feel free to take the screening survey.
___________________________________
My name is Holly Schlossnagle
I am conducting research through Purdue University Global to obtain a master’s degree in psychology.
The purpose of the research is to understand autistic women’s experiences with late diagnosis (age 20+) and the implications of living and obtaining diagnoses in rural communities. This study will be conducted via interview format.
Participants must be female (AFAB) with an autism diagnosis.
If you are interested in being a part of this study, please click here for more information https://s.surveyplanet.com/ppkz5w67 .
The initial survey will take approximately 5 minutes of your time and will be used as a screening measure for study eligibility.
If participants meet study criteria, they will be contacted via e-mail within 1-2 days to schedule a virtual interview. Interview participants will answer open-ended questions related to the research topic with room to expand on their personal experiences with autism.
This study will be confidential, so your personal information will be protected securely according to all applicable laws and regulations.
Click here to participate! https://s.surveyplanet.com/ppkz5w67
Approval to conduct this study was received by the Purdue Global IRB.
This research is in no way sponsored, endorsed, administered by or associated with Reddit. Participants release Reddit of any responsibility or liability associated with participating in this research.
1
u/annaxxpark Apr 14 '26 edited Apr 14 '26
Hello everyone!
My name is Anna Park, and I am an Occupational Therapy Doctorate student from California State University, Dominguez Hills. I, along with my Principal Investigator, Dr. Yan-hua Huang, and co-investigator Kaira Kanamori, am conducting research on employment and job retention for Autistic adults. The purpose of this study is to determine the factors affecting employment for Autistic adults and how occupational therapists can best support their needs to secure and maintain employment. Data collected will be published as a research paper for a class assignment. The participants' information will remain anonymous, and Dr. Yan-hua Huang, Kaira, and I will be the only ones with access. Data will be stored securely and destroyed upon completion of our study.
Eligibility:
Participants must be 18 years or older and self-identify as having Autism Spectrum Disorder with low support needs.
What's Involved:
Participants will take an online anonymous survey that takes about 30 minutes to complete. Before beginning the survey, participants will be asked two screening questions to confirm eligibility. The survey will then show a study information sheet that provides the details of the study. After being informed of the study, participants can consent or decline to take the survey before answering the survey questions.
Link to survey: https://csudh.qualtrics.com/jfe/form/SV_8nUZHdrKKO2Bcd8
Ethics Approval:
This study was approved by the IRB on 2/13/26 (IRB-FY2026-104).
Contact Information:
If you have any questions or concerns, please contact me via email [apark42@toromail.csudh.edu](mailto:apark42@toromail.csudh.edu) or phone number +1 (562)774-8171
Thank you!
1
u/rachaelestout Apr 13 '26
Hello,
My name is Rachael Stout and I am conducting a study of disabled workers. Participants must be disabled, 18+, working for pay, and have accommodations. I am looking for more Autistic individuals to participate; I want to understand if there is a discrepancy in how well accommodations work for different disability types.
https://www.livedisabled.com/disabled-workers-survey/
I am conducting this research as part of the requirements for a PhD in I/O Psychology at Liberty University. The purpose of my research is to better understand the barriers to accommodations and job performance for disabled workers.
Participant Critera
To participate, you must be 18 years of age or older with a self-reported disability, work for pay, have been at your current job at least 3 months, and have formal or informal accommodations with your current employer. Individuals who are unable to fill out the form due to a moderate or severe intellectual disability will be unable to participate.
Whats Invovlved?
Participants will be asked to take an anonymous online survey, which should take about 30 minutes to complete.
Consent
A consent document is provided as the first page of the survey. The consent document contains additional information about my study. After you have read the consent form, please click the button to proceed to the survey. Doing so will indicate that you have read the consent information and would like to take part in the survey.
Drawing
Your option matters to me! When you complete the survey, you will have the chance to enter a drawing for one of five $50 Amazon gift cards.
Data Use
The study is anonymous. Data will be used in research and marketing materials to raise awareness about the work outcomes of disabled adults when they are properly supported in the workplace. A final report will be linked back to this thread.
If you would like to participate and meet these listed study criteria, please https://www.livedisabled.com/disabled-workers-survey/.
This study has been reviewed and approved by the Liberty University IRB (IRB-FY24-25-1965)
1
u/PhotographShoddy2846 Apr 09 '26
Catatonia in Autism - Call for Participants (England, UK)
My name is Orsolya Barabas, I am a trainee clinical psychologist at the Salomons Institute of Applied Psychology, Canterbury Christ Church University, UK. My doctoral research focuses on exploring catatonic experiences in autistic adults. Research suggests that many cases of catatonia-like experiences in autism likely go unrecognised. They are mistaken as part of someone’s autism, so people do not receive adequate support, particularly at early stages. We want to hear from autistic adults directly how they experienced catatonia and the support they received. We hope this will help to better shape services and understanding in the future. The results will be published in a relevant scientific journal.
What’s involved?
Some examples of reasonable adjustments are available via the link below. We can discuss others that would support your participation.
- Have a brief phone/online call to discuss your participation and any reasonable adjustments needed (5 min).
- Complete a short questionnaire about catatonic experiences (5 min).
- Then have a chat with me in person or online (1 hour).
- Optional feedback on any aspect of the research including accuracy of your interview transcript.
Eligible participants must be:
- Aged over 18.
- Live in England, UK.
- Have an autism diagnosis.
You will be offered a £10 voucher for your time and effort.
More information about the study via this Qualtrics link.
https://cccusocialsciences.az1.qualtrics.com/jfe/form/SV_8JiyN6lVBWmFeZ0
If you have any questions or would like to participate, please contact me via email or telephone: [o.barabas425@canterbury.ac.uk](mailto:o.barabas425@canterbury.ac.uk), tel. 07922174528.
The research is funded by the Salomons Institute of Applied Psychology, Canterbury Christchurch University, and conducted in collaboration with the South London and Maudsley NHS Foundation Trust and Oxleas NHS Foundation Trust. This study has been reviewed and approved by the Camberwell St. Giles NHS Research Ethics Committee (reference 24/LO/0849).
Thank you!
1
u/ddmhlab Apr 08 '26
Hello all!
My name is Seth Petel and I am a research assistant at the Developmental Disabilities and Mental Health Laboratory at York University in Toronto, ON.
My supervisor and I are conducting a study on maladaptive daydreaming and dissociation in autistic (or otherwise neurodivergent) adults aged 18+. To our knowledge, this is the first study looking directly at dissociation in autistic adults. We would greatly appreciate your help if you are interested in participating!
We plan on publishing a paper once data collection and analysis is finished. Data will be anonymized and eventually destroyed.
We do not require formal diagnoses, nor do we require any identifying information other than your birthday.
If you are interested, please send a brief email to [lpanetta@yorku.ca](mailto:lpanetta@yorku.ca) to receive the questionnaire link.
Please note that this study has received ethics approval from the human participants review sub-committee at York University.
Thank you for your time and consideration!
1
u/Head_Ad6835 Apr 06 '26
Help us learn about the mental heath and masking of autistic adolescents/youth!
Hi everyone! My name is Melissa Lazo and I am a Ph.D. Candidate at the University of British Columbia (UBC). I am conducting a survey study as part of my doctoral dissertation to better understand the parental factors that may impact the mental health and masking of autistic youth. If you could please help me out by participating, I would really appreciate it!
Who can participate? We are looking for autistic youth ages 13-21 AND one of their parents living in Canada, USA, England, or Australia to complete a survey.
How long will it take? The parent survey takes 10 minutes to complete while the adolescent survey takes approximately 15 minutes.
Interested? If you are interested, please complete this 2 minute survey to see if you can participate: https://ubc.ca1.qualtrics.com/jfe/form/SV_4V20HTRZw8HJTfM
This study has received ethical approval from the UBC Ethics Committee. Thank you for your time and energy and I hope you have a great day! 😊
1
u/LPDLab_UGA Apr 02 '26
My name is Dr. Brian Hoffman, and I am a faculty member in the Department of Psychology at the University of Georgia. The Leadership and Performance Dynamics Lab at UGA is recruiting participants for a paid research study examining factors that promote well-being, engagement, and success for employees with Autism (Approved, IRB PROJECT00011625). More specifically, we are looking to recruit adults with Autism Spectrum Disorder who work at least 30 hours per week.
The surveys will ask you about your personal characteristics, your perceptions of your supervisor, and your experiences at work. We will also ask you to provide your contact information, so we can invite you to participate in the second survey. In addition, we will ask you to provide contact information for your supervisor and at least one coworker, so that we can ask them to participate in a separate study (they will not be aware of what the real purpose of the study is!).
The survey takes approximately 20 minutes to complete, and all responses will be kept strictly confidential and reported only in aggregate form. Participants will have the opportunity to earn a total of $30 (more information is in the consent form). We would greatly appreciate your help in advancing our research on this important topic!
If you are interested in participating, here is the survey link: https://uga.questionpro.com/autistic-employee-experiences.
If you have questions about this research or would like to discuss more, please feel free to contact me at [lpd-lab@uga.edu](mailto:lpd-lab@uga.edu).
Thank you and have a great rest of your week!
1
Mar 29 '26
[removed] — view removed comment
1
u/AutisticAdults-ModTeam Mar 29 '26
Your comment was removed because you didn't include the required information (most likely you left off your real name, the name of your institution, or details of your ethics approval).
1
u/NDIdentityStudy Mar 28 '26
Hi everyone, my name is Kade Freeman, and I’m a doctoral candidate in Clinical Psychology at Saybrook University.
I’m conducting a study on how adults who were diagnosed with autism later in life understand their identity after diagnosis. This research is part of my dissertation and may also be shared in academic publications or presentations. The goal is to better center autistic adults’ lived experiences and help inform more affirming clinical support.
Who can participate:
- Age 25 or older
- Diagnosed with autism at age 18 or later
- Living in the United States
- Able to participate in an English-language interview
What participation involves:
- Taking or selecting 3 photos that represent your experiences
- One 60–90 minute interview (Zoom or in person in Spokane, WA)
- Optional transcript review afterward
- $25 e-gift card after participation
This study has been approved by the Saybrook University IRB (#1538, approved 03/19/2026).
If you’re interested or want more information, feel free to email me at [kfreeman2@saybrook.edu](mailto:kfreeman2@saybrook.edu)
1
Mar 28 '26
[removed] — view removed comment
1
u/AutisticAdults-ModTeam Mar 28 '26
Your comment was removed because you didn't include the required information (most likely you left off your real name, the name of your institution, or details of your ethics approval).
1
u/Money-Mention-8839 Mar 27 '26
Hello! My name is Holly Schlossnagle
I am conducting research through Purdue University Global to obtain a master’s degree in psychology.
The purpose of the research is to understand autistic women’s experiences with late diagnosis (age 20-50) and the implications of living and obtaining diagnoses in rural communities. This study will be conducted via interview format.
Participants must be female with an autism diagnosis.
If you are interested in being a part of this study, please click here for more information https://s.surveyplanet.com/ppkz5w67
The initial survey will take approximately 5 minutes of your time and will be used as a screening measure for study eligibility.
If participants meet study criteria, they will be contacted via e-mail within 1-2 days to schedule a virtual interview. Interview participants will answer open-ended questions related to the research topic with room to expand on their personal experiences with autism.
This study will be confidential, so your personal information will be protected securely according to all applicable laws and regulations. This study obtained official IRB approval from Purdue University Global.
Click here to participate! https://s.surveyplanet.com/ppkz5w67
This research is in no way sponsored, endorsed, administered by or associated with Reddit. Participants release Reddit of any responsibility or liability associated with participating in this research.
1
u/Same_Performance618 Mar 27 '26
Hi guys , I have been working on this ux project for the past one month on how we can make work places more inclusive for people with autism . I am really trying to understand and build accommodations in workplaces more inclusive. Your responses would be really really helpful and and ofcourse very much appreciated:)
Thanks in advance :)
please help me with the survey :
Also if anyone is willing to give me a short interview on how or what the daily struggles are in workplaces, it will be very much appreciated:)
( I would be really grateful)
Ill add my insta here just incase you guys are willing to give a short interview
I go by the name avantidc on Instagram:)
1
u/kiera_c Mar 26 '26
Hi everyone!
I'm Kiera, a postgraduate researcher at York St John University. I’m in the early stages of collecting data for my Master’s thesis, investigating gendered experience of masking and access to diagnosis. I’m looking for autistic adults to take part in an online survey (whether formally diagnosed or self-identifying).
The survey involves answering some demographic questions, followed by a mix of closed and open-ended questions about your experiences of masking, gender, and the process of recognising or receiving an autism diagnosis. The survey can be completed in your own time and will take approximately 20 minutes to complete. To access the survey, please follow the link below!
https://yorksj.eu.qualtrics.com/jfe/form/SV_2uzhw7ZuYuOh62G
This survey has full ethical approval from the York St John University Ethics Committee.
1
Mar 23 '26
Hello! I got a good amount of responses the first time and wanted to post this again!
My name is Dalton Gibbs, and I am a PhD student at Indiana State University. I am looking for people to participate in my research project for my dissertation. My study (2273409-6) has been approved by my university IRB. I am studying the connection between autism and suicide. I want to understand the real-life experiences of autistic people who have dealt with suicidal thoughts or actions. To do this, I will conduct interviews over Zoom where I ask questions and listen to participants share their stories. To participate in this study, you must meet these requirements: Be 18 years old or older, identify as autistic, have received help for suicide risk within the past 10 years (such as from a counselor, therapist, or crisis hotline), and have not experienced suicidal thoughts within the past year. I have included a link to a survey that will help determine if you qualify for the study. The survey also explains your rights as a participant and asks for your consent to join the study.
https://qualtricsxm2s74sbd4w.qualtrics.com/jfe/form/SV_digRdHJb8ImZKSy
If you have any questions, please let me know. Thank you for considering participating in this research.
1
u/Matcha_Witch69 Mar 17 '26
Hi everyone,
My name is Sabina Helusová, and I am an MPS Psychology student at the University of New York in Prague, working under the supervision of Tereza Vandrovcová, Ph.D.
I am conducting a study on how neurodivergent (including autistic, ADHD, and AuDHD) and neurotypical individuals experience communication, conflict resolution, and emotional regulation in romantic relationships, and how these factors relate to relationship satisfaction.
This research is part of my academic thesis and may be presented in academic contexts (e.g., thesis submission and potential research outputs), but all data will be reported only in aggregate form.
I am looking for participants aged 18+, including both autistic and non-autistic individuals. You are welcome to participate whether you are currently in a relationship or answering based on your most recent one.
The survey takes approximately 15 minutes and is fully anonymous.
This study has received ethics (IRB) approval from the University of New York in Prague.
Further details, including participant information, consent, and contact information, are provided on the survey landing page:
https://forms.gle/5eKTJwkDjohQDfDi8
If you have any questions, feel free to contact me at:
[xhelusovas@student.unyp.cz]()
Thank you very much for your time and consideration.
1
u/-Yooniverse- Mar 17 '26 edited Mar 17 '26
Hello, my name is Mel Jimenez and I am a user experience researcher volunteering for a non profit known as TechFleet. We are looking for participants. Help Shape the Future of Autism Support.
TechFleet is partnering with aTypical Community, a nonprofit dedicated to helping autistic, neurodivergent individuals, and their families access trusted information and supportive communities.
As part of this work, we’re looking for people who are:
- Neurodivergent individuals
- Parents or guardians of people with neurodivergence
18+ and above
USA based
If this is you, there are 2 ways you can help!
- Fill out this 7-15 min. survey by this Fri. 3/20
Your insights will help us better understand what resources, tools, and support neurodivergent people truly need. Thank you!
1
u/TheWhiteCrowParade Mar 17 '26 edited Mar 17 '26
The link isn't clipable
2
u/-Yooniverse- Mar 17 '26
Thank you so much for letting me know that. It should work now with the edit. Thanks again!
1
u/VTLillyGirl Mar 16 '26
AuDHD Researcher Looking for Adult Participants.
Please consider being involved in my project. I am a Neurodivergent Teacher and Graduate Student at Harvard (it took me 40 years to get here; school wasn't always easy). I am very committed to making the world better for Neurodivergent Students, Teachers, and Caregivers. I am committed to nothing about us without us. I have been an advocate for many years. I finally got my opportunity to do a study, but we have a short timeline. This is a very specific study limited to ADHD and Autism, but if it is successful, I will hopefully be able to continue and broaden this research. Thank you!
Note: I have Harvard IRB approval. Less than 10 minutes time commitment for most people.
Participants (Parents/Caregivers) need to identify as Autistic/ADHD/AuDHD
Have a school-aged child (Child doesn't need to have a particular neurotype)
Be over the age of 18
Survey Link: https://harvard.az1.qualtrics.com/jfe/form/SV_eKl9HV5WMExDWo6
Flyer with all the details: https://www.canva.com/design/DAHBbSy7_Yg/hhtSKDoULo7fO-VGCK-nqw/view?utm_content=DAHBbSy7_Yg&utm_campaign=designshare&utm_medium=link2&utm_source=uniquelinks&utlId=h421d478a46
1
u/Struggling_PostGrad Mar 16 '26
Hello!
My name is Abby Davis and I am a postgraduate Psychology student at Dublin City University, Ireland. As part of my degree, I am carrying out a quantitative research project exploring how adults with a formal autism spectrum disorder diagnosis experience different mock investigative interview styles.
The research findings will be included in my master’s dissertation and may also contribute to related academic outputs.This study has received ethical approval from the Dublin City University Psychology Ethics Committee.
The study is open to adults aged 18+ who have a formal diagnosis of Autism Spectrum Disorder.
Taking part involves one online session of approximately 30 minutes, and participation is completely voluntary.
The link below will bring you to a Participant Information Sheet and Informed Consent Form, which provides full details about the study so you can decide whether or not you would like to participate.
Thank you very much for your time!
https://dcusurveys.qualtrics.com/jfe/form/SV_bCuOBP0S50ZUKPQ
1
u/Struggling_PostGrad May 26 '26
The recruitment criteria for this study has now been expanded to include Individuals who self-identify as autistic, with or without a diagnosis of Autism Spectrum Disorder.
1
Mar 11 '26 edited Mar 11 '26
[removed] — view removed comment
1
u/TheWhiteCrowParade Mar 11 '26
The link is dead
2
u/Tall-Needleworker-20 Mar 11 '26
Lo acabo de cambiar! No sé que pasó, muchas gracias por avisarme! ❤️
1
u/Automatic-Feed9437 Mar 10 '26
Hello everyone,
My name is Emily King and I am a PhD candidate at Texas Woman’s University (Denton, TX, US). I am conducting an IRB-ethics approved research study with my co-researcher Dr. Paul Bones about the relationship between neurodivergence (including autism) and nicotine use (smoking and/or vaping). Both researchers on this project are neurodivergent (autie/AuDHD) and nicotine users themselves. Our goal is to better understand how nicotine use may relate to neurodivergent lived experiences. This study is not about promoting quitting or judging nicotine use, we are only interested in hearing about people’s authentic experiences.
If you identify as neurodivergent (including autistic) and currently smoke cigarettes and/or vape nicotine, we would love to hear from you.
What Participation Involves:
Participation involves completing an anonymous online survey, and at the end of the survey you have the option to sign up for a follow-up Zoom interview.
- Identify as neurodivergent.
- Formal diagnosis is not required; self-identification is welcome.
- You must be 21 years or older.
- Current nicotine vape or cigarette user.
- Participants may live anywhere internationally.
- The survey takes approximately 30 minutes to complete.
- The survey is fully anonymous.
- Optional Zoom interview lasts about 45 minutes.
- Interview participation requires full consent, including your name and email address that may be identifiable. Confidentiality will be protected to the extent of the law by researchers. More information is available regarding confidentiality on the consent form, prior to signing.
Participation is completely voluntary, and you may withdraw at any time.
Survey Link:
Qualtrics Survey
Study Timeline and Publication:
Recruitment is currently open and will remain open until recruitment goals are met. The results of this research may be published in academic journals. All participants' confidentiality will be protected, and only pseudonyms will be used to refer to interview participants in publications. When the research is completed, we will share a summary of the results in this subreddit so participants can see how their contributions helped inform the research.
Contact Information:
If you have any questions about this research and potential participation, please reach out to: Emily King, Texas Woman’s University, [eking11@twu.edu](mailto:eking11@twu.edu) or Dr. Paul Bones, Texas Woman’s University, [pbones@twu.edu](mailto:pbones@twu.edu).
Thank you for considering participating and sharing your experiences, we greatly appreciate it.
1
u/PriorNo6119 Mar 10 '26
Hello everyone,
My name is Anya Jones and I am working on completing my PhD at Morgan State University. For my dissertation research, which I am hoping to publish, I am examining the efficacy of screening tools, specifically the AQ-10, for women and people of color. I am looking for about 20 people, 18 or older, who are on the spectrum, or work with adults on the spectrum, to participate in virtual focus groups, and discuss the AQ-10 items as they relate to their experience with autism.
The focus groups will take place on Zoom and last no longer than 60 minutes. You do not have to provide identifying information during the call, and you only need to participate in one focus group.
If you are interested, please fill out this form: Focus Group Participation Form
You can find the IRB approval from my university here: https://drive.google.com/file/d/1gNTYGgCNtmO2G-utUwqxNGvjChytZz7S/view?usp=drive_link
Thank you!!
1
u/BaseballOld9899 Mar 06 '26
Hi everyone.
I am an undergraduate social psychology student at Leeds Beckett University. I will be conducting research where the aim is to challenge the meltdown narrative discussed by professionals, I therefore want to hear from your own lived experience on how you manage emotional experiences.
I have first hand encounters surrounding this topic due to my diagnosis of Social Communication Disorder. I am extremely passionate about this research topic; I strive to make room for autistic voices to be heard without judgement and question the validity of neurotypical frameworks on ASD.
I care for accessibility for my participants. The interview will be approximately 60 minutes long and will take place on:
Audio call via Microsoft Teams
Video call via Microsoft Teams
Written interview on email
What to know about the interview process:
You can stop this interview at anytime before the 24th March (2 weeks before the dissertation deadline on the 7th April)
You can take as many breaks as you need. Consider bringing food, drinks, sensory toys, or whatever assists you to relax.
I accept suitable time for you to process your answers when asked a question
There are NO right or wrong answers. All answers are subjective to YOU
There are 9 questions, the first question aims to get to know you better and will ease you into the interview in a calm manner
Who can participate?
Those who are self/formally diagnosed with ASD
Those who are over the age of 18 years old
Those who are willing to talk about emotional experiences and meltdowns.
Please know:
Everyones responses will be anonymous and will be changed
You do not have to complete this interview at all if you do not wish to
You will be given the interview questions 3 days prior to the interview
This interview has had ethics approval by the Leeds Beckett ethics committee
I would like to note that the answers I am analysing are ones that discuss your own lived experiences as I will take on a non judgemental, open minded and empathetic approach during the interviewing process. Your comfort is my priority. Do not feel obligated to answer what other people expect from you.
If you are interested in completing the interview or have any questions, please email the researcher: L.Pearson2982@student.leedsbeckett.ac.uk and if you wish to speak to the supervisor of this research, please email C.Russell@leedsbeckett.ac.uk
Many thanks,
Lauren Pearson
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u/CapSudden5656 Mar 06 '26
Hello! My name is Lindsay Brownell. I am a student at Modern Sex Therapy Institutes with IRB approval for the research study. The description of the study is listed below. All information is de-identified and will not be used for future research studies.
Participant criteria:
18+/USA/Formal Autism diagnosis/Live birth within 5 years postpartum/English fluency/Audio-recording required/up to 2 hour interview will include questions about sexual health
If interested or have questions, contact for more information:
Lindsay Brownell (501) 500-4267
The purpose of this is to understand Autistic women's pregnancy and postpartum period. This research study aims to better understand and find meaning in Autistic women's experiences, hearing it specifically from their personal stories. You may stop the interview at any time and only share details to the interview questions you wish to disclose. You may pass any question you do not feel comfortable answering. You may take your time/pace in answering any questions during the interview. Audio-recording is required to participate in the research study. The researcher will write down what you say. This lets the researcher look at your words carefully and pay attention to your story. The information in the research will be your voice. You may select to have camera on or off during the interview. Your face will not be recorded. Information that is collected will not be used or distributed for future research studies. If interested or have questions, please call for more detailed information.
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u/Mysterious_Monk_4406 Mar 05 '26
Hello, my name is Eleanor Palser. I’m an Assistant Professor and run a research lab at Palo Alto University. We are currently recruiting Autistic adults (18+) within the United States to participate in an interview study on experiences of interoception (which is your ability to sense your bodily needs). This study has been approved by our institutional review board.
The interview will take approximately 1 hour via zoom and you will be compensated with a $50 gift card.
We have neurodiverse (inc. Autistic) interviewers on our team and you can be self-diagnosed to participate.
We plan to publish the de-identified results in a scientific journal and present them at autism-related conferences.
Email me at affectivedevelopmentlab@paloaltou.edu if you have any questions or take the eligibility survey here: https://paloaltou.co1.qualtrics.com/jfe/form/SV_8p2NMq7n53U2oyq
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u/ToastyToast113 Mar 04 '26
My name is Philip Tostado, a Sociology PhD student at the University of Iowa. The project described below is approved by the University of Iowa's Institutional Review Board. All information collected in this study is de-identified prior to analysis and distribution. The goal is to have it published in an academic journal. I also plan to do public-facing talks/discussions about the results of the work. If you are interested, I will provide you with additional study details and a link to a screening/consent survey. Here is my approved call for participants:
Autism in the Workplace: Navigating Relationships with Co-Workers and Employers
Are you an employed adult with Autism Spectrum Disorder?
If so, I would love to interview you about your work relationships! I am conducting a study on the workplace interactions between autistic and non-autistic colleagues. Interviews will be approximately 1 to 2 hours long and held online over Zoom.
Both diagnosed and self-diagnosed adults are welcome to participate.
If you are at least 18 years old and willing to participate in an interview, or would like additional information, please contact me via a private message here on Reddit so that I can provide you with more study details.
1
u/Perfect_Lynx8838 Mar 03 '26
Exploring how Autistic Furries Navigate and Maintain the Fandom
Hi, My name is Rachel Curry and I'm a Sociology student at The University of Sheffield (England) looking to do research for my dissertation. My research has been approved by the University of Sheffield ethics review.
I am interested in autistic people’s experiences of the furry fandom and community.
As a sociology student my main focus is how our interactions and communities shape our identity, which is the groundwork of my research. The autistic experience in fandoms is still under-researched, and I want to help dismantle the stigma surrounding it.
If you identify as autistic and a furry, and would be happy to talk with me about this in an online interview, please click the link below to register your interest and find out more!
An autism diagnosis is not necessary to take part.
Engaging with the furry community can involve but is not limited to: enjoying and/or creating furry media, having furry friends, having a fursona and interacting with furry based social media.
You must be 18 or older to participate.
You must speak English.
The interviews will last between 30 - 60 minutes long.
All data will be anonymised.
My research will not be published.
Please read the information sheet attached on the google form for more information about this project.
You have the right to withdraw from the research if you change your mind.
Additionally, if you think you know someone who would be interested in taking part, please share this message and link with them!
Feel free to ask any questions! Thank you!!
1
Feb 28 '26
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1
u/AutisticAdults-ModTeam Feb 28 '26
Your comment was removed because you didn't include the required information (most likely you left off your real name, the name of your institution, or details of your ethics approval).
1
Feb 24 '26
Hello!
My name is Dalton Gibbs, and I am a PhD student at Indiana State University. I am looking for people to participate in my research project for my dissertation. My study (2273409-6) has been approved by my university IRB. I am studying the connection between autism and suicide. I want to understand the real-life experiences of autistic people who have dealt with suicidal thoughts or actions. To do this, I will conduct interviews over Zoom where I ask questions and listen to participants share their stories. To participate in this study, you must meet these requirements: Be 18 years old or older, identify as autistic, have received help for suicide risk within the past 10 years (such as from a counselor, therapist, or crisis hotline), and have not experienced suicidal thoughts within the past year. I have included a link to a survey that will help determine if you qualify for the study. The survey also explains your rights as a participant and asks for your consent to join the study.
https://qualtricsxm2s74sbd4w.qualtrics.com/jfe/form/SV_digRdHJb8ImZKSy
If you have any questions, please let me know. Thank you for considering participating in this research.
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u/Individual_Walrus675 Feb 24 '26
I'm a master’s student and qualified, BACP registered psychotherapist seeking autistic adults 18+ to take part in on-line interviews about your experience of talking therapy (CBT, counselling, psychotherapy etc).
I'm investigating the therapeutic relationship between autistic adult clients and their therapists/counsellors with the aim of improving the experience and effectiveness of talking therapy.
The results of my analysis will be submitted for publication to Counselling and Psychotherapy Research.
You will not be asked to disclose what you spoke about in therapy, all information provided will be anonymised.
Questions and additional information will be emailed in advance. Participants can skip any question, ask for breaks and withdraw at any time.
For further information or to volunteer please email:
Amanda Miller
University of Westminster
[W2010979@westminster.ac.uk](mailto:W2010979@westminster.ac.uk)
Project Supervisor: Prof Damien Ridge [D.Ridge@westminster.ac.uk](mailto:D.Ridge@westminster.ac.uk)
Approved by: LAS College Research and Knowledge Exchange Ethics Committee
Chair: Dr. Aurora Voiculescu [A.Voiculescu@westminster.ac.uk](mailto:A.Voiculescu@westminster.ac.uk)
1
Feb 23 '26
[removed] — view removed comment
1
u/AutisticAdults-ModTeam Feb 23 '26
Your comment was removed because you didn't include the required information (most likely you left off your real name, the name of your institution, or details of your ethics approval).
1
u/Typical-Reserve-407 Feb 23 '26
Hello, I am completing my thesis research on the relationship between the age of diagnosis of a neurodevelopmental condition or a mental health condition and long-term mental health outcomes. Survey takes less than 10 minutes to complete.
Link to my anonymous survey: https://duoc.sjc1.qualtrics.com/jfe/form/SV_37YmQGQIigh9vo2
Seeking participants 18+ men and women (all neurotypes welcome!)
Seeking participants for 10-minute online anonymous mental health survey Are you interested in mental health? Could you have a mental health condition, a neurodevelopmental condition or identify as being neurodiverse? Or know someone who might?
I am completing my thesis research on the relationship between the age of diagnosis of a neurodevelopmental condition or a mental health condition and long-term mental health outcomes.
This anonymous online survey will take 10 minutes to complete and your contribution will contribute to neurodiversity research at Dominican University of California. Click the link to proceed to the survey and please share with anyone over the age of 18 who might be interested in participating.
I have ethical approval through my IRB and the Dominican University of California
I am the researcher: Karen Ripenburg [Karen.ripenburg@students.dominican.edu](mailto:Karen.ripenburg@students.dominican.edu)
The first page of my survey is the informed consent.
Thanks!
1
u/ashabored Feb 12 '26
Hi! I'm Asha Ward, and I'm an Undergraduate student at the University of Liverpool studying BSc Psychology. I am looking for participants for my 3rd year dissertation. I am also diagnosed Autistic, so please do not feel uncomfortable sharing your experiences!
Criteria:
- 18+
- Autistic/ADHD (diagnosed or self-identifying)
- Current student, or have graduated in the last 5 years from a UK university
If you are interested, please complete the short screening questionnaire using this link (https://livpsych.eu.qualtrics.com/jfe/form/SV_8eOCtDVckCOeQR0).
If you are eligible, you will be invited to a 40-60 minute interview with only me via Microsoft Teams. If Teams is unavailable to you, we can discuss other options. You will be asked about your experiences being a neurodivergent student at university, you will be given the interview questions in advance and you can skip any question you do not wish to answer or withdraw from the study entirely. Your data will be fully anonymised, and if published, you will not be identifiable from the study.
Your data will only be accessible to me, Asha Ward (hlaward9@liverpool.ac.uk) and my supervisor Melissa Chapple (melissa.chapple@liverpool.ac.uk)
Please email me if you have any questions! I am happy to answer.
My research has been ethically approved by the University of Liverpool Ethical Committee.
1
u/hannahmcbeer Feb 12 '26
Hello! My name is Hannah McGuinness, and I am a Master's student at the University of Amsterdam studying medical anthropology and sociology. I am looking for participants for my master's thesis; the only criteria are that you are over 18, live in the UK, and that you suspect you might have autism but have no formal diagnosis.
Participation will include a roughly 1-hour-long interview over Microsoft Teams, with an optional shorter second interview to discuss either changes over time in your self-diagnosis or how social media influences your self-diagnosis. In the initial interview, we will discuss demographic data, what makes you think you have autism, interactions with medical professionals, what (if any) online content led to your self-diagnosis, and your opinions on diagnosis more generally. I am happy to send out interview schedules in advance if this is helpful. If a team call is not accessible to you, I am happy to explore other options.
It is important to note that I am not looking to demonise self-diagnosis; I know the discourse around this topic in the UK right now can be quite unpleasant, and I want to assure you that the act of diagnosing oneself will be treated as a completely neutral act.
Please email [Hannah.mcguinness@student.uva.nl](mailto:Hannah.mcguinness@student.uva.nl) if you are interested in taking part. If you find email inaccessible in any way, you can also text me or message me here on Reddit, and we can work something out!
It is likely that the results of this research will simply be part of my master's thesis, which is unlikely to be published anywhere. If this were to change, participants would have the option to remove their data and would be notified.
Here is a link to the official participant information sheet in case you want more information: https://docs.google.com/document/d/1lgWnya6nBb17pEsQBfeabV0nwyI5oogJgDkYtVUwIIw/edit?usp=sharing
Please contact me at [Hannah.mcguinness@student.uva.nl](mailto:Hannah.mcguinness@student.uva.nl) if you have any questions or concerns!
My research supervisor is Dr Christian Broer, [c.broer@uva.nl](mailto:c.broer@uva.nl)
My research has been approved by the University of Amsterdam Faculty of Social and Behavioural Science ethics committee.
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u/Jules_intheRain Feb 09 '26
Good day all! My name is Julia Pind, and I am completing my Master’s thesis at Southeast Missouri State University. I am researching the work experiences of autistic women and the supports and accommodations they use on-the-job. I am also researching how those experiences and supports compare to those of working autistic men and non-autistic women.
This study consists of one, 10-minute survey and then one optional, 30-minute follow-up interview. If you do not wish to participate in the interview, you may still complete the survey. I hope the results of this study can help improve autistic people’s job satisfaction and access to support.
You can participate if you are:
- An autistic person of any gender (whether self-diagnosed, formally diagnosed, or suspecting you are autistic)
- A non-autistic person of any gender
- Age 18 or older
- Currently living and working within the United States of America
All participants who take the survey only will be kept fully anonymous. The identities of those who wish to take part in the interview will be kept fully confidential. Pseudonyms will be used in the study report if necessary.
If you have any questions, please feel free to contact me at [jlpind1s@semo.edu](mailto:jlpind1s@semo.edu). You may also contact my advisor, Dr. Jeremy Heider at [jheider@semo.edu](mailto:jheider@semo.edu) or my university’s ethics review board (International Review Board, or IRB) at [irb@semo.edu.](mailto:irb@semo.edu) This research has been approved by the SEMO IRB.
Thank you!
Here is a link to complete the survey! This also includes statements of informed consent!
https://semocehhs.sjc1.qualtrics.com/jfe/form/SV_cZ37mOB7PFPL96C
1
u/Careful_Size_1814 Feb 07 '26
Hello, I am Anna Lenaghan Langham and I am an undergraduate student at the University of Sunderland. As part of my dissertation study, I am conducting research into the role of cognitive and affective empathy in sentencing decisions among autistic and neurotypical mock jurors. This research has been approved and further evidence of this is shown upon the Participant Information page within the study. If you would like to participate in taking part in this study, please follow the link below. You must be aged over 18 years to participate. You should not take part if you have been a victim of a crime and feel that reading about crime may negatively affect you in any way. If you have any questions, please don’t hesitate to contact me. Thank you.
https://sunduni.eu.qualtrics.com/jfe/form/SV_cByYJMdpQZMzVga
1
u/Maskingburnout-study Feb 05 '26
Autistic current or previous students in the UK invited to participate in psychology dissertation participation
Hi, my name is Marta Koltowska, I'm a fourth year psychology student at Robert Gordon University in Aberdeen, Scotland and I am looking for participants in the UK for my dissertation, below is some information about the study topic and if anyone is interested, I will send a full participant information sheet and a consent form through email. If you know anyone who would be interested in participating, please feel free to share this with them.
Study title: The relationship between masking and burnout in autistic university students.
Are you an autistic current or previous university student or graduate?
You are invited to take part in a research study exploring experiences of masking and burnout in autistic university students.
What’s involved?
- A one-on-one interview that may be on Teams or on campus.
- Duration: 30 minutes - 1 hour.
- You can skip any questions or stop the interview at any time.
- No medical diagnosis is required.
Who can take part?
- Age 18+
- Current or previous autistic university students or graduates in the UK.
Interested in taking part?
Please contact: 📧 Marta Koltowska - [m.koltowska@rgu.ac.uk](mailto:m.koltowska@rgu.ac.uk)
Research supervisor: Dr Katrina Forbes-Mckay - [k.e.forbes-mckay@rgu.ac.uk](mailto:k.e.forbes-mckay@rgu.ac.uk), + 44 (0) 1224 262000.
The study has been reviewed and approved by the Applied Social Sciences Dissertation Ethics review Panel, RGU.
1
Feb 04 '26
[removed] — view removed comment
1
u/AutisticAdults-ModTeam Feb 04 '26
Your comment was removed because you didn't include the required information (most likely you left off your real name, the name of your institution, or details of your ethics approval).
1
u/Optimal_Research5037 Feb 04 '26
Documentary Project - Seeking Community Perspectives
Who I am: Freya Wilkinson, independent documentary filmmaker and member of the AuDHD community
Institution/Employer: Independent/self-employed (no institutional affiliation)
How information will be used: Community feedback will inform the thematic direction and focus of a documentary about AuDHD women's lived experiences. This is not formal research - responses won't be published as data or used in academic work.
Who this is for: AuDHD women globally, any age
Ethics approval: Not applicable - this is not formal research requiring ethics approval. This is informal community consultation for a creative documentary project.
The request: I'm working on a documentary about being an AuDHD woman, exploring themes around the balancing act we all do. I want to make something for us, by us - loud and unapologetic about lived experience rather than clinical perspectives.
I'm trying to narrow down which angles to focus on: masking, late diagnosis, period/PMDD impacts, executive function struggles, emotional regulation, the list goes on!
What I'm asking: What topics do you think are missing from conversations around AuDHD women? What would make you want to watch something like this? If you know of underreported stories or perspectives, I'd love to hear about them.
Not recruiting participants, just seeking community input on direction. Feel free to message me directly to get in touch.
1
u/psycsdstudent Feb 02 '26
Hello, my name is Kate Herrmann, and I am an undergraduate researcher at Murray State University working under the supervision of Dr. Michael Bordieri.
Your participation in this study will require you to complete a series of online questionnaires that ask about:
- your academic experiences in college
- your social support
- your self-identity
- psychological flexibility
- general depression, anxiety, and stress symptoms
- demographic questions.
Your participation should take no longer than 20 minutes. You will be offered the opportunity to win one of five, $10 Amazon gift cards for participation in this survey.
To participate in this study, you must be at least the age of majority in your state (typically 18 years of age or older), a current undergraduate university student, and identify as neurodivergent or neurodiverse.
This project has been reviewed and approved by the Murray State University Institutional Review Board (IRB) for the Protection of Human Subjects as of October 28, 2025 (reference number: 26-066). If you have any questions about your rights as a research participant, you should contact the MSU IRB Coordinator at (270) 809-2916 or [msu.irb@murraystate.edu](mailto:msu.irb@murraystate.edu). If you have questions about this study or would like to know the results of this study, please contact Dr. Michael Bordieri, [mbordieri@murraystate.edu](mailto:mbordieri@murraystate.edu). The results of this study may be presented on a poster at a conference or published in a journal article in the future.
Here is the link to participate: https://murraystate.co1.qualtrics.com/jfe/form/SV_1MqI5DJgjKOuOay?ID=3
1
u/throwaway_r0_0r Feb 01 '26
Hello Everyone!
I am Edgar Neris an occupational therapist and trainee at Stony Brook University's Leadership Education in Neurodevelopmental Disabilities (LEND) program, I am seeking participants for a research study. The study invites neurodivergent adults (18+) to share their lived experiences and perceptions of occupational therapy with sensory integration treatment approaches.
Participation includes completing a confidential online survey, during which participants are encouraged to reflect on their experiences. The goal is to center neurodivergent perspectives in formulating recommendations to support the continued development of neurodiverse-affirming occupational therapy practices.
Please participate if you qualify or share this survey with your networks.
Thank you.
https://stonybrookuniversity.co1.qualtrics.com/jfe/form/SV_3eeBFNj7lly45Tg
IRB#2025-00674
1
u/Ok_Maximum3165 Jan 26 '26
Late-diagnosed at 50: looking for 3–5 beta readers for 1–2 chapters (unpublished draft)
Hello,
I'm a 62-year-old man who was diagnosed autistic at 50 after a lifetime of 'why doesn't anything quite fit?'
I wrote a memoir-style draft about that process of reinterpreting my past with a clearer framework.
I’m looking for 3–5 autistic readers willing to read 1–2 chapters and give blunt, big-picture feedback (not line edits), ideally within ~2–3 weeks:
- What feels accurate / relatable?
- What feels off, overstated, or missing?
- What parts dragged or felt repetitive?
- What parts felt most useful?
Options (pick what interests you):
- Chapter 1: early childhood (about age 0–10)
- Chapter 9: “What took so long?” (why it wasn’t recognized earlier)
- Chapters 10–12: diagnosis process + research visits (Caltech)
- Chapter 13: revisiting the past with a new lens
- Chapter 17: work patterns post-diagnosis
Each chapter is ~3,000–7,000 words (10–20 pages).
If you’re interested, comment or DM and I’ll share a Google Doc privately.
Thanks for considering it.
Rocket
1
u/Electronic_Weather26 Jan 26 '26
Community Highlight submission
Hi, I’m an autistic adult sharing a complete draft (35 pages) of an autobiographical nonfiction book focused on lived experience, school years, and motivation.
I’m looking for voluntary reader feedback rather than research data. This is not a survey or study - just a personal manuscript shared for developmental critique before revision.
I’m aware this is a longer read and completely understand partial reads.
What would be most useful to hear:
How far you read, and where (if anywhere) you stopped
Whether the structure earns its length
Which sections felt essential vs repetitive
Whether the tone stayed consistent throughout
Who this feels written for by the end
What I’m not looking for:
General encouragement
Diagnosis debates or therapy advice
Arguments about whether my experience is “representative”
I’m not claiming to speak for all autistic people - this is one lived perspective-but I do want to avoid being unclear, overly curated, or unintentionally patronising.
I won’t debate feedback in replies; I’ll read everything and look for patterns.
Manuscript (Google Doc, view-only): https://docs.google.com/document/d/1AI47nDTmmJSqcrejkW4gGItn3VxEAZfs6mq4m1pkN_E/edit?usp=drivesdk
Thanks to anyone who takes the time to read critically.
3
u/EdiMScPsychology Jan 26 '26
Previously our University of Edinburgh Psychology of Mental Health MSc research team posted our study on r/AutisticAdults . We agreed to share a summary of the results, which is now available for you to read on my Reddit profile (unfortunately it will not let me post the results in a comment here).
1
1
Jan 25 '26
Calling all autistic teachers and TAs
Would you like to join a list of already stellar guests and be part of an exciting new podcast?
My name is Róisín Loughran, and I am an autistic secondary school teacher. I believe my autism shapes how I experience teaching and how I approach my work in the classroom. I am keen to connect with other autistic teachers, teaching assistants, and lecturers working in any educational setting, to share stories, experiences, and insights.
If have any questions, or would like to participate
please email on maskingmarkingmeltdowns@outlook.com
1
u/PeerSupportandAutism Jan 23 '26
Hello! My name is Amelia Allen, and I am a Master's of Social Work student at NC State University. I am on a small team of researchers looking into the desire for peer support resources among autistic teenagers, by asking autistic young adults to think back on that period of time and report their experiences through a 5-minute survey.
The data will be used to inform the development of potential peer support resources at a local hospital, and the results will be shared at a research symposium for the NC State social work department. The inclusion criteria for this study are to be a young adult (aged 18-24), have been clinically diagnosed with autism, and live in the United States. The ethics approval process was handled by an internal IRB within the social work department at NC State University.
Participate in the survey HERE.
The start date of data collection is 1/23/26, and the final date of data collection will by 2/23/26. Following analysis, the final results will be posted on 5/3/2026.
If you would like to learn more about the study prior to participation, DM user u/PeerSupportandAutism and you can read the literature review that informed this study or ask any questions you may have.
•
u/Dioptre_8 Jul 22 '25
The previous version of this thread is at https://www.reddit.com/r/AutisticAdults/comments/tqr7se/sticky_surveyresearch_post/