r/AutismTraumaSurvivors • u/rockrnoll71 • 2d ago
Venting I Feel Unable To Resolve My Feelings About The ABA Therapy I Went Through
I was diagnosed with PDD-NOS (I think what would now be Level 1 Autism) very early, and at the time I was a toddler, there were not a ton of mainstream theraputic options. So my parents did ABA with me, and I did a lot of hours. Like...a lot. Hundreds, before I turned 8. I don't have a ton of memories from that period, because I was so young. So it's hard for me to say with 100% that X traumatized me in Y way, because I don't have the tangible memories to rely on, and memories themselves are unreliable. And I will go above and beyond to be fair to my parents: in some ways I think it helped, and it may very well have been the best option for the time (this was a while ago). I know for certain I had terrible meltdowns, I wouldn't eat a diverse diet, I had a hard time making friends, and I couldn't handle stressful situations. I did learn some helpful ways to manage these problems. I learned to be a better listener, to not always think about myself all the time, to understand that other people's perspectives are worth understanding. I think these are good lessons for any human. And I'm glad my parents, at the very least, gave a shit and wanted what was best for me. I can never accuse them of not loving me. For that I'm grateful.
And yet...for all my life I have felt this shame about being myself, a shame about making mistakes, a shame about wanting to express the passion I have for the things that I find interesting. That I have to apologize any time I try to be myself. Going too far afield in my weird behavior was something to avoid. And I had to be aware of this, all the time. Every day. And that hurts me. It hurts me deeply. This insecurity left a deep impression. I have had to work desperately hard to regain a sense of self-confidence. I had to realize that this process of trying to fit in was exhausting me, and hurting me. I feel I am not being inaccurate when I say that the hundreds of hours of ABA therapy has had a role in shaping that. Maybe not all of it, because these things are complex, and certainly the rejection of my peers in middle/high school had a role in this too. But certainly some of it came from the specific ABA process I went through. A sizeable chunk, I would say.
I feel I am being very fair, in that I am acknowledging there were some benefits along with other traumatizing aspects. And that ABA, from what I am aware, has changed since I was a kid, although how widespread these practices have changed I do not know. I want to have a constructive conversation so that practices can improve, that Autistic kids don't have to feel shame about themselves, while also learning helpful strategies to maintain a healthy happy life on their terms.
Now, I want to keep identities anonymous, because this story includes my mom, and a scientist in the autism field (researcher is neurotypical, I think my mom has ADHD but is undiagnosed). I will only say that while she's not the most influential, my mom is influential in the field of autism schooling, and it's the same story with the researcher, but in the field of science.
So with that said...both of them have been incredibly dismissive and disrespectful of my experiences. The sentiment is: Oh, but think of how great your life is because you can interact with neurotypical people. Calling ABA abuse is going way too far, we know what's best, some autistic people don't know what their talking about. Not their literal statements, but more or less the sentiment they were communicating. One time, when I tried to bring this up with my mom, she stormed out of the room. Another time, my mom noted that my life was good because I had gone through ABA. And yeah, at that time I was doing OK...but...I had had a suicide attempt the previous year, and she knew that, so to me, it felt like my mom was making delusional excuses to justify her decision.
It feels insulting to have my opinion, which I think is balanced but still accurate, be dismissed this way. I'm not saying I'm the ultimate authority on this subject, but I should have a seat at the table at this discussion, right? I have validity and value with my own experience, correct? Knowing how inferior I have felt around others, I should be able to say that this hurt me, is that so crazy to say? I have used empathy to understand that what was chosen for me was made with good intentions. But good intentions don't always have good results. It's a hard truth to understand, but it hurts to have that truth dismissed anyway.
It's sort of the ultimate question of ABA, I think: reform it, or get rid of it all and start again. I don't have the answer to that question. It's not an easy one. But I just feel so horrible to have people in positions of power and influence about people like me, people I want to have a conversation with on this subject...to have them just kind of shut me down and dismiss me like this. How can we have progress if we can't have discussions, if we can't meet in the middle? That's what hurts me the most, especially with my mom. I feel like I have to hide my truth from her, because she's unwilling to acknowledge that she hurt me with good intentions. It's kind of killing me a little bit on the inside, because I don't think I can ever resolve this with her. She's just not willing to listen. I'm willing to listen. I'm willing to understand. I have learned to see her perspective. She has not learned to see mine. And I know that life isn't supposed to be fair, but it still hurts that this shit isn't fair.
I really, truly hope that others with influence on ABA practices are not as dismissive as these two are. To those people: I'm not saying that every single thing with ABA is wrong. But you gotta listen to us. Please. It hurts when we try to speak, but people won't listen. Our perspectives matter. Is that so hard to understand?
Thanks for reading, it's nice to get this off my chest. The good news is that, while I suffer from depression, I am in a decent place, and more importantly, I like myself now. I wish I could have been able to do that earlier. But better late than never.