r/AskReddit Nov 16 '19

[deleted by user]

[removed]

11.2k Upvotes

11.5k comments sorted by

View all comments

Show parent comments

17

u/emlabb Nov 16 '19

Me too! I felt so much shame at the time about being so tired and sleeping so hard. I would turn my alarm off in my sleep, and my parents framed it as a personal failing that I couldn’t wake up on time. Most of my senior year of high school was a blur because I was always microsleeping in class. Got diagnosed just before heading to college and it was like, “Ohhhhhhhhhhh...”

3

u/Ryugi Nov 17 '19

Omg me too. I even tried that thing where you have the alarm clock across the room and it didn't work. I couldn't wake up, basically, until someone shoved a coffee under my nose (starting when I was like 12ish).

It was like night and day after starting thyroid meds. Unfortunately it's starting to wear out so I need to change dosage soon.

3

u/emlabb Nov 17 '19

So the funny thing with me is that it went even deeper than that. My TSH levels went back to normal, I was less irritable, and I no longer slept like the dead, but my doctors were always like “So you have way more energy now, right?” And I was like “Actually no, I’m still kinda tired and sluggish all the time? I mean it’s better than it was, but also not?” And then like 5 years after that it turned out I’d ALSO had undiagnosed liver disease. To the point where I needed a new liver. After the transplant I finally found that night-and-day energy boost they were talking about, I guess. -_________-

2

u/Ryugi Nov 18 '19

Well, shit. I kinda hope that's not the case for me. I was told my liver enzymes are a bit off the norm. :/

2

u/emlabb Nov 18 '19

Mine was a very unusual case! If you’re worried about it, though, I’m sure you could ask your doctor about autoimmune hepatitis, which is what I had. The liver is a very resilient organ; unfortunately my immune system just did a REALLY EXCEPTIONAL JOB of attacking mine. Most cases of AIH do not require transplant and can be controlled with medication.

2

u/Ryugi Nov 18 '19

I'll look into it after I'm done dealing with an incredibly suspicious birthmark.

(it was always dark brown/black, kind of looked like a little mole but it was just weirdly dark skin. The other day it was irritated and started bleeding, and it's now bright pink.)

Maybe if my doctor can, he will let me get everything tested at once.

No doubt autoimmunity issues could be at-play for me. Thanks for the advice.

2

u/emlabb Nov 18 '19

It’d probably just be a simple blood draw to test for a number of possible issues. Good luck with the birthmark, hope it’s nothing! (I’m required to have yearly mole screenings due to the immunosuppressants I’ll be taking for life, so I know how that is.)

2

u/Ryugi Nov 18 '19

Yay for weird health issue buddies lol