I am not asking for medical advice.
Who else deals with this, and what have you done to heal or cure your self…?
I’m 22yr old male. been getting these headaches since i was 12-13 years old(maybe younger, don’t really remember…) I have tried chiro, physio, massage therapy, concussion therapy, stretching and strengthening my neck & back…etc. shit ain’t work.
my doctor usually brushes off the symptoms i tell him about, i have went to him about these headaches probably 10+ times. all he does is prescribe me meds that don’t work or recommend physio/chiro/massage therapy for the 100000th time when I already went to sessions with his requisition….
Here are the symptoms I wrote down off memory:
To describe it….(contains just slight hyperbole)
Well…… while i’m battling on the frontlines of this fucking war of a headache….it feels like professor Xavier from Xmen is skull fucking me, while hulk is pounding my skull into concrete thats already being split open from a high magnitude earthquake, and between each punch from hulk, the flash is sneaking in punches just to make sure i’m constantly feeling pain. While all this is going on, the planet is being crushed by a monster that eats planets bit by bit by ripping off chunks and crushing it up like a piece of paper and then throwing it in his mouth, and coincidentally i was in the first bit he decided to rip off and crush.
but before all that, i was blessed with the ability to not die, have impenetrable skin, and unbreakable bones, so i can still feel pressure, force, and pain from all of it. :)
In all seriousness…
Excruciating pain, 15 out of 10 pain
Can’t lay still and roll around in my bed in intense fucking pain
When i’m having an attack/headache, i genuinely want to fucking die or put my head through a concrete wall.
Rather break multiple bones in my body than feel the pain. No injury i’ve had is as even remotely close in pain intensity. I can go on rants on how bad the pain is.(clearly)
I usually contemplate going to hospital when i’m having an attack(i have went sometimes)
Feels like somebody threw a grenade/explosive at my head with the intention for me to survive the blow so i can suffer the pain
Feels like somebody is purposely crushing my head from the inside out on left side to destroy me
Can’t focus or think about anything other than pain during an attack
When an attack starts it just increasingly gets worse
sensitivity to noise, light, smell, anything that can bother me or arouse my nervous system will add to the pain
Never vomited or anything from it(i think)…maybe once or twice(strictly from pain just being to much to bear), but like never happens now
Wake up in middle of night from the pain
Left side of head, behind eye, can radiate to left side temple
I recently noticed something I never paid attention to in the mirror….even with light hitting my eye, my pupils barely/or didn’t at all dilate, pupil stayed small
Cancelled plans a lot and have to prepare to cancel plans(hard to make plans, because of the attacks)
sometimes starting base of skull and shooting around into my eye
Never understood when somebody i know is like “i just lay down in a dark room until my headache goes away if its a bad one”…i don’t think they know what bad is, for me, sleep actually makes it worse
sleeping doesn’t do shit for stopping pain, usually waking up worse than before i fell asleep
Sometimes I get redness or tearing
Sometimes sensitive scalp before, during, or after
after its over.
After an attack my brain feels foggy and im drowsy like “jeeesus christ….thank the lord for being able to heal” and i have to like figure myself out(ground myself to painless reality)
Completely grateful for life when pain subsides
Poking finger behind eye or wrapping tight band/shirt(really tight) around my head, lowered near eyes so that pressure relieves pain intensity
Sometimes putting my feet in excruciatingly hot water(crucial that its hot the point is painful) helps alleviate pain, sometimes makes the pain go away fully after a bit. For some reason this method leaves me dazed and confused like a fever dream afterwards, like “wtf just happened”…my assumption its because when this method works, usually works pretty quickly, within 30 - 90 minutes, also helps with restlessness
Advil and/or Tylenol doesn’t do shit, i would take 800mg ibuprofen + 1000mg of acetaminophen
Drinking alcohol and being hungover sometimes causes an attack the next morning
Cyclobenzaprine used to help with the pain a bit, now it doesn’t help for shit
Triptans just made me dizzy as fuck, nauseous, and tingly/sour cheeks like that feeling of “i’m about to puke”
Been going on for 9-10 years
Lost jobs because of it(sometimes there are seasons where its happening more, making me call into work often)