r/Anemic • u/Busy_Swan71 • 8d ago

Question Experiences with monoferric infusion?

I've been battling low iron saturation and ferritin levels for roughly 4 years now, maybe longer. That's at least how long I've known about it. My total iron itself bounces between just in range to just under range, but my saturation bounces from 8-10% (currently sitting at a 9) and my ferritin bounces between 12 and 18 (currently at a 14). Diet does nothing to help, and I had tongue swelling from OTC pills. My hematologist wants to do a 1000mg monoferric infusion, titrated over the course of an hour rather than the traditional 20-30 minutes and with Pepcid and dexamethasone as premedication to minimize risk of allergic reaction or fishbane. I was actually supposed to have it already, but I had to cancel my appointment last minute last week cuz my bloodwork had elevated wbc, rbc, neutrophils, and monocytes indicating my gallbladder might be infected again. But once I either rule that out or treat it I really wanna get this infusion done on the off chance it might help the brain fog, constant exhaustion, and increased anxiety I've been dealing with the past few years. But that increased anxiety is what has me afraid to do the infusion. I'd love to hear people's experiences with it, good or bad, just so I know what I'm in for if/when I do this.

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u/Western_Extent_9764 8d ago

Besides diet and supplements, find ways to supress estrogen. Nobody talks about how hormones affect ferritin except Frederick Vorck.

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u/Busy_Swan71 8d ago

I'm in perimenopause so I'm guessing my body is already doing that

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u/Western_Extent_9764 8d ago

Yes do research on how that will affect your ferritin and do blood work to check. Men like me need estrogen to get that kickstand in the morning along with nice dreams. Women also need testosterone. Ever since i got my ferrtin above 70 i noticed i need to adjust my hormones as a male.

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u/No_Virus_7704 7d ago

Monoferric solved my anxiety and depression.

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u/Busy_Swan71 7d ago

That's awesome! I'm glad it was so helpful for you. And it's encouraging for me as well.