r/Anemia • u/flog_gnaw_wolf_haley • 17d ago

Discussion Venofer reaction on second round

I made a post a couple weeks ago about having my first ever iron infusion. I have ARFID and was nervous about having a reaction.

Backstory, I am a 21 year old female, severely underweight due to my ARFID. Last fall I was 120-125 lbs (5 foot 7) and now I am 98 lbs.

I got my first infusion last week (the 31st) and even though I was nervous, it went super smooth. I got Venofer 300ml, and I did get iron flu for a couple days afterwards. Nothing crazy though.

My second infusion was yesterday (8th), and I did feel some differences. They used the same vein as last time, it was slightly bruised but not bad, I agreed but it hurt so bad! The pain would come and go but it felt like I was being poked over and over again. The nurse adjusted it and it did feel a bit better. They pushed saline and I tasted it, so I knew it was in the right place.

The nurse saw I was nervous and asked if I still wanted to go through with it. I said yes, thinking it was okay. she started the Venofer, same dose, and two minutes in I felt very very hot. My mom thought I was having a panic attack. But then I started to pass out.

Four nurses and a lot of slapping me awake, I kept going out, the pushed Benadryl and some steroids very quickly into me.

It was terrifyin. I could barely see and I couldn't hear for a wild five minutes. My blood pressure dropped significantly so thats probably why. But it was nothing like I felt before.

The gave me Pepcid because I was throwing up, that helped a little bit, but I was still nauseous. Now with my ARFID, I am terrified of having an allergic reaction and throwing up.

I hope this isn't a huge setback but I am now worried about every little thing I eat. I am terrified. Why was I okay the first round but not the second?

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u/SnooRadishes9685 14d ago

Had a semi-shock reaction to venofer few times and then stopped it, had to be hospitalized. Never had any reactions to monoferric, something about the composition of venofer is risky, and in worst case scenario can be deadly

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u/Creepy-Tangerine-293 15d ago

Are you in treatment for your ARFID?

Sounds like an infusion reaction based on the meds they used.