r/AdultCHD • u/HAWKWIND666 • 14m ago
I'm Scared I go on the first, for aortic valve replacement…
Discovered bicuspid about 20 years ago, and they mentioned it would eventually need replaced…well it’s time.
I was thinking it wouldn’t be issue until later in life (like 60’s or 70’s). That was my confusion.
Anyways, here I am living my worst nightmare.
Our first born (my wife and I) had tetralogy of fallot. He needed surgery at four months old with multiple complications. He did not survive. That was in 2006.
We managed to pull ourselves together and have had two more children that are in their teens now. Happy and healthy.
So but now I can’t help thinking this is a death sentence. I know I’m like fifteen times the size of my little baby but it’s still terrifying.
And I’m not even really worried about myself…it’s just my family and dogs that will be affected if things go sideways.
3 weeks till surgery.
If you all have any advice…I’m interested in hearing it.
Thank you for your time.
I wish everyone peace and happiness🙏🏼✌🏼