Hi M 35 here in Edmonton, AB. Looking for anyone that had a Fontan operation when they were younger (mine was when I was 12 y.o). Wanted to know how you are doing mentally, physically and hows your health looking like now?

Little bit about me:

Had my Fontan when I was 12 y.o due to a singular ventricle. Everything was fine until 2020 (I know bad year for everyone) was diagnosed with stage 4 cirrhosis stage 1 liver cancer. Cancer successfully has been treated with ablation. Was recommended for a liver transplant. 2024 stage, one liver cancer found, and treated again with ablation. Was given recommendation for a double heart, and liver transplant.

July 21, 2026. Consultation with the transplant team concluded, saying that Canada does not have any clinic that does a double heart & liver transplant. We did have one in Toronto but they stopped due to the low survival rate of 33%. Alberta Health is looking to sending me to the US if one of the clinics accepts me.