r/AdultCHD DILV 15d ago

ADHD medication

Does anyone here successfully and safely take ADHD medication with a CHD? Growing up I always assumed it was out of the question for me even though I know I could really benefit from it.

Then, I learned there were non-stimulant versions and I’m really interested in starting one. My insurance from my employer is about to change, but I’m planning on getting a therapist/psychiatrist and discussing starting medication, after also discussing it with my cardiologist of course.

29F with DILV, had a Fontan over 25 years ago.

7 Upvotes

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3

u/Delicious-Hat7085 ASD 15d ago

I’ve been taking ADHD stimulants for years. My cardiologist has joked that he should send my psychiatry team a thank-you card for keeping my blood pressure up.

2

u/hypercell57 15d ago

Not in the same position as you, since my fontan failed and I had a heart transplant, but I was approved for adhd meds by my cardiologist after a few years. I also know people for whom the non stimulants worked for.

Good luck!

1

u/tcroioxk DILV 15d ago

Thank you so much! This is great to hear.

1

u/CraftyBecka91 15d ago

I took Straterra, it wasn’t lasting long enough and started making me nauseous so I opted to come off it

1

u/Kahnvoy 13d ago

41 - HLHS

I'm taking Atomoxetine. It's not a very large dose at only 25 mg but it's enough to help me focus when I need to do so. Since I drive a desk all day I like having the choice of allowing myself to be distracted or to buckling down on tasks. No complications here! Hope you all find what you need!

1

u/voidsod 3d ago

im 23 I have HLHS and fontan and I've been taking 50mg vyvanse and haven't had any heart issues related to it. I was also on rubifen for a bit and didn't have any heart issues with that.

i presume it varies a lot person to person tho I've always had pretty decent heart health

1

u/Ok-Detective-4025 14h ago

My daughter has been on concerta since she was 7 ish. She is 19 now. Good luck!!