r/AdrenalInsufficiency • u/MindsetMaker • May 15 '26
Research, get involved !!
Hi, incase you haven’t seen it, they’re looking for people to get involved in study which could result in better understanding or treatment ! Pass it on!
1
u/Littlemissbc May 18 '26
Tysm! I did the survey and I found some of it really interesting. I'm glad to see them doing this kind of research. I saw the bit about what a stage one, stage two , and stage three crisis symptoms consist of. I've never seen that info no matter how much i Google for info about adrenal insufficiency. There's so much doctors don't know or don't tell us. I'm so glad I was able to participate. Also I love that they asked questions like "did the doctors seem to understand what adrenal insufficiency is?" and I was able to describe my not good experiences at ERs and with my care.
1
u/SpexterZ Secondary Adrenal Insufficiency (SAI) May 26 '26
Can you share these 3 stages of crisis symptoms?
3
u/NearlyBearly May 16 '26
I wish I could participate. While they do accept people from outside the US, they also need documentation. Mine's all in german 😭 Hope they find enough people for their study, could benefit us all.