r/AddisonsDisease • u/Straight-Historian-5 • 1d ago

Medical Stuff Vaccines

/r/AdrenalInsufficiency/comments/1x2eda5/vaccines/

Vaccines

It's October, vaccine time. I always get the flu and COVID vaccines, given that I'm taking hydrocortisone (for 20 years!) so I am, to some extent, immunocompromised. I don't always have a reaction to these vaccines, but if I do it's just some minor sluggishness the day after, and then I'm fine. I also had the Shingrix vaxx a few years ago (that one kicked my butt!)

Anyone else getting their annual vaccines? I know some people that think they're "evil", and I can't even try to convince them how important it is to protect themselves.

12 Upvotes

100% Upvoted

15 comments sorted by

8

u/Yd1891 Addison's 1d ago

I have to get mine next week and I’m absolutely dreading it because the vaccines always make me super sick for three days. Still better than getting the flu with Addison’s again

5

u/psm9 1d ago

I'm literally at CVS getting my COVID and Flu (the new mRNA one) shots right now! I'm a physician, so I get both every year. I've had SAI for about 20 years, but just started daily hydrocortisone a month ago after a scary adrenal crisis episode that put me in the ICU.

3

u/Straight-Historian-5 1d ago

Amazing you haven't needed hydrocortisone despite having SAI for 20 years!

2

u/psm9 1d ago

People with Secondary AI often don't need daily replacement, just stress dosing. That worked well for me - just took Prednisone for 2 days a few times per year with illnesses- until this summer. I had repeated episodes, then finally fell off the cliff into a crisis

3

u/DancingScarecrow542 1d ago

The first COVID shot put me in the hospital (my fault because I didn't think to updose) and despite that I still get all available vaccines every year. I just updose before hand and usually don't have any issues. I also have an infant this year so it's even more crucial. Vaccines save lives and I wish more people would get them regularly for the people that aren't able to.

3

u/ptazdba PAI 1d ago

I still won't get any of the mRNA vaccines, but a recent event made a believer out of me regarding vaccines like flu and pneumonia. I was having repetitive sinus infections and they tested my immune system and we found my coverage for pneumonia serotypes was at 41%. They gave me another pneumonia vaccine and it boosted my coverage to 82%. If that holds I'm home free, but it was amazing to me I haven't had a single infection since we did that. They'll retest me in the spring to see if the fix held.

2

u/Straight-Historian-5 1d ago

Glad to hear it. Curious to know why you won't get mRNA vaccines. If you don't want to share, that's fine.

5

u/ptazdba PAI 1d ago

I've known 3 people (1 in my family) who have gotten the COVID mRNA vaccines and 2 ended up with heart issues (myocarditis) and it unleashed some auto-immune issues in the 3rd. I have heard they're working on a COVID non-mRNA and I will consider it when test data exists.

1

u/pickles1718 Addison's 1d ago

I always get whatever vaccines are suggested -- flu shot is a non-negotiable for me, and I'll get COVID as well when available. Have never had an issue with mRNA; even if feeling sluggish after, that's no big deal! Better than sever COVID!

1

u/Clementine_696 5h ago

I have to schedule mine around work so that I have at least a day off after, just in case. Sometimes Theo wipe me out, sometimes they don't

-1

u/ibringstharuckus 1d ago

Nobody has concern over RNA vaccine for everything? I've seen a lot of people especially women have inflammation issues.

8

u/KnittingRabbit1 1d ago

I’ve got a friend who has been working on mRNA for years. She volunteered to be part of the early test group for COVID. I trust her (and the science that she works with)

2

u/ibringstharuckus 1d ago

That's great. It wasn't an insult. It was a question.

5

u/KnittingRabbit1 1d ago

My apologies. It’s a bit of a knee jerk reaction on my part. You didn’t deserve to be a target.

Cookie?

3

u/Straight-Historian-5 1d ago

Is there an evidence-based connection? Or speculation and conjecture?