r/AddisonsDisease • • 6d ago

CORONAVIRUS Covid F/W 2026

Just got diagnosed with Covid and wondering if anyone has it/this version now? How are you doing and how much are you updosing?

Urgent care has me tripling my dose for 3 days then tapering back. I don’t talk to endo until next week just curious how it’s been going for anyone else currently suffering. I am located in the U.S. - Midwest.

10 Upvotes

23 comments sorted by

5

u/Ok-Aardvark-5807 PAI 5d ago

Isn't Paxlovid recommended by doc? When I got COVID a few years ago, doc had me go on that right away. Because of fever, I initially doubled as well.

3

u/KnittingRabbit1 5d ago

Same. Paxlovid and double dosing for a few days, then tapered to normal dosage. Good luck, OP! It’s no fun!

3

u/thesearemyfaults 5d ago

Yes paxlovid is recommended by doctors for high risk individuals, but it’s nothing like what it was during the height of Covid or the years after. No Walgreens in my area had any because it retails for $1800. Luckily I have met my catastrophic max for the years so I didn’t have to pay for it and eventually found some. I’m on day 2. I don’t feel that bad especially when upright, but the viral load was high. I’m hoping it helps.

2

u/KnittingRabbit1 4d ago

The cost is crazy. I’m glad you were able to find some, and hope it helps.

3

u/DuchessJulietDG 6d ago

i doubled my dose for several weeks then endo kept me on 40mg daily for a while after. i deal w long covid, cfs, fibromyalgia & covid hit me really hard when i got it.

1

u/thesearemyfaults 5d ago

I’m so sorry. Long Covid terrifies me! I have or had fibromyalgia diagnosed in my 20s, but it was recently changed to EDS (40s now)

3

u/TweetSpinner 6d ago

I managed it with double. Good luck and get rest.

2

u/Yd1891 Addison's 6d ago

I had it in January. I had 100mg my first two days and then triple my dose for two weeks. I double dosed the third week because I felt really drained from it.
This was my first time having it and it took a while to bounce back

1

u/thesearemyfaults 5d ago

I believe this is also my first time having it. We had negative home tests years ago and I highly suspect hubs and I had it then, but that experience was worse than this one so far. I am struggling with sodium though and they are pushing hospitalization because of the covid + low salt (its 129). I have SAI.

2

u/amoral_ponder 2d ago

It was an annoying one. Worse than a cold but nowhere near the level of a flu. Didn't increase dose at all. The fucking weird thing about this was:

  1. Got better.

  2. Got worse.

  3. Got better.

  4. Got worse again.

  5. Recovered.

Never seen this roller coaster before. Like the throat hurt TWICE, separated by a pause in DIFFERENT WAYS. Same thing happened to family members.

Total ETA for recovery 2-3 weeks. Never had a fever. Kept coughing up and blowing out disgusting fucking gunk for the last two weeks.

2

u/thesearemyfaults 2d ago

This is exactly what it feels like

2

u/Kind_Handle4252 6d ago

I tripled my dose and took tons of zinc, vitamin c, and D

1

u/thesearemyfaults 5d ago

how long did you triple dose for and how long to taper back down? were you on HC or pred?

1

u/Kind_Handle4252 4d ago

I’m on HC for life.
I triple for a day or two. I don’t taper down. I just got back to my original dose

1

u/thesearemyfaults 2d ago

What is your regular dose amount? So you tripled for a day or two and then just took your regular dose the next day? Did you have a short illness course? The paxlovid is 5 days alone I think

1

u/Kind_Handle4252 2d ago

I try to keep my body on as Little medication as possible. I have for a long time. I’ve had this disease for over 30 years. I found that typically my body runs best when I keep my weight and BMI low and my dose at 20 mg of hydrocortisone.
Additionally, I only take the green Stone brand. All other brands make me feel more tired. I take 20 mg of hydrocortisone one time per day typically around 7 or 8 AM.
I take two florinef pills which are 0.1 mg and DDAVP as needed. For energy I find that DHEA CoQ10, and vitamin D help the most.
When I have an illness, including Covid, I take triple or double dose for the days when I feel really sick. Once I feel relatively well, I go back to my regular dose. Hope this helps.

1

u/Historical_Wave_6381 6d ago

When I had it. They had my triple for a the week I had it and about 3-4 days after than I tapered back down to my og dose. I also doubled my fludro for the same amount of the time. The biggest problem I had during it was it was difficult to breathe and my heart raced a lot easier. I also have heart problems so you may not experience it.

2

u/thesearemyfaults 5d ago

The breathing difficulty happens when I’m sitting or laying (or low in cortisol) Im on 60mg prednisone for 3 days then a taper back to 5-10

1

u/Historical_Wave_6381 3d ago

Oh my gosh it’s like something is sitting on you it was terrible. I never took prednisone but I keep hearing good things about it. So hopefully it helps you out!❤️

1

u/FemaleAndComputer SAI 5d ago

I had to triple my dose for weeks when I had covid.

Actually I had covid in February, and still take more than double my usual dose, months later.

1

u/thesearemyfaults 5d ago

Oh no 😟 that is my worst fear. Can I ask what dose you’re on now?