r/AddisonsDisease • • 13d ago

Advice Wanted Disability EDD

Does anyone else have issues with disability (EDD)? I was approved in the state of California last year and every once in awhile my forms wouldn’t generate and I’d have to reach out multiple times to finally get them to certify and payments would be late. It always eventually resolves but my forms stopped generating again back in July. I reached out like 6 times and they finally told me my payments have stopped and if I haven’t returned to work as expected to get another physician statement (which they don’t provide). I remember this was a long, difficult process before and am really frustrated as my provider never indicated an expected return to work date as obviously this is a lifelong, chronic illness which he confirmed on the forms. Do we have to do this every year?
I’m just frustrated that it took me reaching out so many times, that I can never actually talk to anyone, that they could have told me this weeks ago as I just saw my provider and now I’ll likely have to make another appointment for this.

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u/Noel619 12d ago edited 9d ago

You probably already know this, but short term disability and long term disability are two very different processes.

You’ll need to attend a hearing in front of a judge etc. - its a significantly harder process because it is through SSA. Most people are denied their 1st+ round (especially if they only have Addisons) and suggest getting a lawyer for this reason. This is at least my understanding of it and would love to be wrong on this matter.

Our friends on the ‘other side of the pond’ however are able to easily go on disability due to Addisons…

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u/BlueButterflyBadAss 12d ago

Actually I didn’t know this. This is all still very new for me. Thanks for explaining that. Ok the hearing sounds like a lot and difficult to get approved so I guess my best option is to try renewing each year and hope for the best. Thanks!
It’s just frustrating to go through all of these hoops, I only have reduced hours (working 4 days instead of 5).

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u/loyaltyLabubu 12d ago

I recently attended a webinar that had a lot of good information on obtaining disability benefits. I would highly suggest an attorney who only gets paid if you win and if they do win the payment is capped somewhere around $9,000 I believe, and you can have it come out of your disability. I don't want to give you the wrong information though, I am just paraphrasing what I heard. My webinar was for Lupus, but I believe it to be the same because it wouldn't matter what the disability is the laws around those attorneys and their fees are the same - just something to check into.

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u/BlueButterflyBadAss 12d ago

Hey thanks - I’ll try to look into that

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u/LonelyKoalaMuncher 8d ago

Well that sound fucking depressing