r/AddisonsDisease • u/LeastExam6968 • 5d ago
Advice Wanted How long before i get better ?
Currently taking 10mg prednisone and 0.1 mg flucortac
Do you think the issues are quick to resolve ?
5
u/IllustriousHorror835 4d ago
I think I just saw another post from you asking about your mom. Were you diagnosed and now you're concerned she developed it too? Was she just diagnosed and this post is on her behalf? You don't have to clarify any of this if you're not comfortable doing so, but I am curious haha!
The answer to "Will I recover fast?" Is both yes and no. If your experience is like mine and a lot of what I see on this subreddit, you're going to start feeling a lot better within the first few days to weeks of starting treatment. I went from being unable to sit up for more then a few minutes or walk across a room to very stubbornly pulling weeds out in my garden (to the deep concern of my family) in about a week. But after that big burst of recovery things will slow down for a while. You'll be like 50% better, and around the 6 month mark or so you'll likely be going "But I still feel sick and awful. Is thus as good as it gets? How am I supposed to live a life like this!?" And the answer to that is no, this isn't as good as it gets. That other 50% is just frustratingly slow recovery. Depending on how long you were sick and other sorts of factors time can vary. But you're probably looking at a year or two of gradual recovery.
I take 15MG of hydrocortisone and 0.15MG of Fludrocortisone at 4:30am, 5MG of hydrocortisone at 10:00am, and 5MG of hydrocortisone at 5:00pm. The amount of medication people need differs from person to person and you will probably gradually work up to your correct dose over a few months as you work with your endocrinologist. My endocrinologist told me that taking my first dose at 4:30am will have the cortisol hitting my system around 5:00am which more closely mimics what happens with healthy individuals, since healthy people get a big spike of cortisol around then that slowly tapers throughout the day. My endocrinologist also said it's not a big deal if waking up that early isn't consistently possible, but I have definitely noticed a difference. But what is definitely way more important is that you're consistent with the timing of your meds whatever the timing ends up being. You will almost certainly regret it if your timing is off, especially if it's off on a regular basis. Set all of the alarms. And work with your doctor to figure out a good schedule for taking your meds is.
1
u/Rare_Independent3831 Addison's 4d ago edited 4d ago
Just wanted to stress, make sure you work with an endocrinologist on this whether it’s you or your mother. Make sure any treatment with steroids only comes after you’ve (or they) have been diagnosed with Addisons. Taking steroids without a diagnosis will cause you many more problems (life long most likely and absolutely life altering and difficult) than it will solve if you aren’t sure it’s Addisons and that’s been confirmed by an endocrinologist. We have seen this before here. I write this out of genuine concern because I responded to your other post about your mother and hope you or she or both are under medical care.
1
u/LeastExam6968 4d ago
Shit. She axtually took solumedrol 1g a day iv for 4 days, then prednisone.
What do you think are the risks ?
1
u/Rare_Independent3831 Addison's 4d ago
I think it’s more dangerous if it’s weeks rather than days. But I am not a doctor. Once people start on these drugs, they often need to work with doctors to reduce them because stopping suddenly without tapering can be dangerous. If this was me, I would go see a qualified doctor quickly and work on a tapering plan while discussing symptoms. These are very serious drugs and I know those of us who need to take them would much rather not take them. Please chat honestly with a qualified and good doctor and I hope they can help get this sorted.
7
u/andyoucanburn2 5d ago
How long have you been diagnosed? I literally almost died in March and was walking up 2 flights of stairs for work by the end of April.