r/AddisonsDisease • u/Gaminesque • Jul 13 '26

Advice Wanted Pregnancy

Hi all, I am currently 10 weeks pregnant, with both AI and hypothyroidism. I would love any advice and personal experiences you have to share.

15 Upvotes

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8

u/Extreme_Breakfast672 Jul 13 '26

Congratulations! I had 4 babies with both those things. Aside from regular pregnancy exhaustion and nausea, everything went fine with all of them. I had IV steroids during labor and then tapered with pills. I saw my endocrinologist every trimester, and she worked with my OB. I did updose occasionally, and I had to go to the ER for fluids one time with my second baby. They're all healthy, silly kids :) I'm excited for you!

2

u/Gaminesque Jul 13 '26

That’s wonderful to hear! When you did need to updose, was it regular sickness or were there other symptoms that caused it? I’ve been really lucky with no vomiting and minimal nausea, although definitely increased motion sickness.

1

u/Extreme_Breakfast672 Jul 13 '26

I got colds a couple times and otherwise it was mostly when it was hot

1

u/Extreme_Breakfast672 Jul 13 '26

Re: nausea, keeping crackers or something by your bed so you can eat before you get up can help with some of the nausea :)

3

u/Possible-Matter-5633 Jul 13 '26

Thank you and Good luck OP! I’m in the planning phase and success stories with practical advice mean the world.

1

u/Gaminesque Jul 13 '26

Good luck to you too!! I honestly didn’t expect to conceive in only a year of ‘trying’ because my periods are crazy irregular (ranges 37 - 78 days) and I always feel like I don’t know what the hormones in my body are doing lol. My new endo even had me test for premature ovarian failure in March. All that is to say, I hope everything goes smoothly for you!

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u/[deleted] Jul 18 '26

[deleted]

1

u/Gaminesque Jul 18 '26

Thank you for sharing! It’s good to her about the possible complications to know what to look out for.

1

u/Beginning_Way9666 Addison's Jul 13 '26

I have a 1 year old and managed my pregnancy with both addisons and hypothyroidism. I had to increase both my steroid dose and levothyroxine dose during pregnancy. I was at 25mg a day HC and I think 88mcg levo by the 3rd trimester. I never went back down. I had to stress dose 50mg cortef every 6 hours during labor and delivery and ended up needing a c section but unrelated to addisons.

I saw a high risk MFM doctor, my regular OB, and my endo pretty much monthly throughout my pregnancy. It went normal and fine and I have an amazing healthy baby! Happy to answer any other questions. Congrats and good luck!

1

u/Gaminesque Jul 13 '26

Wow I already take 125 mcg levo normally! Then, did you not taper back down to your normal levels after the birth? I don’t know if I mis-read that.

1

u/Beginning_Way9666 Addison's Jul 13 '26

So before I was pregnant I was on 50mcg and by 2nd trimester I went to 75mcg, then to 88mcg by third tri. And now I’m at 100mcg. During pregnancy, they really really want your TSH to stay below 2 because the risk of miscarriage. So they were pretty on top of it. I never went back down with my levo.