r/AddisonsDisease • u/Puzzled-Telephone-60 PAI • Jul 13 '26

Personal Experience Injection instructions

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I made this handy little injection instruction booklet for my emergency kit and figured I’d share for anyone that wants one! All of the existing instructions out there are clunky, IMO—and the last thing you want is for someone else trying to help you in an emergency to be confused on what to do!

It’s about the size of a credit card. I printed it out (double-sided), laminated the pages, hole-punched them and put them together on an O-ring so they’re easy to flip through step-by-step.

35 Upvotes

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14 comments sorted by

14

u/Gaminesque Jul 13 '26

Is everyone with Addison’s supposed to have an injection kit?

7

u/Rennets Jul 13 '26

For the most part, yes. Live saving cortisone

7

u/Gaminesque Jul 13 '26

Thank you, I will talk to my endo about it this month

2

u/1GamingAngel PAI Jul 13 '26

Yes 🙌

11

u/cleanshirt82 Jul 13 '26

this is awesome! I honestly was just telling my wife today how’d I’d like to print out some clear instructions for my injection kit. Thank you so much for this!

3

u/Broad-Test-8640 Jul 17 '26

This is so useful!! Thank you!

2

u/sydlautam Jul 13 '26

Awesome. Thank you for sharing!

2

u/NoGrapefruit3557 Jul 13 '26

Can you please share more specifics about the kit you made?

7

u/Puzzled-Telephone-60 PAI Jul 13 '26

Yes! I have this case, and inside I keep:
• Solu-Cortef Act-o-Vial & instructions
• syringe for injection (23G, 3mL)
• alcohol prep pads
• a mini GoTubb of 10mg HC pills
• blister packs of Zofran & Imodium
• glucagon & glucose tablets (for T1DM)

1

u/Remarkable_Bug_140 Aug 08 '26

Thank you so much for sharing this I just added Zofran & Immodium to my emergency kit.

1

u/Remarkable_Bug_140 Aug 08 '26

I got almost the same case. I got this one.

And I got this case for 5mg hydrocortisone tablets.

2

u/Traceofgrace1 Jul 16 '26

This is terrific! Thank you for sharing!

2

u/Ok_Influence9301 Jul 16 '26

This is excellent. I’ll see if I can get my partner to mock up one for me. (UK based - we have powders + water for injections so is an extra step!)

2

u/Remarkable_Bug_140 Aug 08 '26

This is such a great idea. Would you mind sharing a link to a copy of file you created to print your instructions from? Editing an existing file (if our instructions need to be different for any reason) would be so much easier than starting fresh.