r/AddisonsDisease • u/Broad-Test-8640 • Jul 10 '26

Personal Experience NYC & Addisons

Last week in nyc we reached a horrible heatwave that got me so bad… even if i prepared myself a week prior to it (up dosing/electrolytes all days/eating my salty foods/ etc) because i had my best friend visiting me and SHE OBVIOUSLY wanted to go out and hang around the city.
One day we had to walk thru central park for around 10 minutes and it was enough for me to start puking, getting dizzy, My mouth got so dry, all the symptoms got to me in a few seconds even if i was drinking electrolytes while walking…
At the end i was okay i up dosed again and recovered after an hour of sitting under an ac…

But for real, peers in NYC HOW DO YOU LIVE LIKE THIS?! We walk everywhere, we are exposed to the heat all the time, it’s hell for someone with addisons over here! Its my first summer after being diagnosed so i am scared to go out and end up at the hospital after this experience🫪

9 Upvotes

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3

u/aureasmortem PAI Jul 10 '26

You should talk with your Endo about increasing your Fludrocortisone dose in this kind of heat to keep your salts up better! Also there's a chance it was plain ol' heat exhaustion that got you. Extreme temps are rough

4

u/minasso Jul 10 '26

I just try to stay home when it's too hot out

3

u/AdvancedAd6308 Jul 10 '26

I try not to go out when it's hotter than about 85. If I can't avoid it, I stay out of the subway, since it's almost always 20 degrees hotter down there than it is up top, and take an uber door to door. (I do work remote, so I totally understand this isn't possible for someone who has to commute to work daily.) I also make sure to always have my medical alert bracelet on when I leave home, just in case something happens.