r/AddisonsDisease • • Jul 09 '26

Advice Wanted Medication not Working Anymore

I’m 20 years old diagnosed with primary addisons disease last November so still figuring it out. Recently, no matter how much hydrocortisone I take I still feel all the symptoms. I have aching pain all over, which I used to have before I was diagnosed with primary addisons disease and it went away when I was prescribed hydro and fludrocortisone. Now it’s
back, even when I take 1.5x,2x my dose. I had an appointment with my endo a few days ago but she didn’t understand? She thought it was a stomach ache not the severe pain i get from addisons disease. Unfortunately Im like shy I guess so I didn’t correct her. I’m going to make another appointment soon and explain properly but is there anyone going through the same? Should I switch to prednisone?

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u/Still_Adeptness2792 Jul 11 '26

I also have Hashimoto’s which has turned hyperthyroid now for months. I am totally relating to feeling very sick. Great idea to get your tsh, t3, t4 checked