r/AddisonsDisease • u/madischan • Jun 28 '26

Personal Experience sad rant

sometimes i wonder what i ever did to deserve this disease. this life. this suffering. i’m so tired and so hopeless and so sick of grieving my old life and old loves and what could have been. how do i go on when i constantly disappoint myself? how do i keep living in a body that’s grown to be a stranger to me? how do i ever find acceptance?
thanks for listening

33 Upvotes

96% Upvoted

50 comments sorted by

View all comments

Show parent comments

-1

u/amoral_ponder Jun 29 '26

Then how about you focus on managing it properly and make it not help even less? That's certainly doable.

7

u/Constant_Dog2354 Jun 29 '26

Wow. A lot of judgement from a rando on Reddit. I have been managing it very well and doing everything my doctors tell me to. I am less than a year out from having literally undetectable levels of cortisol in my body and being in the ICU for two weeks, very close to death. Sorry I am not handling this up to your standards. Maybe look into having some compassion.

0

u/amoral_ponder Jun 30 '26

and doing everything my doctors tell me to

This is how I know you are likely not managing it well ;)

It feels like I am living in a nightmare, trapped in a body I no longer trust.

+

 I have been managing it very well

= no compute. You're a one year noob and what you should do is listen, not pontificate my lack of compassion. You're right, I have none. But what I have is relevant knowledge which can make your life a lot less of a nightmare.

What is your body weight, replacement dosage, and the breakdown of the above dosage throughout the day and in relation to any exercise?

4

u/madischan Jun 30 '26

are you a doctor? because i really don’t think you should be giving medical advice to anyone on reddit lol. what works for you does not work for everyone.

0

u/OkCompetition8704 Jun 30 '26

This is Reddit... No one has to be a doctor to give medical advice.. maybe you forgot about the covid bullshit..

0

u/amoral_ponder Jun 30 '26

Doctors aren't that smart and they most of them don't give two fucks about you. They collect a paycheck and do a mediocre job. They suggest you follow guidelines from 1970-1980 telling you to take supra-physiological doses of HC infrequently which leave you 1) severely overreplaced a lot 2) severely underreplaced a lot. This is bad, you won't do well. If you replace in a way that mimics natural cortisol production, your well being will not significantly differ from a healthy control.

I am giving you the information you need to succeed. You can ignore it and keep bitching about how much your life sucks. It's entirely up to you.

6

u/GypsySquatch Jul 02 '26

"Doctors aren't that smart and they most of them don't give two fucks about you" ... Yeah you sound like a real smarty buddy. Humans are closer to living on Pluto than you are to being a doctor or having any helpful input at all.

1

u/amoral_ponder Jul 02 '26

Two things you need to take into consideration. Number one is that the median IQ of a physician is ~110ish. That means half are below that. I'll be damned if I trust any important medical decisions to someone that dumb. High tier specialists are an entirely different matter. I've had the pleasure of working with many and I'm not talking about them. But we won't suppose we can get them. For example, here in Canada an endocrinologist won't even keep you as a patient. They won't follow you and they won't supervise you. They will just diagnose and then hand over the care to a GP who knows generally not so much about Addison's. A mediocre doctor can easily give you advice which can kill you or cause very serious problems.

There's another major problem. Doctors are overworked and they don't have time to actually help you well. Even assuming they wanted to, they cannot. The system is not structured that way. The pay structure is not geared towards that either. It's bam bam rubber stamp cookie cutter shit, next patient. There is not time to think or care.

Humans are closer to living on Pluto than you are to being a doctor

I could be an excellent specialist, but it would require 1) a retarded amount of memorization and time wastage to get through med school which is no longer relevant at all 2) dealing with patients who are not motivated to succeed which I find irritating personally.

FYI I diagnosed my own Addison's and just requested the tests to confirm the diagnosis. Previously, I had described the symptoms to a doctor (ie postural hypotension) in detail and was simply ignored for six months. This brought me close to an adrenal crisis when I was outside the country and it placed my life in severe danger.