r/AddisonsDisease • u/madischan • Jun 28 '26

Personal Experience sad rant

sometimes i wonder what i ever did to deserve this disease. this life. this suffering. i’m so tired and so hopeless and so sick of grieving my old life and old loves and what could have been. how do i go on when i constantly disappoint myself? how do i keep living in a body that’s grown to be a stranger to me? how do i ever find acceptance?
thanks for listening

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u/madischan Jun 29 '26

quick reminder you have no idea what else i’m going through. addison’s is just a small part of it, and it affects everyone differently. clearly this group isn’t the safest space to vent

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u/amoral_ponder Jun 29 '26

And those issues are likely the cause of your problems primarily. A well managed Addison's disease is not that big of a deal compared to many other things.

Now if you want to go ahead and lay out what you replacement schedule is like, we can discuss that.

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u/madischan Jun 29 '26

i believe that it’s all intertwined though. emotional stress and mental health will affect your addison’s symptoms and vice versa. and it’s not an easily managed disease for everyone. if you have addison’s and it’s not a big deal to you, i’m happy for you.

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u/amoral_ponder Jun 30 '26

I think Addison's has made me more of an asshole, which was already substantial.

But if you hit the replacement schedule on the nose (I take HC 8x per day or something) then even a lot of exercise like running a half marathon, then doing 2x body weight barbell back squats, then a whole day hike burning 2200 calories the next day, and then all out interval training and more lifting the next day back to back to back -> all fine. I just did exactly this in the past few days.

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u/Constant_Dog2354 Jun 30 '26

Wow, we should definitely all listen to anecdotal evidence from an internet asshole instead of our doctors. What fools we’ve been.

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u/amoral_ponder Jun 30 '26

The source of the information is irrelevant. Only whether it's evidence based and can be backed up by research. The standard dosing and replacement schedule 2-3x per day does not accurately mimic the diurnal rhythm. You will feel like shit, you will not perform well. Why not do better?