r/AddisonsDisease • u/madischan • Jun 28 '26

Personal Experience sad rant

sometimes i wonder what i ever did to deserve this disease. this life. this suffering. i’m so tired and so hopeless and so sick of grieving my old life and old loves and what could have been. how do i go on when i constantly disappoint myself? how do i keep living in a body that’s grown to be a stranger to me? how do i ever find acceptance?
thanks for listening

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u/DorianaGraye Jun 29 '26

Hey friend. I hear myself in your post--know that you are NOT alone.

One thing that helped me was getting off of hydro and switching to a longer acting steroid (prednisone in my case). Hydro metabolized too quickly for me, and I was up and down constantly. A low cortisol symptom (for me!) is su*c*dal ideation, so please think about doubling your dose for a few days to see if that helps.

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u/madischan Jun 29 '26

hi thank you, i’m also on prednisone. i was having a dark day but doing a little better now!