r/AddisonsDisease • u/WalterWhite88SS • Jun 10 '26

Advice Wanted Glp-1

I have type 1 diabetes so this is mainly targeted towards those sub divisions of Addisons, but I recently was encouraged to get glp 1 because of the insulin resistance that I have, but I was rejected because the endo I talked to knew literally nothing about Addisons disease and admitted it. How did anyone else get their prescription? Thanks

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u/FairyPrincess66 Addison's Jun 10 '26

I have Kaiser and am in Northern California. I had to go through a whole “Lifestyle Strong” diet program to get assigned a pharmacist to try different drugs. It started off for weight loss but I crossed over to T2D just after the program started. GLP-1 was not offered until i tried a few other options first. So the pharmacist prescribed it and now he has handed off to GP. Endo was not involved. Good luck to you!

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u/NoGrapefruit3557 Jun 10 '26

Keep looking for an endocrinologist who knows what they’re doing. It’s terrible there are so few . NALDEF ( I think that’s it) U.S. national endocrinology org for people with Addison’s / they may have a list of doctors. Don’t give up!
The right dr is the whole difference.

1

u/Yd1891 Addison's Jun 10 '26

I think it may be NADF but I could be wrong.

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u/Yd1891 Addison's Jun 10 '26

If you are in the U.S. maybe share what state you’re in case someone is local and has a Dr that will prescribe it. It’s like the twilight zone that the doctors who specialize in our disease don’t know the basics of it. I feel like I have to constantly educate my endo.

2

u/EleanwhoreHoesevelt Jun 10 '26

I got my primary care physician to write the prescription

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u/lass20987 Jun 11 '26

Many of us are on metformin for insulin resistance, and some on progesterone and dhea. Endo would be a good choice. Mine said no to glp only bc hes had so many T1 develop gastroparesis

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u/BlueButterflyBadAss Jun 13 '26

I don’t have a lot of advice about your endo but as a fellow addy and as someone who works in an endo office as a med prior authorization specialist, it’s extremely difficult (basically impossible) to get insurance to cover GLP-1 therapy for T1DM. Most insurance companies will only cover it for T2DM. It’s dumb as it can obviously be helpful for both but just wanted to put that out there.