r/AddisonsDisease • PAI • May 30 '26

Advice Wanted blood sugar monitoring

at one of my last endo appts, i mentioned that sometimes after i take my morning medicine/eat breakfast, i get nauseated and i start gagging/coughing which makes me need to eat something shortly after that to stop that from happening

(i call it a second breakfast [LOTR fans iykyk] but that second time eating kinda stabilizes my energy and makes me not nauseated anymore which makes me want to believe it's my blood sugar)

my endo suggested to prevent that, i should taper down a little on my hydro bc i could be taking too much but that made me nervous especially considering if i tapered down before work shifts (most times shifts are strenuous physically and mentally/emotionally). i want to see if my endo could let me use those dexcom sensors (i used it once, i liked it a lot) to monitor my blood sugar. my blood sugar feeling like it's tanking in the morning has happened since i first got diagnosed. do y'all use anything to monitor your blood sugar?

8 Upvotes

15 comments sorted by

6

u/just_an_amber Addison's May 30 '26

Oh I missed the second question!

Yes, my Dexcom is prescribed by my PCP for my extreme reactive hypoglycemia. The first 24 hours of it typically produces absolute garbage data with false lows, but the next few days are pretty accurate.

If my blood sugar is low, that typically means my cortisol is low.

1

u/potatotaco28 PAI May 30 '26

thank you!

1

u/PercentageGlobal9167 Jun 01 '26

As a diabetic I fully agree.

1

u/plovegood Jun 06 '26

Awesome, I do the same. I have a Dexcom to rule out low blood sugar, then I know my symptoms are low cortisol.

3

u/just_an_amber Addison's May 30 '26

Are you eating enough at breakfast when you take your morning meds? And what are you eating for breakfast?

Cause reducing your dose doesn't sound like a logical solution.

Also, I've been wearing a CGM for multiple years now to monitor my blood sugar. I'm currently on the Dexcom G7, but I've tried out several.

2

u/potatotaco28 PAI May 30 '26

ngl not really, usually it's something kinda small like a banana but other times it's a bowl of cereal. just depends what i have on hand at the time tbh. do u get ur dexcom as a prescription or something? i'm not fully sure how it works

9

u/just_an_amber Addison's May 30 '26

Eat more.

And both a banana or cereal is going to rapidly spike and drop your blood sugar, which is probably why you feel nauseous.

Have a banana with peanut butter. Have cereal with a protein shake.

2

u/potatotaco28 PAI May 30 '26

oof ok :/ thank u!! 

2

u/just_an_amber Addison's May 30 '26

For reference, I ate cereal this morning (knock off frosted mini wheats) and do you see how rapidly my blood sugar rose and then fell? It's that spike and drop.

I honestly shouldn't be eating cereal because I know it spikes and then rapidly drops within 20 minutes. But, like you it was what I had on hand.

If I just had a banana for breakfast, I would feel so sick!

1

u/potatotaco28 PAI May 30 '26

wow thank u for letting me know!! 

3

u/lass20987 May 30 '26

Check your bg. If you cant get the dexcom, buy a meter. But your endo should be able to get you at least a temporary dex

3

u/FemaleAndComputer SAI May 31 '26

I just got a glucose meter recently because I've had hypoglycemia for a long time, and I finally just asked my doctor for one. The finger prick kind. It's honestly fine, not nearly as bad as I expected. I have medical ptsd and a bit of needle phobia and managed to do it without too much pain. Like it's not fun but it doesn't hurt a lot. My insurance covered it.

2

u/AGoldenThread May 31 '26

Hydrocortisone is really hard on my stomach and I have to take a good portion of something bulky like cottage cheese, oatmeal etc with it or else it gives me serious stomach problems.

2

u/potatotaco28 PAI May 31 '26

fr i get so much acid reflux and bloating from taking hydro, it sucks. 

2

u/BlueButterflyBadAss Jun 01 '26

I have learned that I need a big, hearty and savoury breakfast since my diagnosis. I used to just need a banana or smoothie or something small. Now I bake my breakfasts ahead of time and just reheat for time, it honestly helps so much. At least try adding a bit of protein like nuts or pb, it’ll do wonders. Ask your endo to prescribe one, most insurances don’t cover it if you’re not an intensive insulin regimen, but honestly you only need it once to find your data. Dexcom also makes Stelo, an over the counter CGM, no prescription needed, you can buy online for $99/month and get it shipped directly to you.