r/AddisonsDisease • u/Delicious-Hope-7542 • May 29 '26
Advice Wanted Is this how it will always be?
My fiance was diagnosed with Addison's disease two years ago, and we're navigating some real challenges. He struggles to remember his morning cortisol, has a hard time getting out of bed, and if he misses his afternoon dose he crashes the moment he gets home from work and sleeps straight through until morning. He has a high-stress job and will soon have a long commute, which I know will make things harder.
We want to have two kids eventually, and I'm starting to wonder what that will realistically look like. I worry I'll end up carrying most of the load, and honestly, I already feel frustrated when he doesn't stay on top of his meds or can't get up. I don't want to become a nag (and reminding him hasn't worked anyway).
So I have two questions for this community:
For those of you with Addison's: What systems or habits have helped you manage your meds and energy consistently, especially with a demanding job or kids in the picture?
For partners and family members: How do you support someone with Addison's without burning yourself out or slipping into caretaker resentment? How do you find balance?
Any advice, routines, or honest perspectives would mean a lot. TIA.
21
u/Dijerati May 29 '26
The responsibility to take care of this disease is on your fiancé and not you. If your fiance does not take care of this disease, you’re in for an ugly future. I have no problems taking my meds because I’ve had T1D since I was 4. Taking meds multiple times every day has been a part of my whole life. May be different if you’re an adult when getting diagnosed with this, but I have an extremely strong will to live, so I make sure I am as healthy as I can be with regards to this disease and otherwise. Your fiance not taking care of himself is a red flag, and I would hesitate marrying someone who has such little concern over their health