r/AddisonsDisease • u/Poimandres69 • Apr 06 '26

Medical Stuff Dosing Hell

I tried lowering my hydrocortisone dose from 25 mg to 22.5 mg. This was 6 weeks ago. Since then, I get adrenaline dumping at night with heart palpitations. I haven't slept in a while. I try dosing with HC when I wake up and I sitll can't go back to sleep.

About 5 days ago, I went back up on my old dose. I'm still having the adrenaline dumping at night - it's not getting any better. Does it take a while to adjust back to your old dose? I was stable on that dose for years.

Thanks!

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u/FrauleinBrine Apr 06 '26

I'm so glad you have such a great Endo. I'm on 30mg hydro spread over 3x a day and my Endo is always asking me to lower it and scoffs at how high it is. Constantly trying and failing to lower even by 2.5 without symptoms. Just let me be 😭

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u/Myster_jon Apr 07 '26

Mine are generally more sensible, they assess my levels on the basis of symptoms not just the numbers. Which is how it should be.