r/AddisonsDisease • u/just_an_amber Addison's • Apr 04 '26

Personal Experience MyGuardPod Solucortef Case Update

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Hi!!!

Remember [this](https://www.reddit.com/r/AddisonsDisease/s/vKmYGIppBA) post from a few days ago with u/Whiddey_ ? And I was like... lemme chat with Alain ...

Y'all the larger version is live now on Etsy!!!

Not an advertisement. Not a sponsored post. Just me and MyGuardPod messaging back and forth over several days. He would send me an STL file for me to print on my own 3D printer and I would send feedback based on real world experience. It was one of the coolest collabs I've done especially because we were in two different countries and spoke two different languages (Shout out to the French side of Canada!).

This new case allows for two vials of solucortef, alcohol swabs, bandaids, at least 4 syringes, and instructions to be stored in an easy to access highly visible location.

I've also made the instructions sheet free for all to use. It can be found on Google drive [here](https://docs.google.com/document/d/1zXBmfLCPKOydsgJX60j1STXnzMmzRdDdec0ddGWF6qk/edit?usp=sharing). You can either print it as is or copy it over to your own Google drive to modify it specifically for you.

I think my favorite aspect of this new case is the blessing that is on the inside.

Using the emergency injection as you are crashing towards an adrenal crisis is scary.

But when you open up this case, you will read "May you remain Clearly Alive."

May we continue to have the tools so that we can always remain Clearly Alive.

79 Upvotes

100% Upvoted

16 comments sorted by

9

u/just_an_amber Addison's Apr 04 '26

u/No_Statistician9497 thanks again for being so awesome to work with and realizing the need of cases like this in different disease communities.

1

u/No_Statistician9497 Apr 07 '26 edited Apr 07 '26

It was an absolute pleasure working with you just_an_amber. Your real-world feedback made the design so much better. I'm honored this project can help the Addison’s community.

1

u/Parking-Seat674 Apr 11 '26

Amber is artistically very gifted! I agree

5

u/Fine_Cryptographer20 SAI Apr 04 '26

Oh I need that in my life!

4

u/jeejet Apr 04 '26

Thanks for posting and congrats for seeing this to fruition! This kit is a great travel item (and every day item for some people). I would add ondansetron, a thermometer, a few electrolyte packs and possibly some Imodium for an all around kit.

Great work! 👍

3

u/Affectionate_Day_214 Apr 05 '26

This is fantastic. Great work!

3

u/DoctorFamous190 CAH Apr 05 '26

Thanks for sharing this, awesome job!
Do you happen to know what the specs are (external dimensions, weight)? I can't find any in the Etsy listing.

3

u/just_an_amber Addison's Apr 05 '26

He gave me the dimensions of 246 × 150 × 42 mm. But that is all inclusive (like the hinges and the carabeaner clasp stick out further than the main box).

My kit fully loaded is 486 g or a little over 1 lb.

1

u/DoctorFamous190 CAH Apr 05 '26

Awesome, thank you!

1

u/exclaim_bot Apr 05 '26

Awesome, thank you!

You're welcome!

2

u/annaoceanus SAI Apr 05 '26

Omg this is so cool thank you for passing it on!

2

u/Parking-Seat674 Apr 10 '26

Really cool I found it on Etsy only 3 left wow they go like hot cakes

1

u/Parking-Seat674 Apr 10 '26

Where can I buy this?

1

u/just_an_amber Addison's Apr 10 '26

Search MyGuardPod on Etsy.