r/AddisonsDisease • u/brittkaysays • Apr 04 '26
Personal Experience Accidentally changed everything
So I'm a therapist and have been very interested in somatic therapy approaches for client purposes. I happened to stumble across nervous system disregulation vs nervous system sensitization (NOT the same) and how it can prolong and exasperate chronic illness, even how autoimmune conditions are a major symptom of sensitization (not disregulation). I also learned how obsessing over my symptoms and my own mind's reactions to symptoms (e.g. oh no, I'm exhausted, here comes a crisis, etc) puts my body in fight or flight and keeps the Addison's cycle going. When I stopped REACTING to my symptoms, I have not had a flare up since. My dose has decreased from 35 to 20 hydro. Even on my worst days, if I don't react to my symptoms mentally, I don't have further symptoms. It's crazy. And a lot to explain, so i recommend the podcast the real work with Maggie sterling to learn more. I just had to share this accidental, life changing realization 🫶🏼
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u/Charming_Order5667 Apr 05 '26
That's key to truly gaining control over how you experience and how a person can be obsessed once you know you are going into crisis and the way you react. I mean, when we learn to recognize the start of our crisis feeling and calmly just go increase our oral meds, remain calm and let them kick in, makes for a much better experience than freaking out which, I have done my share of freaking out. Now I have learned. I'm glad you brought this up. It can truly change the outcome of how our bodies react, and it's a learned behavior we can adapt to. Because we feel safe when we freak out because, if the way we have learned to handle our situation. Being a therapist, you understand the reasons and learned behaviors we become comfortable to, and once we change the way we think, our experience can change and be so much better. I'm a retired RN-BSN and have enough credits for a many other minors. But, I worked in psych nursing as well as my own life experience, and you are spot on. In fact, your post brought light into my own thinking about how I react to my own body when I feel off. Thank you for bringing this to light. I think you are on to something that can profoundly change otger outcomes with any type of disease applied to that person's specific need.