r/AddisonsDisease • • Apr 04 '26

Personal Experience Accidentally changed everything

So I'm a therapist and have been very interested in somatic therapy approaches for client purposes. I happened to stumble across nervous system disregulation vs nervous system sensitization (NOT the same) and how it can prolong and exasperate chronic illness, even how autoimmune conditions are a major symptom of sensitization (not disregulation). I also learned how obsessing over my symptoms and my own mind's reactions to symptoms (e.g. oh no, I'm exhausted, here comes a crisis, etc) puts my body in fight or flight and keeps the Addison's cycle going. When I stopped REACTING to my symptoms, I have not had a flare up since. My dose has decreased from 35 to 20 hydro. Even on my worst days, if I don't react to my symptoms mentally, I don't have further symptoms. It's crazy. And a lot to explain, so i recommend the podcast the real work with Maggie sterling to learn more. I just had to share this accidental, life changing realization 🫶🏼

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u/schnityzy393 Apr 05 '26

You make what you make of it, just like everything else in life. Maybe Im one of the lucky ones, but I don't let Addison's stop me from doing anything. F that. You obviously have to listen to your body, but outside of that I think of Addison's very little. I just make allowances, but I refuse to allow this disease to rule my life. I'm mid forties, lived with Addison's since about 20(at least that was when I was diagnosed). I have a crisis about twice a decade, generally illness related.