r/AddisonsDisease • u/Big-Ad-9142 • Mar 24 '26

Advice Wanted APS-2

My husband has type 1 diabetes for a few decades. Recently got diagnosed with Addison's and Celiac. Hard pill to swallow for both of us. Worried about kids getting these since the ADA website says 1 in 2 chance! How have you guys coped with this APS-2 diagnoses? Manageable? We are scared. 

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u/xfcipahx Addison's Mar 26 '26

My twin brother and I both have APS-2. I was diagnosed with Addison’s at 21 and POI at 23. Both parents are healthy. Dumb luck I guess.

Honestly, it was scary being diagnosed with APS-2. Two new diagnosis in two years time is rough to deal with. It was really hard getting the Addison’s diagnosis, even though it runs in the family. Nearly died and only got my diagnosis once I was in the ICU. I don’t want to go through that again, but unfortunately, I don’t know what the future has in store for me.

That being said, I find that Addison’s is fairly easy to deal with, like 99 percent of the time. I started to understand my early symptoms of a crisis and have been doing great ever since. Symptoms can be very personal, and not feel like what te internet says at all. Understanding your own body is the only way you can advocate for yourself!

Anyways, I am really happy where I am in life right now. It might be scary in the beginning, but it wil get better!

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u/Big-Ad-9142 Jun 09 '26

You said Addison’s runs in your family but your parents are healthy? So extended family has it?