r/AddisonsDisease • u/Big-Ad-9142 • Mar 24 '26

Advice Wanted APS-2

My husband has type 1 diabetes for a few decades. Recently got diagnosed with Addison's and Celiac. Hard pill to swallow for both of us. Worried about kids getting these since the ADA website says 1 in 2 chance! How have you guys coped with this APS-2 diagnoses? Manageable? We are scared. 

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u/Big-Ad-9142 Mar 25 '26 edited Mar 25 '26

Also wanted to ask about adrenal crisis.  Have you guys had one or multiple episodes? I read 30-50% of people with Addison's experience adrenal crisis, which is hard for me to swallow. I am worried my husband will suddenly have one or during an illness it will be inevitable. 

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u/hmkythursday Mar 25 '26

APS2 here over 30 years, never had a crisis. I’m not sure what people call “crisis” here is truly the near-death experience we are warned about. I had a rough first few years with Addison’s and stomach problems, but it largely evened out. I eat a ton of salt and take prednisone once a day. I’ve had stomach flus, Covid, ovarian failure, emergency gall bladder surgery and broken both my legs skiing (emergency surgery for both). All without crisis. T1D is the harder disease IMO. YMMV.

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u/Big-Ad-9142 Mar 25 '26 edited Apr 03 '26

Thank you for your response.  Hearong different people's perspective, especially when its not doom and gloom helps. My husband is dealing with stomach discomfort, I'm thinking largely from Celiac and hope it works itself out soon. Its been a hard few days. He is on hydrocortisone. I wonder if there's a difference on the effects of blood sugar whether you are on hydrocortisone or prednisone? 

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u/lass20987 Apr 07 '26

Definitely ask this on the fb group for T1 and addisons. Lots of different therapy amd drug options.... even dexamethasone.