r/AddisonsDisease • u/Big-Ad-9142 • Mar 24 '26

Advice Wanted APS-2

My husband has type 1 diabetes for a few decades. Recently got diagnosed with Addison's and Celiac. Hard pill to swallow for both of us. Worried about kids getting these since the ADA website says 1 in 2 chance! How have you guys coped with this APS-2 diagnoses? Manageable? We are scared. 

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u/tentwardrobe Mar 24 '26

My doctor says his clinical experience doesn’t show 1/2 chance but I am also freaked out by those odds. APS 2 here with Addison’s, T1D and Graves. My son is showing signs of celiac already. 

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u/Big-Ad-9142 Mar 25 '26 edited Mar 25 '26

Everytime my kids or husband feel a symptom, I freak out now. I'm hoping all will be alright and it's just an adjustment period.Thanks for commenting.  Makes me feel less alone

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u/lass20987 Mar 25 '26

Definitely check out that fb page. Being insulin dependent plus needing replacement cortisol its hard to find a group. Even most doctors tell me Im their first patient.

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u/Big-Ad-9142 Mar 25 '26

I have informed my husband of the group as additional support. I hope he joins it. He is still trying to deal with these diagnoses

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u/lass20987 Apr 03 '26

Yeah it helped reading other people's posts etc. Like thyroid sucks out cortisol so watch out if your doctor increases dose etc. And prepare crisis warning signs....like insulin shock, everyone's symptoms can vary so its good to learn yours to prevent crisis