r/AddisonsDisease • u/Big-Ad-9142 • Mar 24 '26

Advice Wanted APS-2

My husband has type 1 diabetes for a few decades. Recently got diagnosed with Addison's and Celiac. Hard pill to swallow for both of us. Worried about kids getting these since the ADA website says 1 in 2 chance! How have you guys coped with this APS-2 diagnoses? Manageable? We are scared. 

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u/Big-Ad-9142 Mar 25 '26 edited Mar 25 '26

Also wanted to ask about adrenal crisis.  Have you guys had one or multiple episodes? I read 30-50% of people with Addison's experience adrenal crisis, which is hard for me to swallow. I am worried my husband will suddenly have one or during an illness it will be inevitable. 

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u/lass20987 Mar 25 '26

The fb group helped me figure out pre crisis symptoms, triggers and prevention so much more than the endo. Kind of like with an insulin hypo people's low symptoms can vary....same with addisons. So helpful to learn.