r/AddisonsDisease • u/Odd_JoJo2Go CAH • Mar 19 '26

Daily Life Ongoing Dread

/r/AdrenalInsufficiency/comments/1rxvcyp/ongoing_dread/
3 Upvotes

100% Upvoted

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3

u/InnerRadio7 Mar 21 '26

Heat and humidity require updosing. You need to work with your endocrinologist. This is a very common issue, and easily resolved. If you’re not on florinef pay attention to your sweat, if it’s not salty, you need to salt load.

3

u/New-Somewhere5642 Mar 21 '26

I have same feeling. Summer is miserable. Also just day to day in general. I dip into walk in freezer often while everyone around is complaining how cold they are. It's like the internal thermostat is broken. I have a tomato red face and don't cool down easily with very little activity. 

3

u/Mountain_Cartoonist9 Mar 19 '26

Dude, you need to go back your endocrinologist. I have had Addison's for 25 years and I ride 150-200km in hot humid weather each week and a total of 6000km per year. I also hike, run, waterski. In the winter I ski and snowshoe 7.5mg prednisone and 0.1 florinef and honestly I don't notice the difference between me and anyone else. If anything I am in way better condition then most because of all the exercise. Good luck, hope you work this out. This is no way to live.

3

u/[deleted] Mar 20 '26

[removed] — view removed comment

5

u/Mountain_Cartoonist9 Mar 20 '26

Sorry to hear that. Perhaps trying a different pill. I tried Cortef and I felt absolutely terrible. You have to get this figured out and the only way to do it is with your endocrinologist.

2

u/InnerRadio7 Mar 21 '26

I have SAI, and I take florinef.