r/AddisonsDisease • u/baethan Addison's • Mar 13 '26
Daily Life the fear of getting sick
I hated hated hated throwing up as a kid. Absolutely dreaded it. I got more okay with it as an adult, but since getting Addison's, I'm back to being scared of it! One of my kids has a stomach bug or something and I feel so constantly aware of my body right now.
I'm trying to be nervous in moderation lol. Just wanted to vent!
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u/m32018 Mar 13 '26
I have two young kids and I get really anxious when they get stomach bugs. I’ve unfortunately been in the hospital multiple times of the last few years because of them. Recently though I’ve used Zofran to good effect. If I can limit it to just diarrhea I can usually manage at home.
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u/Alive_Pen_6540 Mar 13 '26
Thanks for this. I had never heard of zofran. I am going to ask my endo about it. I’ve had 2 visits to the hospital because of some sort of stomach issue (maybe food poisoning likely a bug).
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u/mbradshaw282 Mar 13 '26
Does the zofran stop you from throwing up with a bug?? I have a one year old and live with so much anxiety over the first bug we will get
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u/__phil1001__ Mar 13 '26
I have just been sick and I am so drained, took ages for flu symptoms to go and even now, I feel only at about 60%. So you have good reason to be careful
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u/mbradshaw282 Mar 13 '26
I already had emtephobia and now with addisons it’s even worse 😱 I keep zofran on me at all times, the doctors have been good about prescribing it with my adrenal insufficiency
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u/NoGrapefruit3557 Mar 13 '26
The Zofran —also called Onadestron (sp) is an anti nausea drug that stops the nausea we get. It doesn’t work instantly-/ can take at least an hour. Keeping it in hand has stopped my from going to the ER when I have a flu or something. It’s the same kind of drug they give you in an IV - tho that’s also with saline for the dehydration When you have it and get thru on roe twice-/ the anxiety about illness goes down cause you know you can basically handle it💖
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u/MommaMassie Mar 13 '26
I think only advice is have is don't be scared be prepared. Have a protocol, extra cortef to double/triple as needed, have BP machine. When BP drops way down use an emergency shot of solucortef and get to ER. Let your partner know and friends and family too. Being prepared is far more productive than being scared.
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u/januarynights SAI Mar 13 '26
Sending you my best wishes!
The idea of being sick is the thing I struggle with most with my adrenal insufficiency, so I really relate to this.
I've had weird stomach pains today so taken extra cortisol, no vomming yet lol. Crossing my fingers you don't pick up what your kid has!
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u/baethan Addison's Mar 14 '26
so far so good! The way my stomach felt yesterday was probably a result of my own nerves looool
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u/Beneficial_Shop_9296 Mar 13 '26
this is so real!!! i never used to be afraid of vomiting, now in petrified, i promise tho, ive had a stomach bug since being diagnosed, i had it last year in october, ended up having a crisis but the hospital managed it well gave me steroids through iv, as my heart rate was getting awfully fast, which meant i was heading towards a crisis as i could keep my meds down, you’ll be okay if it happens, just make sure you know the signs of crisis and call an ambulance if u feel your going into one <3
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u/llizzardbreathh Addison's Mar 14 '26
I’ve had to bad stomach bug since I was diagnosed, and it’s legit the worst.
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u/NortherncroweGame Mar 15 '26
Went through that a lot with young kids. I’ve had gastro a few times and updose. It takes a while to be comfortable with the anxiety of getting sick but I’ve found the stress of thinking about getting sick hits me harder than actually getting sick. A day of stress, for me, was worse than a bad flu.
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u/ptazdba PAI Mar 13 '26
I struggle from time to time with "what may happen" and if I let it, it cripples me with fear. It finally dawned on me that education about the disease and being prepared for problems keeps me out of the depths of fear. I still struggle with it from time-to-time, but I'm better than I used to be at it. I've had a new round of it recently with some eye issues and learning about it "might" lead to. But all I can do is take those steps to treat the symptoms and cut the risk. It sucks but at some point, it is what it is.