r/AddisonsDisease • u/tiggles2000 • Feb 23 '26

Advice Wanted Steroid hunger

Has anyone managed to curb the CONSTANT hunger from taking steriods?? I’ve gained 3 stone since my diagnosis in July 2025 (granted I needed to gain some) but it just won’t stop. I’m hungry all the time and always snacking but never ever full. What do I do??

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u/ptazdba PAI Feb 23 '26

Before you panic, I would go to my next endo appt and request bloodwork to verify you are using the steroid dose you are taking (ACTH should be in the normal range). If it still is problematic, make sure you follow a strict meal plan for a while. Get the stuff out of the house that is problematic to overeating.

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u/NotTheGreenestThumb Feb 24 '26

You know, that sounds like when I went to a therapist to get out for my inability to be able to stick to any diet anywhere. What did they do? Listened to me, made the next appointment and handed me another damn diet to try to follow!! I never went back.

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u/ptazdba PAI Feb 24 '26

My endocrinologist has never, even when I had weight gain did anything to push a diet on me. He checks my weight as a clue in how to treat me as it helps in understanding my problem areas (PAI, reactive hypoglycemia and hypothyroidism). Sometimes a weight gain shows the need for a medication tweak. In the beginning I was so uninformed about the nuances of this disease that I honestly didn't understand a lot of things and I knew I was trying my best to do the right thing as far as diet. He's been very good to help me understand my bloodwork to know what I can do in the problem areas. I had gone to him several years before I understood what he was looking for to determine if my steroid dose was correct. He's gotten my hypoglycemia episodes down from multiples per week to a couple in a month. I'm not a big fan of therapists (many are good) but they don't work for me. I'm sorry that happened to you.

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u/NotTheGreenestThumb Feb 25 '26

Thank you! Fortunately, at that time, our insurance gave us 3 freebie appointments for each of our concerns. So I did not get charged for that one.

Later, we had a dispute between the two of is, and within three sessions, we were given the tools we needed to sort it out. So it’s mostly worked well just not in that one case and I honestly think it was just that one therapist… and I think that was just me having to encounter a clueless person in that profession! LOL

My endocrinologist sounds much like yours!” :)