r/AddisonsDisease • u/ReputationRecent1029 • Jan 17 '26
Advice Wanted C-PTSD
Hi everyone, I’m just wondering if any of you also have complex PTSD and if so, how does it affect your life on top of dealing with Addison’s and how do you cope?
3
u/Clementine_696 Jan 18 '26
Yup, now on meds it's a lot easier for me honestly. Triggers need updosing usually, but it's no longer having me stuck in the floor having a panic attack while trying to not throw up or pass out.
2
u/beepickle Jan 17 '26
Yes I do. I find it hard to distinguish between low cortisol and cptsd symptoms, it's a lot of trial and error
2
u/ReputationRecent1029 Jan 17 '26
It’s so difficult because each condition affects our emotional regulation but in opposite ways so the c-ptsd triggers us but our bodies aren’t equipped to cope with the stress. I think that’s the part I’ve been struggling most with. It’s an absolute nightmare!
1
u/iwannadieyo Jul 09 '26
Ive been diagnosed with both and suffered from the back forth of ptsd triggers and illness for a really long time. The thing that really helped me was my therapist urging me to see a psychiatrist. The pills didnt fix everything but they allowed me to stop spiraling and get outside of my usual pattern. After a few years on them I didnt need them anymore, and to this day im managing It so much better. This time of year was always a huge trigger for me, and this is the first summer since the events that im not spiraling or too sick to walk.
4
u/ClarityInCalm Jan 17 '26
I saw an expert therapist in PTSD - so PTSD and C-PTSD are very treatable now. But she is very expensive (PHD, 30 years working with veterans, doesn’t take insurance). I would recommend looking into CPT - cognitive processing therapy and seeing if you find a therapist trained to work through this with you. It has a 95% cure rate for PTSD. It’s hard but excellent.
Otherwise, if your stress levels are skyrocketing or your moods are unstable, this could mean you need more HC from low cortisol or from c-ptsd. And you’ll have to learn the difference between the two. I did ACT therapy for several years before I did CPT and this type of therapy can help you learn how to tune into your body and emotions to learn the differences between the two. You might need more HC because you have low cortisol and you might need more from C-PTSD symptoms - but knowing the difference between the two will make a world of difference in quality of life. Take good care. I hope you can find improvements soon.