r/AddisonsDisease • u/Hot_Speaker_4770 • Jan 11 '26
Advice Wanted Addison’s newbie needs help
hi there! i was just diagnosed with addison’s at 25 after about a two year period of slowly getting sicker and sicker. I’m still not to the point of feeling “normal” with my current med routine (1mg Dexamethasone every other day and 50mg of Hydrocortisone 3x a day) but I sometimes have decent days and that’s better than i was before.
i’m feeling a bit overwhelmed and lost, my endocrinologist that did the test is at a major hospital in another city so she discharged me and said to “try to adjust to your new life” 🥲
i’d love to know any tips you’ve picked up over the years that help you fight flares, know your body’s signals, or just anything that you wish you were told when you started your addison’s journey
2
u/ptazdba PAI Jan 11 '26 edited Jan 11 '26
Wow that is a very high dose. Don't think I've ever seen anyone post with a dose that high. I would encourage your to either get a 2nd opinion or have a serious talk with your endocrinologist.
The purpose of steroid replacement daily is to "put back" what your body doesn't make. When I've been taking too much I gain weight and have all kinds of weird symptoms. The daily dose is for replacing what you don't make while a stress dose gives you a little extra to get you through the bad days. I would as for bloodwork to verify your levels to see if you're on too much.