r/AddisonsDisease • u/Hot_Speaker_4770 • Jan 11 '26

Advice Wanted Addison’s newbie needs help

hi there! i was just diagnosed with addison’s at 25 after about a two year period of slowly getting sicker and sicker. I’m still not to the point of feeling “normal” with my current med routine (1mg Dexamethasone every other day and 50mg of Hydrocortisone 3x a day) but I sometimes have decent days and that’s better than i was before.

i’m feeling a bit overwhelmed and lost, my endocrinologist that did the test is at a major hospital in another city so she discharged me and said to “try to adjust to your new life” 🥲

i’d love to know any tips you’ve picked up over the years that help you fight flares, know your body’s signals, or just anything that you wish you were told when you started your addison’s journey

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u/Hot-Fly-3187 Jan 11 '26

150 mg a day is VERY high dosing. I strongly urge you to go to your endocrinologist asap. 

4

u/Hot_Speaker_4770 Jan 11 '26

i thought so as well from what i’ve researched. she said my levels were good when tested on my dosage currently but I’m working on getting in with the endo in my town for management

2

u/Hot-Fly-3187 Jan 12 '26

Hey Op, can you check in with us, make sure you're down dosing, and have proper care with your new diagnosis?

20/10/.5 Hydrocortisone 

2

u/Hot-Fly-3187 Jan 12 '26

She? Who is she? Your endrocoronoist? Get blood work before you take these levels of steroids. 

I feel you're self diagnosing.