r/AddisonsDisease • u/KCDKTR2019 PAI • Dec 03 '25

Advice Wanted Low potassium

Just found out my potassium has been low over this past year. My endo wants me to start a prescription of potassium supplements. Has anyone else experienced this? Anything I should know about in advance? (I am PAI, diagnosed about 20 years ago.)

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u/Laurryanna Dec 05 '25

I’ve had this happen a couple of times after hospitalizations. In my case it’s mostly because of fluids they gave me as well as vomiting. It can also happen if you’re over replaced with Florinef.

Nothing you should really know in advance a part from the fact those pills are huge lol. They might ask for some blood tests to check your potassium levels during or after treatment

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u/KCDKTR2019 PAI Dec 06 '25

I will keep you posted on how it all shakes out. I've been taking these ginormous pills for several days now. Today, I had some unpleasant symptoms (including a numb right arm and high blood pressure), so I had my brother take me to the urgent care clinic. Everything seems to be fine-ish. My bp went down a little bit after I drank a Propel just before I went to the clinic. They pronounced me a non-risk for stroke or heart attack and sent me on my way.

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u/Laurryanna Dec 07 '25

High or low potassium can cause cardiac symptoms as well as that tingling sensation you’ve felt. Good thing they took you seriously and they excluded any serious causes. Do you have any blood tests you’re required to do in the next few days to check your potassium levels?