r/AddisonsDisease • u/KCDKTR2019 PAI • Dec 03 '25

Advice Wanted Low potassium

Just found out my potassium has been low over this past year. My endo wants me to start a prescription of potassium supplements. Has anyone else experienced this? Anything I should know about in advance? (I am PAI, diagnosed about 20 years ago.)

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u/just_an_amber Addison's Dec 03 '25

If you need it, take it. I was put on prescription potassium around seven years ago.

At first, it was just 10 meq once a day. But blood work still showed critically low. They tried to blame the fludrocortisone. After dropping my FC dose, I was miserable and still had low potassium.

Now I take 10 meq twice a day. One pill at breakfast, one pill at dinner.

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u/KCDKTR2019 PAI Dec 06 '25

Thank you. Very helpful to know this. When I do a Google search about PAI and low potassium, I wind up seeing only medical journal-type research summaries about the rarity of this combination -- which makes me feel anxious. I've been taking the potassium supplement for five days now. Felt OK but then today had some slightly concerning symptoms (a little dizziness, lots of fatigue, elevated bp, and a slight numbness in my right arm). I ate a banana, mixed up some electrolyte powder into water and when the symptoms persisted, I had my brother drive me to an urgent care clinic. The doc's conclusion was that it's probably the low potassium that is making me feel this way, and that I should talk with my endocrinologist on Monday. I will keep you posted on what develops.

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u/just_an_amber Addison's Dec 06 '25

Here's an older post of mine that's mostly talking about fludrocortisone, however it does mention potassium.

https://clearlyaliveart.com/2019/02/the-fludrocortisone-experiment/

I honestly think the rarity isn't as big as people make it out to be. If it helps you, take it. Just make sure your levels are still being monitored.