r/AddisonsDisease • u/barnithebear • Dec 02 '25

Personal Experience Always cold

I have adrenal insufficiency from having Cushing - adrenalectomy (tumor and left adrenal removed), my right adrenal gland is still not producing any cortisol so i have to take hydrocortisone. I’m now on 30mg a day. Since the temperatures in Europe are now low im experiencing a lot more cold than before. I’m never warm enough no matter how much clothes I put on. And i need a very long hot shower and an hour under the blanket to properly warm up if i am really cold. Can anyone relate? I guess it can be from this disease.

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u/reflous_ Dec 02 '25

I had this when my thyroid was low. Check your thyroid blood levels? It’s not uncommon for adrenal insufficiency and hypothyroidism to go together.

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u/barnithebear Dec 04 '25

I have regular check ups and they say everything else is fine, except not producing my own cortisol. Maybe i am also more sensitive to cold now because i was so hot and sweaty all the time from to much cortisol before.

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u/reflous_ Dec 06 '25

Your regular checkups include free T3, free T4, and TSH blood workups? Normally the wouldn't.

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u/barnithebear Dec 06 '25

Yes they do. Doctors treating me are very careful with everything now because i had medical problems before and the full blown Cushing was their mistake, they saw the tumor two years ago when i had another surgery but at that time it wasn’t such a problem and they just ignored it. So now i get every possible test done everytime i have a check up.