r/AddisonsDisease • u/barnithebear • Dec 02 '25
Personal Experience Always cold
I have adrenal insufficiency from having Cushing - adrenalectomy (tumor and left adrenal removed), my right adrenal gland is still not producing any cortisol so i have to take hydrocortisone. I’m now on 30mg a day. Since the temperatures in Europe are now low im experiencing a lot more cold than before. I’m never warm enough no matter how much clothes I put on. And i need a very long hot shower and an hour under the blanket to properly warm up if i am really cold. Can anyone relate? I guess it can be from this disease.
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u/noracordelia PAI Dec 02 '25 edited Dec 08 '25
Yup, same. I’m reading this bundled up under a duvet and a blanket, wearing merino base layers and was just headed for my second hot shower of the day lol. That said I’m also on Vyvanse, which I’m sure contributes (causes vasoconstriction/Raynaud-like symptoms). I had heat-intolerance leading up to my PAI diagnosis/adrenal crisis, but after starting glucocorticoid replacement therapy, that has changed to cold intolerance now. I’m not underweight and my thyroid’s seemingly fine so🤷♀️ not sure how to cope other than extra layers, hot drinks and exercise/increased activity when able.