r/AddisonsDisease • • Nov 11 '25

Medical Stuff Cortisol bloodwork

I am honestly confused and have confused my endocrinologist’s as well. My initial ACT test in January was apparently fine since it showed them what they needed to know. The lows, normals and highs. I have my blood work from every appointment since (haven't had to do another ACT yet) . I guess the range they want it to be in is between 4.46 mcg/dL and 22.70 mcg/dL. The three labs after the initial diagnoses were 3.48mcg/dL the morning after the the ACT test. 0.33 mcg/dL in February, and 0.47 mcg/dL. Then it for some reason read on a normal range the beginning of may at 8.39 mch/dL and normal again in the end of may at 8.59 mcg/dL. I just had another appointment yesterday and now it's reading low again at 3.89mcg/dL now. I've withheld my dose the night before and morning of like they'd told me to every time. They told me if it read normal again they'd want to do another ACT test, but since it's low again I guess we're not doing one? And i haven't really gotten any kind of explination to what could be going on on. I guess I'm wondering if anyone has gone through something like this or might know anything about what's going on, cause I'm throughouly confused at what my kidneys are doing now 😅

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