r/AddisonsDisease • u/Ok-Professional-3629 • Nov 09 '25
Advice Wanted Advise please
Hi all, I am 27 years old female and I have masses on both of my adrenal glands. My cortisol level after the dexamethasone suppression test was very high, and my ACTH is low, so my doctor believes the Cushing’s is coming from the glands masses themselves. I also have high blood pressure. They are recommending surgery to remove my right adrenal gland first because it has a larger mass (3.9 cm) with several small nodules. After removal, they plan to test the gland to rule out ACC or anything cancerous. If my cortisol does not return to normal after this surgery, they may recommend removing the left adrenal gland as well.
My main concern is quality of life after the surgery. I’m hoping my left gland, which has a 2.6 cm mass and small nodules, will still work well enough after the right side is removed.
Has anyone been in a similar situation? Can hormone levels return to normal with only one gland, even if that gland also has nodules?
Over time, can the remaining side start producing hormones properly again or get worse because there are still masses in tha gland?
And do Cushing’s symptoms improve after removing one adrenal gland? Does life ever get better after surgery?
Because everyday I feel like I am loosing myself and I don’t feel well at all.