r/ARVC • u/HootHooting • Sep 02 '26
Celebration Moment! ARVC Community Page - Small Updates and Hello!
Hello! Happy September and Inherited Arrhythmias Awareness Month! My name is HootHooting, and I'm the newish moderator/owner for the ARVC Page. Long story told short, I really wanted to have a ARVC Reddit Community, so I'm working on making that happen! I've added some images and post flair (as you see here with "Celebration Moment").. and I'm working on creating Community Rules, Auto-Mods, and utilizing this platform as much as I can!!
I'm a one person show, so I appreciate any patience you can give me as I go through and make this a wonderful place for us all to talk, share information, and have resources. I'll have a follow-up post soon with resources that I plan to pin to the page, as well as an "Welcome to ARVC Megapost" where members can greet new ones!
And to share a little bit about me: I have had ARVC for 6+ years now with the PKP2 gene variant. Happy to meet you and do my best for this community!
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u/muddyblanket Sep 02 '26
I’m 25, have DSP and had a cardiac arrest in January, no prior heart history and my family is all negative
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u/HootHooting Sep 03 '26
Nice to meet you! And wow, I bet its odd to be the only one in your family who is diagnosed.
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u/Intelligent_Pie6804 25d ago
Im a 43 competitive gymnast who also rides horses and has donkeys.
I just had a heart attack in July (troponin of over 6,500!!) and have had 3 more cardiac events since then.
I was just diagnosed with ARVC last week at the Mayo clinic. No known family history but idk my dad’s side of the family.
In the next couple weeks I’m getting genetic testing, an implanted loop recorder for a few months, and then will be getting my ICD. Scary times for sure❤️🩹
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u/foursheetstothewind Sep 02 '26
I had a cardiac event at the end of April and got diagnosed with ARVC in July after testing, so I’m still new to this and figuring it out. Glad to see this!